Spanish Registry of Home-based Parenteral Nutrition during 2006 (NADYA-SENPE Group)

• Published in: Nutrición hospitalaria : organo oficial de la Sociedad Española de Nutrición Parenteral y Enteral Vol. 23; no. 1; pp. 6 - 11
• Main Authors: Puiggrós, C, Chicharro, M L, Gómez-Candela, C, Virgili, N, Cuerda, C, Gómez-Enterría, P, Ordóñez, J, Moreno, J M, Penacho, M A, Pérez de la Cruz, A, Alvarez, J, Luengo, L M, Irles, J A, Wanden-Berghe, C, de Luis, D, Rodríguez-Pozo, A, Garde, C, Pedrón, C, Gómez, L, Cànovas, B
• Format: Journal Article
• Language: Spanish
• Published: Spain 01-01-2008
• Subjects: Adolescent; Adult; Aged; Female; Humans; Male; Middle Aged; Online Systems; Parenteral Nutrition, Home - adverse effects; Parenteral Nutrition, Home - mortality; Parenteral Nutrition, Home - statistics & numerical data; Registries; Spain; Time Factors; Spain
• ISSN: 0212-1611

To report the data of the Home Parenteral Nutrition (HPN) registry of the NADYA-SENPE working group for the year 2006.
We compiled the data from the on-line registry introduced by the responsible Units for the monitoring of HPN from January 1st to December 31st 2006.
103 patients with HPN were registered (47 males and 56 females), belonging to 19 hospitals. Average age for the 91 patients older than 14 years old was 53.3 +/- 14.9 years old, and that for the 12 patients under 14 years old was 2 +/- 0 years old. Most frequent pathology was neoplasm (29%), followed by intestinal motility disorders (13%). The reason for HPN provision was short bowel syndrome (40%), intestinal obstruction (22%), and malabsorption (21%). Tunneled catheters were mostly used (45%), followed by implanted port-catheters (32%). Catheter related infections were the most frequent complications, with a rate of 0.85 episodes / 10(3) days. HPD was provided for more than two years in 50% of the cases. By the end of 2006, 70.9% of the patients remained active; exitus was the most frequent reason to end HPN (53%). Complementary oral or enteral nutrition was provided to 52% of the patients. 48% of the patients had a normal activity level, and a 55% were autonomous. PN formula was supplied by the hospital in 82% of the cases, while this number was 78% for fungible materials. 27% of the patients were eligible for intestinal transplant.
We observe an increase in registered patients with respect to previous years, with a very different prevalence among regions. Neoplasia remains as the main pathology since 2003. We observe a decrease in catheter-related infections with respect to the 2004-2005 period.