Iranian network of multidisciplinary clinics for multiple sclerosis, a view of existing experiences and future horizons

• Published in: Multiple sclerosis Vol. 14; p. S141
• Main Authors: Ekhtiari, H, Sikaroodi, H, Sahraian, MA, Oghabian, MA, Lotfi, J, Noroozian, M, Zadeh, H S, Safaei, H, Mokri, A, Zarei, S, Mahani, N K
• Format: Journal Article
• Language: English
• Published: 01-09-2008
• ISSN: 1352-4585

Background: To approach to complexities in diagnosis, treatment and follow-up of multiple sclerosis (MS), there is a progressive need to establish a national network of multidisciplinary clinics (MCs) for MS with input from a range of specialists. Objective: In this article we attempt to define different dimensions of MCs in a national context, presenting positive experiences in this way in a collaborative atmosphere in Iran. Methods: Clinical, imaging and cognitive wings as the main parts along with supplementary biochemical and rehabilitation facilities should be brought together in MCs. National unified semi-structured clinical data-gathering forms, checklists, scores, rating-scales and self-reports should be prepared. Quantitative neuroimaging pipelines and digital-analysis methods with unified protocols are the essentials needs for MCs. Neurocognitive assessments of MS patients act an important role in diagnosis, treatment and follow-up. Persian-validated computerized and paper-pencil neuropsychological assessment tasks for main cognitive domains with normative-data for Farsi-speaking subjects based on our cultural-contexts are basic needs. Results: Progressive steps are obtained in the design and validation of national clinical registration forms. The next phases are a digital archiving network with a unified technical platform and data sharing facilities. Some functional and structural brain imaging studies are in progress. Validated neurocognitive assessment tools in different domains for Farsi-speaking subjects are provided. Unified reporting protocols and suggested rehabilitation techniques or treatment modifications are under discussion. Specialized neurocognitive laboratories with qualified staff are or will be founded for patients' assessment. Conclusions: A national network of MCs for MS makes it possible to confront this disease with a comprehensive registry, joint national and international research projects and a digital database management system with data-sharing facilities on a common platform. The lack of previous joint-collaborative works, and sophisticated imaging and rehabilitation facilities have been the main limitations for development of MCs in Iran.