'Staying strong on the inside and outside' to keep walking and moving around: Perspectives from Aboriginal people with Machado Joseph Disease and their families from the Groote Eylandt Archipelago, Australia

Machado Joseph Disease (MJD) (spinocerebellar ataxia 3) is a hereditary neurodegenerative disease causing progressive ataxia and loss of mobility. It is the most common spinocerebellar ataxia worldwide. Among Aboriginal families of Groote Eylandt and related communities across Australia's Top E...

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Bibliographic Details
Published in:	PloS one Vol. 14; no. 3; p. e0212953
Main Authors:	Carr, Jennifer J, Lalara, Joyce, Lalara, Gayangwa, O'Hare, Gloria, Massey, Libby, Kenny, Nick, Pope, Kate E, Clough, Alan R, Lowell, Anne, Barker, Ruth N
Format:	Journal Article
Language:	English
Published:	United States Public Library of Science 11-03-2019 Public Library of Science (PLoS)
Subjects:	Aboriginal Australians Adult Archipelagoes Ataxia Australia Beliefs, opinions and attitudes Biology and Life Sciences Cerebellar ataxia Chronic illnesses Collaboration Community Data collection Data processing Disability Disease Progression Engineering and Technology Family Family - psychology Female Grounded Theory Health aspects Health Knowledge, Attitudes, Practice Health promotion Health services Humans Machado-Joseph disease Machado-Joseph Disease - psychology Machado-Joseph Disease - rehabilitation Male Medicine and Health Sciences Methods Middle Aged Mobility Native peoples Nervous system diseases Neurodegenerative diseases Neurological diseases Oceanic Ancestry Group - psychology People and Places Qualitative Research Rehabilitation Social Sciences Social Support Spinocerebellar ataxias Walking Walking - physiology Walking - psychology Australia Queensland Australia
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