Talking about home hospices with terminally ill cancer patients -- a multicenter survey of bereaved families

• Published in: Gan to kagaku ryoho Vol. 42; no. 3; p. 327
• Main Authors: Yamagishi, Akemi, Morita, Tatsuya, Kawagoe, Shohei, Shimizu, Megumi, Ozawa, Taketoshi, An, Emi, Kobayakawa, Makoto, Tsuneto, Satoru, Shima, Yasuo, Miyashita, Mitsunori
• Format: Journal Article
• Language: Japanese
• Published: Japan 01-03-2015
• Subjects: Aged; Bereavement; Family - psychology; Female; Home Care Services; Hospices; Humans; Male; Neoplasms - therapy; Surveys and Questionnaires; Terminally Ill
• ISSN: 0385-0684

Communicating with patients is clearly an integral part of physicians' practice, and introducing home hospice care is sometimes a difficult task for oncologists. The primary aims of this study were to clarify family-reported degree of emotional distress and the necessity for improvement in communication when introducing home hospice care, and to identify factors contributing to distress levels.
A multicenter questionnaire survey was conducted involving 1,052 family members of cancer patients who died at home at 15 home-based hospice services throughout Japan.
A total of 616 responses were analyzed(effective response rate of 60%). Fifty-nine percent of the bereaved family members reported that they were distressed or very distressed in receiving information about home hospice care, and 30% reported considerable or much improvement was necessary. There were 6 determinants of family-reported degree of emotional distress and the necessity for improvement: 1 ) Family distress was experienced when the physician stated that the disease progression defeated medicine and nothing could be done for the patient. 2 ) The physicians' explanation did not match with the state of family preparation. 3 ) There was no intimacy between hospital physician and home physician. 4 ) Physicians did not make the atmosphere relaxing enough to allow families to ask questions. 5 ) Nurses did not follow up to generate additional ideas to supplement the physician's statement. 6 ) Family members experienced pressure to make a rash decision.
In receiving information about transition of home care, a considerable number of families experienced high levels of emotional distress and felt a need for improvement in the communication style. This study proposes 6 strategies to alleviate family distress.