Examining the Case for Palliative Care in Patients With Systemic Sclerosis

Systemic sclerosis (SSc) is a complex, multiorgan disease that causes substantial and progressive symptoms and impairs quality of life. International guidelines recommend early, integrated palliative care for patients with advanced cardiopulmonary disease, such as heart failure and interstitial lung...

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Bibliographic Details
Published in:Journal of rheumatology Vol. 51; no. 10; p. jrheum.2023-1251
Main Authors: McDonald, Julie C, Ross, Laura, Wicks, Carolyn J, Philip, Jennifer A M
Format: Journal Article
Language:English
Published: Canada 01-10-2024
Online Access:Get full text
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Summary:Systemic sclerosis (SSc) is a complex, multiorgan disease that causes substantial and progressive symptoms and impairs quality of life. International guidelines recommend early, integrated palliative care for patients with advanced cardiopulmonary disease, such as heart failure and interstitial lung disease, as this care can improve patient, caregiver, and healthcare outcomes. In this article, we examine the potential need and role for palliative care in SSc. We propose that early, integrated palliative care could improve symptom control and quality of life and recommend a research agenda for palliative care in SSc to address the lack of evidence in this area.
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ISSN:0315-162X
1499-2752
1499-2752
DOI:10.3899/jrheum.2023-1251