Transition from parents to caregivers of a child with type 1 Diabetes Mellitus: a scoping review
to map and summarize the existing scientific evidence on parents' transition experience to exercise the caregiver role of a child with 1DM, identifying gaps in knowledge of this experience. a scoping review was carried out based on JBI methodology, in two databases, following the Preferred Repo...
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| Published in: | Revista Brasileira de Enfermagem Vol. 76; no. 1; pp. e20220201 - 15 |
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| Main Authors: | , , |
| Format: | Journal Article |
| Language: | English |
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Associação Brasileira de Enfermagem
2023
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| Abstract | to map and summarize the existing scientific evidence on parents' transition experience to exercise the caregiver role of a child with 1DM, identifying gaps in knowledge of this experience.
a scoping review was carried out based on JBI methodology, in two databases, following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews checklist.
we included 31 articles. From the studies, constitutive elements of parents' transition experience to caregiver role of a child with 1DM were found, which focused on the nature of the experience, the feelings and emotions experienced, the hindering conditions, the facilitating conditions, the strategies used by parents and the results or effects obtained.
the transition process' characterizing elements were identified, but not a theoretical explanation of it. Additional research should be carried out in order to allow a deeper understanding of this process. |
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| AbstractList | Objectives: to map and summarize the existing scientific evidence on parents' transition experience to exercise the caregiver role of a child with 1DM, identifying gaps in knowledge of this experience. Methods: a scoping review was carried out based on JBI methodology, in two databases, following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews checklist. Results: we included 31 articles. From the studies, constitutive elements of parents' transition experience to caregiver role of a child with 1DM were found, which focused on the nature of the experience, the feelings and emotions experienced, the hindering conditions, the facilitating conditions, the strategies used by parents and the results or effects obtained. Final considerations: the transition process' characterizing elements were identified, but not a theoretical explanation of it. Additional research should be carried out in order to allow a deeper understanding of this process. to map and summarize the existing scientific evidence on parents' transition experience to exercise the caregiver role of a child with 1DM, identifying gaps in knowledge of this experience. a scoping review was carried out based on JBI methodology, in two databases, following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews checklist. we included 31 articles. From the studies, constitutive elements of parents' transition experience to caregiver role of a child with 1DM were found, which focused on the nature of the experience, the feelings and emotions experienced, the hindering conditions, the facilitating conditions, the strategies used by parents and the results or effects obtained. the transition process' characterizing elements were identified, but not a theoretical explanation of it. Additional research should be carried out in order to allow a deeper understanding of this process. ABSTRACT Objectives: to map and summarize the existing scientific evidence on parents’ transition experience to exercise the caregiver role of a child with 1DM, identifying gaps in knowledge of this experience. Methods: a scoping review was carried out based on JBI methodology, in two databases, following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews checklist. Results: we included 31 articles. From the studies, constitutive elements of parents’ transition experience to caregiver role of a child with 1DM were found, which focused on the