Diverse Families’ Experiences with HPV Vaccine Information Sources A Community-Based Participatory Approach

• Published in: Journal of community health Vol. 42; no. 2; pp. 400 - 412
• Main Authors: Lai, Djin, Bodson, Julia, Davis, France A., Lee, Doriena, Tavake-Pasi, Fahina, Napia, Edwin, Villalta, Jeannette, Mukundente, Valentine, Mooney, Ryan, Coulter, Heather, Stark, Louisa A., Sanchez-Birkhead, Ana C., Kepka, Deanna
• Format: Journal Article
• Language: English
• Published: New York Springer Science + Business Media 01-04-2017; Springer US; Springer Nature B.V
• Subjects: Acculturation; Adolescent; Adult; Africa - ethnology; African Americans - psychology; Aged; Cancer; Community and Environmental Psychology; Community health care; Community involvement; Community organizations; Community Relations; Community-Based Participatory Research; Ethics; Female; Focus Groups; Health care; Health education; Health Knowledge, Attitudes, Practice - ethnology; Health Promotion and Disease Prevention; Hispanic Americans - psychology; Human papillomavirus; Humans; Indians, North American - psychology; Information Sources; Male; Medicine; Medicine & Public Health; Middle Aged; Minority & ethnic groups; Oceanic Ancestry Group - psychology; ORIGINAL PAPER; Papillomaviridae; Papillomavirus Vaccines - therapeutic use; Parent Attitudes; Patient Education as Topic; Public Health; Refugees - psychology; Sociodemographics; Studies; Undergraduate Students; Uterine Cervical Neoplasms - prevention & control; Uterine Cervical Neoplasms - psychology; Vaccines; Young Adult; Adolescent health; Community-based participatory research; Papillomavirus vaccines; Culturally competent care; Consumer health information
• ISSN: 0094-5145; 1573-3610
• DOI: 10.1007/s10900-016-0269-4

Current sources of publicly available human papillomavirus (HPV) information may not adequately meet the needs of diverse families. This study sought to describe associations between sociodemographic and acculturation factors, and sources of HPV information among diverse parents and caregivers. Community organizations purposively recruited participants from African American, African refugee, Hispanic/Latino, American Indian, and Native Hawaiian and Pacific Islander communities for a 21-item survey (N = 228). Ninenty-three of these participants also participated in ten focus groups conducted in three languages. Descriptive statistics and Fishers’ Exact Test for Count Data were produced and triangulated with focus group data to provide additional context. Overall, HPV vaccine awareness and knowledge in the five communities was low. This study found that a greater proportion of lower-acculturated participants had heard of HPV through personal networks (foreign-born = 50% vs US-born = 30%, p < 0.05; medium acculturation = 60% vs high acculturation = 26%, p = 0.01), while greater proportions of US-born participants reported media sources (49% vs foreign-born = 29%, p < 0.05). Across communities, healthcare system sources were described as important and preferred sources of HPV information. Hearing about the HPV vaccine from healthcare settings was significantly associated with increased accuracy in HPV vaccine knowledge (p < 0.05). Communities described a need for more in-depth information about the HPV vaccine, and culturally and linguistically appropriate educational materials. Culturally-competent delivery of HPV information through the healthcare system sources may be important in improving knowledge and acceptability of the HPV vaccine among diverse families.