Benefits of powered standing wheelchair devices for adolescents with Duchenne muscular dystrophy in the first year of use
Aim Poorer physical and mental health often accompany loss of walking in Duchenne muscular dystrophy. This study assessed the impacts of powered wheelchair standing device (PWSD) use on muscle and joint pain, joint angles when standing and mental health in adolescents with Duchenne muscular dystroph...
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Published in: | Journal of paediatrics and child health Vol. 56; no. 9; pp. 1419 - 1425 |
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Main Authors: | , , , , , , , , , , , , , , , |
Format: | Journal Article |
Language: | English |
Published: |
Australia
John Wiley & Sons Australia, Ltd
01-09-2020
Blackwell Publishing Ltd |
Subjects: | |
Online Access: | Get full text |
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Summary: | Aim
Poorer physical and mental health often accompany loss of walking in Duchenne muscular dystrophy. This study assessed the impacts of powered wheelchair standing device (PWSD) use on muscle and joint pain, joint angles when standing and mental health in adolescents with Duchenne muscular dystrophy.
Methods
Fourteen adolescents and parents participated in a stepped wedge design study over 12 months. During a baseline and intervention period, adolescents described pain and mental health, and parents reported their child's mental health. Video data were collected to measure hip, knee and ankle joint angles in the preferred standing position.
Results
Compared with baseline and adjusting for covariates, standing wheelchair use was associated with no change in muscle or joint pain or videoed joint angles in standing. Child‐reported Strengths and Difficulties total scores decreased (coefficient −3.1, 95% confidence interval −4.6, −1.5); and parent‐reported Personal Adjustment and Role Skills Scale total scores increased (coefficient 7.9, 95% confidence interval 3.3–12.5).
Conclusions
PWSD use was associated with maintenance of musculoskeletal status and advantages to mental health. Long‐term observations are necessary to improve understanding of how to support wellbeing in adolescents with Duchenne muscular dystrophy. |
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Bibliography: | Conflict of interest: None declared. ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 23 |
ISSN: | 1034-4810 1440-1754 |
DOI: | 10.1111/jpc.14963 |