'People like me don't make things like that': Participatory video as a method for reducing leprosy-related stigma

• Published in: Global public health Vol. 11; no. 5-6; pp. 666 - 682
• Main Authors: Peters, R. M. H., Zweekhorst, M. B. M., van Brakel, W. H., Bunders, J. F. G., Irwanto
• Format: Journal Article
• Language: English
• Published: England Taylor & Francis 01-05-2016; Taylor & Francis Ltd
• Subjects: Adult; Communities; Community health services; Community-Based Participatory Research - methods; contact; Criteria; Disclosure; Effectiveness; Female; Global health; Group dynamics; Humans; Indonesia; Leprosy; Leprosy - psychology; Leprosy - rehabilitation; Male; Middle Aged; Participant observation; participatory video; Qualitative Research; Reduction; Self Concept; Self esteem; Shame; Social Stigma; Stigma; stigma reduction; Triangulation; Videotape Recording; leprosy; participatory video; Stigma; stigma reduction; contact
• ISSN: 1744-1692; 1744-1706
• DOI: 10.1080/17441692.2016.1153122

The Stigma Assessment and Reduction of Impact project aims to assess the effectiveness of stigma-reduction interventions in the field of leprosy. Participatory video seemed to be a promising approach to reducing stigma among stigmatized individuals (in this study the video makers) and the stigmatisers (video audience). This study focuses on the video makers and seeks to assess the impact on them of making a participatory video and to increase understanding of how to deal with foreseeable difficulties. Participants were selected on the basis of criteria and in collaboration with the community health centre. This study draws on six qualitative methods including interviews with the video makers and participant observation. Triangulation was used to increase the validity of the findings. Two videos were produced. The impact on participants ranged from having a good time to a greater sense of togetherness, increased self-esteem, individual agency and willingness to take action in the community. Concealment of leprosy is a persistent challenge, and physical limitations and group dynamics are also areas that require attention. Provided these three areas are properly taken into account, participatory video has the potential to address stigma at least at three levels - intrapersonal, interpersonal and community - and possibly more.