The experience of dying: an ethnographic nursing home study

• Published in: The Gerontologist Vol. 42 Spec No 3; pp. 11 - 19
• Main Author: Kayser-Jones, Jeanie
• Format: Journal Article
• Language: English
• Published: United States Oxford University Press 01-10-2002
• Subjects: Adult; Aged; Aged, 80 and over; Anthropology, Cultural; Attitude to Death - ethnology; Communication; Culture; Death & dying; Female; Humans; Interpersonal communication; Male; Middle Aged; Nursing homes; Nursing Homes - standards; Personnel Staffing and Scheduling; Professional-Patient Relations; Professionals; Qualitative Research; Quality of Health Care; Terminal Care - psychology; Terminal Care - standards; United States; United States
• ISSN: 0016-9013; 1758-5341

This article reviews the literature on "The Experience of Dying" and presents data from a larger, ongoing study of an ethnography of dying in nursing homes. The purpose of the ethnographic study was to investigate the process of providing end-of-life care to residents who were dying in nursing homes.
Participant observation, in-depth interviews, and event analysis were used to obtain data in three nursing facilities.
The review of the literature disclosed that research on the experience of dying is limited; most of the studies have been conducted in acute care hospitals among people who were dying of cancer. The ethnographic study found that lack of attention to cultural needs, cognitive status, inadequate staffing, and inappropriate and inadequate communication between health care providers and nursing home residents and their families were the predominant factors that influenced the experience of dying.
Future research is needed on: The experience of dying for patients with dementia, for people in a comatose state, and for non-English speaking patients; symptom management; health care provider/patient-family interaction; the burden of caregiving for families; and the consequences of the constraints within our health care system for people who are dying in various settings.