Meanings of autonomy during the taking of informed consent to the minor with autoimmune disease perceived by clinicians and researchers

• Published in: Revista Colombiana de Bioética Vol. 13; no. 2; pp. 8 - 25
• Main Author: Anderson Díaz Pérez
• Format: Journal Article
• Language: Spanish
• Published: Universidad El Bosque 01-07-2018
• Subjects: autoimmune disease; autonomy; communication; informed consent/assent; mature minor; moral development; perception
• DOI: 10.18270/rcb.v13i2.2347
• EISSN: 2590-9452
• ISSN: 1900-6896

This article presents an analysis on the meanings that clinicians and researchers, have regarding the autonomy of the mature minor with autoimmune disease, which could lead to different power practices during the moment of taking the informed consent, keeping in mind the doctrine of the minor mature, it is the duty of the clinicians and researchers to contribute to the moral development or the autonomy of the minor from the same reflection of his practices of power. The objective was to describe the meanings or perceptions of clinicians and researchers, at the time of informed consent, in relation to the autonomy or moral development of the child with autoimmune disease, which arise from their experiences, knowledge and previous conceptions about the child. The methodology used was of a qualitative nature with a subjectivist and interpretative approach and a transversal scope. Semistructured interviews were applied to 21 people, researchers and clinicians, who attend children with autoimmune diseases, whose data were analyzed through the Atlas Ti program. 8.0. In conclusion, the informed consent is a process of assertive communication ethical model that seeks the moral structuring of the child beyond what is perceived by the clinician or researcher, in addition the clinicians and researchers consider that to structure the minor is to perceive him as an autonomous subject; which is possible when it shows adherence to treatment and responsible care independently of the tutor’s support.