The challenges faced by researchers involving patients as partners in research

The challenges faced by researchers involving patients as partners in research

This review presents recent findings from the literature on the challenges that researchers may face, when patients get involved as partners in research: which patients to recruit, how to clarify and set boundaries to the roles of the patient and the researcher, and how to evaluate the outcome of in...

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Bibliographic Details
Published in:Ugeskrift for læger Vol. 180; no. 45
Main Authors: Nielsen, Marie Konge, Sandvei, Marianne, Hørder, Mogens
Format: Journal Article
Language:Danish
Published: Denmark 05-11-2018
Subjects:
Humans
Patient Participation
Research Personnel
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Summary:This review presents recent findings from the literature on the challenges that researchers may face, when patients get involved as partners in research: which patients to recruit, how to clarify and set boundaries to the roles of the patient and the researcher, and how to evaluate the outcome of involvement. Patient involvement may challenge the professional identity of a researcher. Researchers are often uncertain about how to establish a meaningful collaboration with partners whose knowledge comes from the lived experience of being a patient.
ISSN:1603-6824