Quality of life as assessed by adults with cerebral palsy

• Published in: PloS one Vol. 13; no. 2; p. e0191960
• Main Authors: Maestro-Gonzalez, Alba, Bilbao-Leon, M Cruz, Zuazua-Rico, David, Fernandez-Carreira, Jose M, Baldonedo-Cernuda, Ricardo F, Mosteiro-Diaz, M Pilar
• Format: Journal Article
• Language: English
• Published: United States Public Library of Science 05-02-2018; Public Library of Science (PLoS)
• Subjects: Adults; Biology and Life Sciences; Care and treatment; Cerebral palsy; Children; Classification; Colleges & universities; Construction standards; Demographic variables; Demographics; Development and progression; Education; Evaluation; Health aspects; Intellectual disabilities; Medicine; Medicine and Health Sciences; Nursing; Paralysis; People with disabilities; Personal relationships; Quality assessment; Quality of life; Research and Analysis Methods; Self-rated health; Sexual relationships; Sexuality; Social Sciences; Young adults; Netherlands; Spain
• ISSN: 1932-6203; 1932-6203
• DOI: 10.1371/journal.pone.0191960

We explored the quality of life of adults with cerebral palsy without an intellectual disability and the predictors of quality of life.
Because cerebral palsy is a disease that manifests in childhood, much of the research into quality of life for those dealing with it focuses on children; there are few studies that evaluate the quality of life of adults with cerebral palsy. Therefore, it is important to consider their perceptions in order to improve their general wellbeing and self-determination.
This was a descriptive, cross-sectional study.
Quality of life was measured using the GENCAT Quality of Life Scale. Demographic and personal variables were also collected and examined. Participants comprised 75 adults (58.7 percent men, mean age = 40.84 years) with cerebral palsy who were members of the National Cerebral Palsy Association of Spain between 2014 and 2015. A linear multivariate model was examined as well.
The overall mean score indicator of participants' quality of life was 103.29, which corresponds to the 56.6th percentile on the GENCAT scale. Examining the level of qualification, we found significant differences in the factors "personal development" and "self-determination," and those with a university education obtained higher scores than their less-educated counterparts. Having a partner was related to higher quality of life standard scores. After constructing a linear model, it was observed that maintaining sexual relationships was another factor that increased participants' quality of life.
This study highlights the importance of social and romantic relationships to achieve a better quality of life in adults with cerebral palsy who do not have an intellectual disability. Social integration and sexuality education programs should be developed to improve their quality of life.