Experience-based Investigation and Co-design of Psychosis Centred Integrated Care Services for Ethnically Diverse People with Multimorbidity (CoPICS): study protocol

• Published in: BMJ open Vol. 14; no. 2; p. e084121
• Main Authors: Bhui, Kamaldeep, Joseph, Doreen, Khan, Nimra, Morrey, Tara, Mooney, Roisin, Zahid, Uzma, Mackay, Tanya, Larkin, Michael, Keating, Frank, McCrone, Paul, Upthegrove, Rachel, Griffiths, Sian Lowri, Edge, Dawn, Coventry, Peter A, Arday, Jason, Hosang, Georgina M
• Format: Journal Article
• Language: English
• Published: England British Medical Journal Publishing Group 28-02-2024; BMJ Publishing Group LTD; BMJ Publishing Group
• Series: Protocol
• Subjects: Access to information; Asthma; chronic disease; Co-design; Communication; Comorbidity; Data collection; Delivery of Health Care, Integrated; Diabetes; Empowerment; England; Ethnicity; Health disparities; health services; Humans; Integrated delivery systems; Interviews; Life expectancy; Medical personnel; Mental disorders; Mental Health; Minority & ethnic groups; Multimorbidity; Participatory research; Primary care; Professionals; Psychosis; Psychotic Disorders - therapy; Research Design; Research methodology; schizophrenia & psychotic disorders; Socioeconomic factors; England; United Kingdom > UK; schizophrenia & psychotic disorders; chronic disease; health services
• ISSN: 2044-6055; 2044-6055
• DOI: 10.1136/bmjopen-2024-084121

IntroductionEthnic minorities (also called racialised groups) are more likely to experience severe mental illness (SMI). People with SMI are more likely to experience multimorbidity (MM), making psychosis among racialised groups more likely to lead to MM, poor outcomes, disability and premature mortality.Methods and analysisThis National Institute for Health and Care Research-funded study (151887) seeks to use innovative participatory methods including photovoice and biographical narrative interviews in urban and rural areas of England to assemble experience data. These data will be subjected to polytextual thematic analysis, and alongside pictures and captions, will inform an experienced-based co-design of interventions, the implementation of which will be evaluated. There will be an economic analysis and a process evaluation of the implementation.Ethics and disseminationThis programme of work has received ethical (IRAS 322421; Newcastle North Tyneside Research Ethics Committee 23/NE/0143) and sponsor approval. The findings will be disseminated in galleries showing the creative work, as lay and academic summaries and infographics; as practice briefings for practitioners, commissioners and policy makers; peer-reviewed publications.Trial registration numberhttps://www.researchregistry.com/browse-the-registry%23home/registrationdetails/649c08111c037d0027b17d17/