African American Family Structure of Caring for a Member With Alzheimer's Disease and Dementia

• Main Author: Lane Perry, Sherry
• Format: Dissertation
• Language: English
• Published: ProQuest Dissertations & Theses 01-01-2024
• Subjects: African American Studies; Neurosciences; Psychology; Social psychology
• ISBN: 9798381691870

Alzheimer’s disease and related dementia (ADRD) affect African Americans (AA) more than other ethnic or racial groups. It is common for AA diagnosed with ADRD to be cared for in the home. Historically, family members that provide care consist of significant others, relatives, and extended family. The United States Census Bureau showed an increase in Americans aged sixty and older from 55.7 million to 74.6 million. Due to the increase in the AA elderly population, the need for family caregivers will increase for this minority group. This study explored how AA family caregivers described their experiences and unique family structure when caring for a member diagnosed with ADRD. Bowen’s family system theory (BFST) was the conceptual framework used to explore family relationships and the well-being of AA caregivers caring for family members with ADRD. For this qualitative study, six AA participants from four families responded to 10 open-ended interview questions related to the care of members diagnosed with ADRD and their unique family structure. The results of the thematic analyses of the collected data showed six main themes: honoring a legacy of family caring, family unity, and relationship dynamics, motivation and personal sacrifice, responsibility, and roles in communication and discussion, relationship dynamics and insight, and stress and coping. The knowledge gained from the research study may be helpful for healthcare professionals, caregivers, and families. The study's findings will initiate positive social change through much-needed insights into the lived experiences of significant others, relatives, and extended family who care for AA families diagnosed with ADRD.