Views of patients with inflammatory bowel disease during the COVID-19 pandemic: ACCU survey results

• Published in: Revista española de enfermedades digestivas Vol. 113; no. 2; pp. 92 - 97
• Main Authors: Fernández Álvarez, Paula, Belvis Jiménez, María, Maldonado Pérez, Belén, Castro Laria, Luisa, Caunedo Álvarez, Ángel, Rodríguez de Los Ríos, José Luis, Argüelles-Arias, Federico
• Format: Journal Article
• Language: English; Spanish
• Published: Spain Sociedad Espanola de Patologia Digestivas 01-02-2021
• Subjects: Adult; COVID-19; Female; Humans; Inflammatory Bowel Diseases - therapy; Male; Middle Aged; Self Report; Self-Help Groups; Young Adult; España
• ISSN: 1130-0108
• DOI: 10.17235/reed.2020.7472/2020

the SARS-COV-2 pandemic has forced a substantial change in the care of patients with digestive pathologies, especially for inflammatory bowel disease (IBD) patients taking immunosuppessive medications. In this regard, some national and international guidelines have indicated the standards to be taken into account. However, few studies have evaluated how patients have dealt with this infection. Therefore, this study was performed with the aim to determine how the SARS-COV-2 pandemic has affected our IBD patients.
an online survey was performed among the members (295) of the Association of Crohn's Disease and Ulcerative Colitis (ACCU), which consisted of 19 questions. Finally, it was completed by 168 patients.
fifty-eight per cent of cases were female, 63.7 % had Crohn's disease (CD) and 53 % received biologic therapy. Five per cent were infected by SARS-CoV-2 and were male. The main concern of the patients was the fear of acquiring the infection (80.9 %). More than 90 % continued their treatments and half of the patients worked from home during the pandemic period.
the perspective of the patients is necessary to achieve an adequate management and evolution of the disease. More studies are needed to assess the impact that exceptional situations, such as the COVID-19 pandemic, may have on IBD patients in order to improve adherence and control of the disease.