What Does It Mean To Be Pemphigus Patient? A Qualitative Study

• Published in: Clinical nursing research Vol. 30; no. 6; pp. 790 - 798
• Main Authors: Okcin, Figen, Ugur, Ozlem
• Format: Journal Article
• Language: English
• Published: Los Angeles, CA SAGE Publications 01-07-2021; SAGE PUBLICATIONS, INC
• Subjects: Autoimmune diseases; Coping; Dermatology; Disease management; Eye diseases; Health problems; Nursing; Qualitative research; Quality of care; Skin diseases; clinical research areas; phenomenology; life experiences; pemphigus vulgaris; qualitative; nursing research
• ISSN: 1054-7738; 1552-3799
• DOI: 10.1177/10547738211002354

This study aims to provide a closer examination of the problems experienced by individuals with pemphigus vulgaris with their eyes and experiences. This is a phenomenological study. The study population was completed with eight people with pemphigus vulgaris who applied to the dermatology clinic of a university hospital in a metropolis between September 2019 and March 2020. The interviews were transcribed and analyzed using phenomenological methods. Three main themes emerged and nine supporting sub-themes were identified. The main themes are (a) the physical problems they are experiencing now, (b) the psychological difficulties they are feeling now, and (c) intense future anxiety about the process and the future. This study will increase the understanding of the lived experiences of pemphigus vulgaris patients, increase the awareness of each nurse about these patients and will be able to provide better quality care to individuals with pemphigus vulgaris.