Adapting the telephone assessment and skill‐building kit to the telehealth technology preferences of stroke family caregivers

• Published in: Research in nursing & health Vol. 44; no. 1; pp. 81 - 91
• Main Authors: Bakas, Tamilyn, McCarthy, Michael J., Israel, Jahmeel, Brehm, Bonnie J., Dunning, Kari, Rota, Matthew, Turner, Mickenna, Miller, Elaine L.
• Format: Journal Article
• Language: English
• Published: United States Wiley Subscription Services, Inc 01-02-2021
• Subjects: Adult; Aged; Aged, 80 and over; Averages; Caregivers; Caregivers - psychology; Caregivers - statistics & numerical data; Clinical trials; Content analysis; Female; Humans; intervention; Interviews as Topic - methods; Interviews as Topic - statistics & numerical data; Male; Middle Aged; Qualitative Research; Social Skills; Stroke; Stroke - psychology; Stroke - therapy; Technology; telehealth; Telemedicine; Video conferencing; caregivers; technology; intervention; stroke; telehealth
• ISSN: 0160-6891; 1098-240X
• DOI: 10.1002/nur.22075

Family caregivers exhibit a wide variety of needs and concerns while providing care to stroke survivors after discharge to the home setting. We report the results of two related studies utilizing a multimethod design in which stroke family caregivers (N = 12; N = 10) were interviewed using open‐ended questions, followed by written caregiver ratings regarding the types of telehealth technologies they preferred for the telephone assessment and skill‐building kit (TASK III). Qualitative data were analyzed using content analysis procedures with a provisional “start list” of codes in a matrix template based on the types of telehealth technologies in the rating forms. Descriptive statistics were used to analyze ratings with response scales ranging from 1 = strongly disagree to 5 = strongly agree. Average ratings for the telehealth technologies for the TASK III resource guide were obtained for the mailed hard copy binder (M = 3.58–4.13; SD = 0.35–1.00), an interactive website (https://www.task3web.com/; M = 3.86–4.17; SD = .72–1.07), an eBook (M = 3.17–3.67; SD = 0.84–1.17), and a USB drive (M = 3.75–4.00; SD = .82–.96). Average ratings for the telehealth technologies for the TASK III calls with the nurse were obtained for the use of a telephone (M = 4.36–5.00; SD = 0.00–0.89), FaceTime on an iOS device (e.g., iPhone or iPad; M = 3.73–4.40; SD = 0.79–0.98), or online videoconferencing (M = 3.17–3.50; SD = 0.82–1.47). Qualitative data revealed a wide variety of preferences for each type of telehealth technology, with advantages and disadvantages of each. The findings underscored the importance of offering multiple telehealth technology options to stroke family caregivers. Future studies are recommended that employ randomized control trial methodology to test theoretically‐based interventions that are based on stroke family caregiver preferences for telehealth technologies.