nature of the experience, the feelings and emotions experienced, the hindering conditions, the facilitating conditions, the strategies used by parents and the results or effects obtained. Final considerations: the transition process’ characterizing elements were identified, but not a theoretical explanation of it. Additional research should be carried out in order to allow a deeper understanding of this process. RESUMEN Objetivos: mapear y resumir la evidencia científica existente sobre la experiencia de transición de los padres para ejercer el rol de cuidador de un niño con DM1, identificando los vacíos existentes en el conocimiento de esta experiencia. Métodos: se realizó una revisión de alcance basada en la metodología JBI, en dos bases de datos, siguiendo la lista de verificación Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews. Resultados: se incluyeron 31 artículos. A partir de los estudios se encontraron elementos constitutivos de la experiencia de transición de los padres al rol de cuidador de un niño con DM1, los cuales se centraron en la naturaleza de la experiencia, los sentimientos y emociones experimentados, las condiciones obstaculizadoras, las condiciones facilitadoras, las estrategias utilizados por los padres y los resultados o efectos obtenidos Consideraciones finales: se identificaron elementos caracterizadores del proceso de transición, pero no una explicación teórica del mismo. Se deben realizar investigaciones adicionales para permitir una comprensión más profunda de este proceso. RESUMO Objetivos: mapear e resumir a evidência científica existente sobre a experiência de transição dos pais para o exercício do papel de cuidador de um filho com DM1, identificando lacunas existentes no conhecimento dessa experiência. Métodos: efetuada revisão scoping baseada na metodologia do JBI, em duas bases de dados, seguindo a checklist Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews. Resultados: foram incluídos 31 artigos. A partir dos estudos, foram encontrados elementos constitutivos da experiência de transição dos pais para o papel de cuidador de um filho com DM1, que se centraram na natureza da experiência, nos sentimentos e emoções experimentadas, nas condições dificultadoras, nas condições facilitadoras, nas estratégias utilizadas pelos pais e nos resultados ou efeitos obtidos. Considerações finais: identificaram-se elementos caracterizadores do processo de transição, mas não uma explicação teórica do mesmo. Investigação adicional deverá ser realizada, a fim de permitir compreender aprofundadamente este processo. ABSTRACT Objectives: to map and summarize the existing scientific evidence on parents’ transition experience to exercise the caregiver role of a child with 1DM, identifying gaps in knowledge of this experience. Methods: a scoping review was carried out based on JBI methodology, in two databases, following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews checklist. Results: we included 31 articles. From the studies, constitutive elements of parents’ transition experience to caregiver role of a child with 1DM were found, which focused on the nature of the experience, the feelings and emotions experienced, the hindering conditions, the facilitating conditions, the strategies used by parents and the results or effects obtained. Final considerations: the transition process’ characterizing elements were identified, but not a theoretical explanation of it. Additional research should be carried out in order to allow a deeper understanding of this process. |
| Author | Andrade, Maria de Lurdes Monteiro Serrabulho Sousa, Fábio Alexandre Melo do Rego Oliveira, Célia Maria Gonçalves Simão de |
| AuthorAffiliation | II Associação Protectora dos Diabéticos de Portugal. Lisboa, Portugal I Unidade de Saúde da Ilha de São Miguel. Ponta Delgada, São Miguel-Açores, Portugal III Escola Superior de Enfermagem de Lisboa. Lisboa, Portugal |
