Entry into the treatment of the Congenital Hypothyroidism according to reports of their caregivers/Adesao ao tratamento do Hipotireoidismo Congenito segundo relato de cuidadores

• Published in: Psicologia, reflexão e crítica Vol. 23; no. 1; pp. 19 - 28
• Main Authors: de Oliveira, Fabiana Pereira Sabino, Ferreira, Eleonora Arnaud Pereira
• Format: Journal Article
• Language: English; Spanish
• Published: Federal University of Rio Grande do Sul (JFRGS) 01-01-2010; SpringerOpen
• Subjects: Congenital hypothyroidism; Pediatric psychology; Treatment entry
• ISSN: 0102-7972; 1678-7153

This study aims at identifying variables which interfere on the entry into the treatment according to reports of caregivers of children suffering from Congenital Hypothyroidism seen at the Center of Reference in Para State. Fifty main caregivers, with different degrees of kinship to the children and ranging from 17 to 55 years old, took part in this study. The variables related to the treatment entry were identified by means of interviews with the caregivers following structured pilot instructions. Results showed that most of the caregivers are not aware of the characteristics of the disease, its etiology, diagnosis, treatment and prognostic, regardless the age, school degree, kinship and amount of time the child is on the Program, which makes the treatment entry more difficult. In most children, the Newborn Screening Test was not done in the right time, fact that brought damage to the treatment. Keywords: Treatment entry; Pediatric psychology; Congenital hypothyroidism. Esta pesquisa procurou identificar variaveis que interferem na adesao ao tratamento segundo relato de cuidadores de criancas com Hipotireoidismo Congenito atendidas em um centro de referencia no Estado do Para. Participaram 50 cuidadores primarios, com idade entre 17 e 55 anos, com diferentes graus de parentesco com a crianca. As variaveis relacionadas a adesao foram identificadas por meio de entrevistas com os cuidadores, seguindo roteiro estruturado. Os resultados indicaram que a maioria dos cuidadores desconhece sobre caracteristicas da doenca, etiologia, diagnostico, tratamento e prognostico, independentemente da idade, escolaridade, grau de parentesco e tempo em que a crianca esta no Programa, dificultando a adesao ao tratamento. Para a maioria das criancas, o Teste do Pezinho foi realizado com atraso, indicando prejuizos ao tratamento. Palavras-chave: Adesao ao tratamento; Psicologia pediatrica; Hipotireoidismo congenito.