Patient access to clinical notes in oncology: A mixed method analysis of oncologists’ attitudes and linguistic characteristics towards notes

• Published in: Patient education and counseling Vol. 102; no. 10; pp. 1917 - 1924
• Main Authors: Alpert, Jordan M., Morris, Bonny B., Thomson, Maria D., Matin, Khalid, Sabo, Roy T., Brown, Richard F.
• Format: Journal Article
• Language: English
• Published: Ireland Elsevier B.V 01-10-2019
• Subjects: Adult; Attitude of Health Personnel; Cancer communication; Clinical notes; Female; Humans; Interviews as Topic; Linguistic analysis; Linguistics; Male; Medical Oncology; Medical Records Systems, Computerized; Middle Aged; Mixed methods; Nursing; Oncologists - psychology; Open notes; Patient Access to Records; Physician-Patient Relations; Practice Patterns, Physicians; Linguistic analysis; Mixed methods; Cancer communication; Clinical notes; Open notes
• ISSN: 0738-3991; 1873-5134
• DOI: 10.1016/j.pec.2019.05.008

•Pre- and post- implementation of oncologists’ clinic notes were analyzed.•No significant differences were found in note content pre- and post- analysis.•Oncologists were hesitant to embrace OpenNotes, but acknowledge potential benefits.
Providers have expressed concern about patient access to clinical notes. There is the possibility that providers may linguistically censor notes knowing that patients have access.
Qualitative interviews and a pre- and post- linguistic analysis of the implementation of OpenNotes was performed to determine whether oncologists changed the content and style of their notes.
Mixed methods were utilized, including 13 semi-structured interviews with oncologists and random effects modeling of over 500 clinical notes. The Linguistic Inquiry and Word Count program was used to evaluate notes for emotions, thinking styles, and social concerns.
No significant differences from pre- and post-implementation of OpenNotes was found. Thematic analysis revealed that oncologists were concerned that changing their notes would negatively impact multidisciplinary communication. However, oncologists acknowledged that notes could be more patient-friendly and may stimulate patient-provider communication.
Although oncologists were aware that patients could have access, they felt strongly about not changing the content of notes. A comparison between pre- and post-implementation confirmed this view and found that notes did not change.
Patient access to oncologist’s notes may serve as an opportunity to reinforce important aspects of the consultation.