The Ebola Data Platform: A prospective, standardised, clinical dataset collected during the 2013-2016 West African Ebola outbreak

• Published in: Wellcome open research Vol. 9; p. 548
• Main Authors: Merson, Laura, Yeabah, Trokon Omarley, Strudwick, Samantha, Fayiah, Tamba, Lee, Jennifer H, Feika, Musa Martin, Buck, Gemma, Oneill, Kwame, Kennon, Kalynn, Cherif, Mahamoud Sama
• Format: Journal Article
• Language: English
• Published: England F1000 Research Limited 2024; Wellcome
• Subjects: data; Data Note; data sharing; Ebola virus disease; eng; outbreak; viral haemorrhagic fever; outbreak; viral haemorrhagic fever; data; data sharing; Ebola virus disease
• ISSN: 2398-502X; 2398-502X
• DOI: 10.12688/wellcomeopenres.22483.1

The Ebola Data Platform (EDP) was developed to strengthen knowledge and capacity across health, research, and humanitarian communities to reduce the impact of Ebola through responsible data use. This collaborative initiative was established by West African governments, NGOs, academic organisations, and intra-governmental health organisations directly involved in the 2013-2016 West African Ebola outbreak. The platform was established to provide a centralised, standardised dataset of individual patient data collected during the outbreak for the purpose of research to improve Ebola treatment and control, and includes over 13,600 patient records of individuals infected and treated from 22 different Ebola treatment centres across Guinea, Sierra Leone, Liberia, and Nigeria. Patient data are available from treatment centre triage and admission, inpatient clinical observations, and outcomes, with outpatient follow-up available for some datasets. Data include signs and symptoms, pre-existing comorbidities, vital signs, laboratory testing, treatments, complications, dates of admission and discharge, mortality, viral strains, and other data. This publication describes characteristics of the EDP dataset, its architecture, methods for data access and tools for utilising the dataset.