Measuring health-related quality of life in Hungarian children attending a cardiology clinic with the Pediatric Quality of Life Inventory

• Published in: European journal of pediatrics Vol. 169; no. 3; pp. 333 - 347
• Main Authors: Berkes, Andrea, Varni, James W., Pataki, István, Kardos, László, Kemény, Csilla, Mogyorósy, Gábor
• Format: Journal Article
• Language: English
• Published: Berlin/Heidelberg Springer-Verlag 01-03-2010; Springer; Springer Nature B.V
• Subjects: Adolescent; Biological and medical sciences; Child; Child, Preschool; Female; General aspects; Heart Defects, Congenital - physiopathology; Heart Defects, Congenital - psychology; Heart Diseases - physiopathology; Heart Diseases - psychology; Humans; Hungary; Male; Medical sciences; Medicine; Medicine & Public Health; Original Paper; Outpatients; Pediatrics; Quality of Life; Surveys and Questionnaires; Hungary; Europe; Pediatric Quality of Life Inventory; Children; Hungary; PedsQL; Heart disease; Quality of life; Human; Evaluation; Pediatrics; Prognosis; Questionnaire; Cardiovascular disease; Psychometrics; Health-Related Quality of Life; Clinic; Cardiology; Child; Inventory
• ISSN: 0340-6199; 1432-1076
• DOI: 10.1007/s00431-009-1059-0

The aim of the study was to evaluate health-related quality of life (HRQoL) of Hungarian children attending a pediatric cardiology outpatient unit with the Pediatric Quality of Life Inventory™ (PedsQL™) questionnaire. The PedsQL™ Generic Core Scales and Cardiac Module were administered to 254 families including 195 children during a pediatric cardiology outpatient visit, and 525 families including 373 children from the general population were examined by the PedsQL™ Generic Core Scale by a postal survey. The relationships between PedsQL™ scores and patient characteristics were analyzed. Hungarian children attending a cardiology outpatient unit as an entire group and patients with severe heart diseases report significantly lower physical functioning than the general population, while more HRQoL dimensions are negatively affected according to the parents' opinion. Children with congenital heart disease of mild and great complexity also report impaired psychosocial functioning. HRQoL impairment is concentrated to the age of 5–7 years. Comparing our results with previous ones on U.S. pediatric cardiologic samples, we found significantly lower scores mainly for the physical functioning and heart symptoms subscales. This HRQoL study with an internationally well-validated instrument on children with heart disease in a Central European country highlights certain aspects of the health-care system and brings the possibility for the assessment of pediatric cardiology outcomes in a more comprehensive way.