Transition from parents to caregivers of a child with type 1 Diabetes Mellitus: a scoping review

• Published in: Revista Brasileira de Enfermagem Vol. 76; no. 1; pp. e20220201 - 15
• Main Authors: Sousa, Fábio Alexandre Melo do Rego, Andrade, Maria de Lurdes Monteiro Serrabulho, Oliveira, Célia Maria Gonçalves Simão de
• Format: Journal Article
• Language: English
• Published: Brazil Associação Brasileira de Enfermagem 2023
• Subjects: Caregivers; Checklist; Child; Child Care; Children & youth; Chronic illnesses; Databases, Factual; Diabetes; Diabetes Mellitus; Diabetes Mellitus, Type 1; Disease management; Families & family life; Humans; Medical diagnosis; Meta-analysis; Parenting; Parents; Parents & parenting; Pediatrics; Review; Review Literature as Topic; Teenagers; Transitions; Type 1; Portugal
• ISSN: 0034-7167; 1984-0446
• DOI: 10.1590/0034-7167-2022-0201

to map and summarize the existing scientific evidence on parents' transition experience to exercise the caregiver role of a child with 1DM, identifying gaps in knowledge of this experience.
a scoping review was carried out based on JBI methodology, in two databases, following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews checklist.
we included 31 articles. From the studies, constitutive elements of parents' transition experience to caregiver role of a child with 1DM were found, which focused on the nature of the experience, the feelings and emotions experienced, the hindering conditions, the facilitating conditions, the strategies used by parents and the results or effects obtained.
the transition process' characterizing elements were identified, but not a theoretical explanation of it. Additional research should be carried out in order to allow a deeper understanding of this process.