Respect, justice and learning are limited when patients are deidentified data subjects

Introduction Critical for advancing a Learning Health System (LHS) in the U.S., a regulatory safe harbor for deidentified data reduces barriers to learning from care at scale while minimizing privacy risks. We examine deidentified data policy as a mechanism for synthesizing the ethical obligations u...

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Bibliographic Details
Published in:Learning health systems Vol. 6; no. 3; pp. e10303 - n/a
Main Authors: Gross, Marielle S., Hood, Amelia J., Rubin, Joshua C., Miller, Robert C.
Format: Journal Article
Language:English
Published: United States John Wiley & Sons, Inc 01-07-2022
John Wiley and Sons Inc
Wiley
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Online Access:Get full text
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