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| Author_xml | – sequence: 1 givenname: Fábio Alexandre Melo do Rego orcidid: 0000-0003-1260-6547 surname: Sousa fullname: Sousa, Fábio Alexandre Melo do Rego organization: Unidade de Saúde da Ilha de São Miguel. Ponta Delgada, São Miguel-Açores, Portugal – sequence: 2 givenname: Maria de Lurdes Monteiro Serrabulho orcidid: 0000-0002-0699-8807 surname: Andrade fullname: Andrade, Maria de Lurdes Monteiro Serrabulho organization: Associação Protectora dos Diabéticos de Portugal. Lisboa, Portugal – sequence: 3 givenname: Célia Maria Gonçalves Simão de orcidid: 0000-0002-8090-5429 surname: Oliveira fullname: Oliveira, Célia Maria Gonçalves Simão de organization: Escola Superior de Enfermagem de Lisboa. Lisboa, Portugal |
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| Cites_doi | 10.1097/00005721-200305000-00005 10.1046/j.1442-2018.1999.00009.x 10.1016/S0882-5963(96)80065-0 10.1016/j.pedhc.2009.09.003 10.1097/00012272-200009000-00006 10.1111/nhs.12673 10.1080/02739615.2015.1124776 10.1111/j.1365-2648.2005.03388.x 10.1177/0193945913518848 10.1177/0145721712446636 10.7326/M18-0850 10.1111/hex.12244 10.1177/1074840713484386 10.1093/jpepsy/jsh023 10.1111/j.1752-9824.2009.01019.x 10.1093/jpepsy/jsx056 10.1002/edn.239 10.1177/0145721711412979 10.1111/j.1547-5069.1994.tb00929.x 10.1111/jspn.12118 10.1053/jpdn.2003.4 10.1080/17482631.2018.1487758 10.1111/j.1365-2648.2009.04963.x 10.1186/s12887-015-0388-6 10.1007/s10826-017-0806-5 10.1080/1364557032000119616 10.1046/j.1365-2648.1995.22030569.x 10.1111/j.1464-5491.2004.01193.x 10.1542/peds.2004-1689 10.1007/s11892-014-0520-2 |
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| Copyright | 2023. This work is published under https://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. |
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| DOI | 10.1590/0034-7167-2022-0201 |
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| Notes | EDITOR IN CHIEF: Antonio José de Almeida Filho ASSOCIATE EDITOR: Fátima Helena do Espírito Santo |
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| References | Silva M (ref28) 2014 Z, Peters MDJ (ref13) 2018; 18 Iversen AS (ref1) 2018; 13 Raina P (ref8) 2005; 115 Sullivan-Bolyai S (ref42) 2003; 28 Ayala J (ref26) 2014; 36 Nurmi MA (ref30) 2012; 38 Schumacher KL (ref9) 1994; 26 Pimentel R (ref21) 2017; 11 Lawton J (ref24) 2015; 15 Paterson B (ref35) 2009; 1 Hatton DL (ref45) 1995; 22 Rifshana F (ref4) 2017; 26 Mellin AE (ref39) 2004; 29 Santos S (ref6) 1998; 1 Lockwood C (ref14) 2020; 22 Rearick EM (ref32) 2011; 37 Lowes L (ref38) 2005; 50 Pierce JS (ref20) 2017; 42 Peters M (ref12) 2020 Lowes L (ref40) 2004; 21 Athaseri S (ref36) 2008; 12 Meleis A. (ref10) 2012 Arksey H (ref16) 2005; 8 Sparud-Lundin C (ref7) 2013; 19 Streisand R (ref2) 2014; 14 Seppänen SM (ref43) 1999; 1 Johnson N (ref5) 2014; 9 Boogerd EA (ref23) 2015; 20 Rodrigues C. (ref25) 2015 Khandan M (ref18) 2018; 6 Dashiff C (ref31) 2011; 37 Smaldone A (ref33) 2011; 25 (ref3) 2019 Herbert LJ (ref19) 2017; 46 Rankin D (ref22) 2016; 19 Sullivan-Bolyai S (ref37) 2006; 31 Forsner M (ref27) 2014; 11 Sullivan-Bolyai S (ref41) 2003; 18 Faulkner MS (ref44) 1996; 11 Meleis A (ref11) 2000; 23 Martins E (ref29) 2013; 14 Holmström MR (ref17) 2018; 3 Bowes S (ref34) 2009; 65 Tricco AC (ref15) 2018; 169 |
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| Snippet | to map and summarize the existing scientific evidence on parents' transition experience to exercise the caregiver role of a child with 1DM, identifying gaps in... ABSTRACT Objectives: to map and summarize the existing scientific evidence on parents’ transition experience to exercise the caregiver role of a child with... Objectives: to map and summarize the existing scientific evidence on parents' transition experience to exercise the caregiver role of a child with 1DM,... |
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| SubjectTerms | Caregivers Checklist Child Child Care Children & youth Chronic illnesses Databases, Factual Diabetes Diabetes Mellitus Diabetes Mellitus, Type 1 Disease management Families & family life Humans Medical diagnosis Meta-analysis Parenting Parents Parents & parenting Pediatrics Review Review Literature as Topic Teenagers Transitions Type 1 |
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| Title | Transition from parents to caregivers of a child with type 1 Diabetes Mellitus: a scoping review |
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