Perceived stigma in persons with early-stage dementia: Longitudinal findings: Part 1

• Published in: Dementia (London, England) Vol. 14; no. 5; pp. 589 - 608
• Main Authors: Burgener, Sandy C, Buckwalter, Kathleen, Perkhounkova, Yelena, Liu, Megan F, Riley, Rebecca, Einhorn, Carol J, Fitzsimmons, Suzanne, Hahn-Swanson, Carolyn
• Format: Journal Article
• Language: English
• Published: London, England SAGE Publications 01-09-2015
• Subjects: Aged; Aged, 80 and over; Caregivers - psychology; Dementia - psychology; Female; Humans; Longitudinal Studies; Male; Middle Aged; Rural Population; Shame; Social Isolation - psychology; Social Stigma; Urban Population; dementia; stigma; disease stage; person-centered characteristics; living situation
• ISSN: 1471-3012; 1741-2684
• DOI: 10.1177/1471301213508399

This longitudinal study examined perceived stigma in persons with dementia, with 50 persons with dementia, and 47 corresponding family caregivers. Data were collected at baseline and at 6, 12, and 18 months. Study results are reported in two parts, with findings regarding the stability of perceived stigma, measured using the modified Stigma Impact Scale, and relationship of stigma to person-centered variables being reported here. Findings included stability in perceived stigma, which did not show a downward trend until 18 months. Significant differences at baseline were found only for geographic location (rural vs. urban) with persons living in urban areas having higher levels of Stigma Impact Scale internalized shame compared to rural counterparts. Cognitive functioning was significantly, positively related to the Stigma Impact Scale social rejection and social isolation subscales. Findings support the enduring nature of perceived stigma over the early disease stages and the relationship of perceived stigma to some person-centered characteristics.