Home parenteral nutrition registry in Spain for the year 2010: NADYA-SENPE Group

• Published in: Nutrición hospitalaria : organo oficial de la Sociedad Española de Nutrición Parenteral y Enteral Vol. 26; no. 6; pp. 1277 - 1282
• Main Authors: Wanden Berghe, C, Gómez Candela, C, Chicharro, L, Cuerda, C, Martínez Faedo, C, Virgili, N, Moreno, J M, Pérez de la Cruz, A, Alvarez, J, Garde, C, Jiménez-Sanz, M, Romero Merlos, A, Forga, M T, Apezetxea, A, García Delgado, Y, Gil Martínez, C, Cánovas, B, Sánchez Vilar, O, Penacho Lázaro, M A, de Luis, D, Laborda, L, Zapata, A
• Format: Journal Article
• Language: Spanish
• Published: Spain 01-11-2011
• Subjects: Adolescent; Adult; Aged; Catheter-Related Infections - epidemiology; Child; Female; Humans; Male; Middle Aged; Parenteral Nutrition, Home - adverse effects; Parenteral Nutrition, Home - statistics & numerical data; Registries; Short Bowel Syndrome - epidemiology; Short Bowel Syndrome - therapy; Spain - epidemiology; Young Adult; Spain
• ISSN: 1699-5198
• DOI: 10.1590/S0212-16112011000600014

To report the Group Registry NADYASENPE data about home parenteral nutrition (HPN) in Spain in 2010.
A descriptive study of the database of the national registry of HPN of NADYA-SENPE (December 10, 2009 to December 10, 2010). For the calculation of prevalence the latest data published by the Institute National Statistics Office (01/01/2009) was used.
There were registered 148 patients from 23 hospitals, 86 women (58.11%) and 9 children (6.08%). The average age of the 139 patients older than 14 years was 53.06 ± 15.41 years. The average duration of HPN was 316.97 days/patient. The most common diagnosis in those younger than 14 years was short bowel traumatic with 5 cases (55.55%) and in those older than 14 years, palliative care cancer with 29 cases (19.59%). The reason for the indication for HPN was short bowel syndrome in 74 cases (47%). The access via most frequently recorded was tunneled catheter in 36 cases (22.78%) followed by implanted port-catheters in 13 cases (8.23%) and other pathways in 3 cases (1.90%). There were 23 catheterrelated infections (82.14%) which represented 0.49 /1,000 days of PN, all of which occurred in cases older than 14 years. During the year 24 episodes of HPN ended, the most frequent cause was the transition to oral nutrition in 12 episodes (50%). It was reported that patients had a normal activity in 70 episodes of HPN (44.30%) with complete autonomy in 88 episodes (55.69%). Some patients 39 (24.68%) were potential candidates for intestinal transplantation.
The number of registered patients is slightly lower than the previous year, although the number of participating hospitals is the same. The most frequent complication remains catheter-related infection but its incidence has decreased from previous years, presenting the lowest rate since the creation of the record. Differences in participation in the registry observed in the Autonomous Communities causes the development of implementation strategies. There is a gradual increase in day length of HPN over the years, which suggests the chronic treatments of some patients and obliges to study the existence of a possible confounding factor, in case there is an oversight of closing an episode. Therefore, it is necessary to update the registry with warning systems that facilitate periodic review of the patients and optimize the validity of registration.