Computer-Based Assessment of Symptoms and Mobility in Palliative Care: Feasibility and Challenges

Abstract The aims of the study were to explore the ability of cancer patients who are primarily receiving palliative care to use a touchscreen computer for assessment of symptoms and mobility and to investigate which factors predicted the need for assistance during the assessment. Before the main da...

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Published in:	Journal of pain and symptom management Vol. 38; no. 6; pp. 827 - 836
Main Authors:	Fyllingen, Even Hovig, Oldervoll, Line M., PhD, Loge, Jon Håvard, MD, PhD, Hjermstad, Marianne Jensen, PhD, Haugen, Dagny Faksvåg, MD, PhD, Sigurdardottir, Katrin Ruth, MD, Paulsen, Ørnulf, MD, Kaasa, Stein, MD, PhD
Format:	Journal Article
Language:	English
Published:	New York, NY Elsevier Inc 01-12-2009 Elsevier
Subjects:	Adult Age Factors Aged Aged, 80 and over Anesthesia & Perioperative Care Biological and medical sciences cancer Computerized assessment computers Data Collection Diagnosis, Computer-Assisted Feasibility Studies Female Humans Linear Models Male Medical sciences Middle Aged Mobility Mobility Limitation Pain Medicine Palliative care Palliative Care - ethics Palliative Care - trends Pharmacology. Drug treatments quality of life Software symptom assessment Symptoms User-Computer Interface Norway Palliative care symptom assessment cancer quality of life computers Evaluation Symptomatology Mobility Computer Feasibility Malignant tumor Cancer Quality of life
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Abstract	Abstract The aims of the study were to explore the ability of cancer patients who are primarily receiving palliative care to use a touchscreen computer for assessment of symptoms and mobility and to investigate which factors predicted the need for assistance during the assessment. Before the main data collection, a pilot study was conducted to explore the preferences of these patients toward using such a computerized assessment tool. Patients were recruited from nine different inpatient and outpatient palliative care and general cancer clinics in Norway. The patients responded to 60 items on symptoms and mobility directly on the computer. In the pilot study ( n = 20), 11 patients (55.0%) preferred computerized assessment over paper and pencil, whereas five (25.0%) had no preference. In the main data collection, 370 patients (52.7% men with mean age 62 years and mean Karnofsky Performance Status score of 70) completed the assessment. Eighty-six patients (23.2%) required assistance. Patients requiring assistance were significantly older, had worse performance status, and poorer cognitive function than those not requiring assistance. Predictors for requiring assistance were age ( P < 0.001) and performance status ( P < 0.001). Because higher age and worse performance status resulted in more need of assistance, assessment tools should be short and user-friendly to ensure good compliance in frail patients.
AbstractList	The aims of the study were to explore the ability of cancer patients who are primarily receiving palliative care to use a touchscreen computer for assessment of symptoms and mobility and to investigate which factors predicted the need for assistance during the assessment. Before the main data collection, a pilot study was conducted to explore the preferences of these patients toward using such a computerized assessment tool. Patients were recruited from nine different inpatient and outpatient palliative care and general cancer clinics in Norway. The patients responded to 60 items on symptoms and mobility directly on the computer. In the pilot study (n=20), 11 patients (55.0%) preferred computerized assessment over paper and pencil, whereas five (25.0%) had no preference. In the main data collection, 370 patients (52.7% men with mean age 62 years and mean Karnofsky Performance Status score of 70) completed the assessment. Eighty-six patients (23.2%) required assistance. Patients requiring assistance were significantly older, had worse performance status, and poorer cognitive function than those not requiring assistance. Predictors for requiring assistance were age (P<0.001) and performance status (P<0.001). Because higher age and worse performance status resulted in more need of assistance, assessment tools should be short and user-friendly to ensure good compliance in frail patients. The aims of the study were to explore the ability of cancer patients who are primarily receiving palliative care to use a touchscreen computer for assessment of symptoms and mobility and to investigate which factors predicted the need for assistance during the assessment. Before the main data collection, a pilot study was conducted to explore the preferences of these patients toward using such a computerized assessment tool. Patients were recruited from nine different inpatient and outpatient palliative care and general cancer clinics in Norway. The patients responded to 60 items on symptoms and mobility directly on the computer. In the pilot study (n = 20), 11 patients (55.0%) preferred computerized assessment over paper and pencil, whereas five (25.0%) had no preference. In the main data collection, 370 patients (52.7% men with mean age 62 years and mean Karnofsky Performance Status score of 70) completed the assessment. Eighty-six patients (23.2%) required assistance. Patients requiring assistance were significantly older, had worse performance status, and poorer cognitive function than those not requiring assistance. Predictors for requiring assistance were age (P < 0.001) and performance status (P < 0.001). Because higher age and worse performance status resulted in more need of assistance, assessment tools should be short and user-friendly to ensure good compliance in frail patients. [Copyright U.S. Cancer Pain Relief Committee. Published by Elsevier Inc.] The aims of the study were to explore the ability of cancer patients who are primarily receiving palliative care to use a touchscreen computer for assessment of symptoms and mobility and to investigate which factors predicted the need for assistance during the assessment. Before the main data collection, a pilot study was conducted to explore the preferences of these patients toward using such a computerized assessment tool. Patients were recruited from nine different inpatient and outpatient palliative care and general cancer clinics in Norway. The patients responded to 60 items on symptoms and mobility directly on the computer. In the pilot study (n=20), 11 patients (55.0%) preferred computerized assessment over paper and pencil, whereas five (25.0%) had no preference. In the main data collection, 370 patients (52.7% men with mean age 62 years and mean Karnofsky Performance Status score of 70) completed the assessment. Eighty-six patients (23.2%) required assistance. Patients requiring assistance were significantly older, had worse performance status, and poorer cognitive function than those not requiring assistance. Predictors for requiring assistance were age (P<0.001) and performance status (P<0.001). Because higher age and worse performance status resulted in more need of assistance, assessment tools should be short and user-friendly to ensure good compliance in frail patients. Abstract The aims of the study were to explore the ability of cancer patients who are primarily receiving palliative care to use a touchscreen computer for assessment of symptoms and mobility and to investigate which factors predicted the need for assistance during the assessment. Before the main data collection, a pilot study was conducted to explore the preferences of these patients toward using such a computerized assessment tool. Patients were recruited from nine different inpatient and outpatient palliative care and general cancer clinics in Norway. The patients responded to 60 items on symptoms and mobility directly on the computer. In the pilot study ( n = 20), 11 patients (55.0%) preferred computerized assessment over paper and pencil, whereas five (25.0%) had no preference. In the main data collection, 370 patients (52.7% men with mean age 62 years and mean Karnofsky Performance Status score of 70) completed the assessment. Eighty-six patients (23.2%) required assistance. Patients requiring assistance were significantly older, had worse performance status, and poorer cognitive function than those not requiring assistance. Predictors for requiring assistance were age ( P < 0.001) and performance status ( P < 0.001). Because higher age and worse performance status resulted in more need of assistance, assessment tools should be short and user-friendly to ensure good compliance in frail patients. Quantitative research in Norway examining the ability of palliative care cancer patients to use a touchscreen computer for symptom and mobility assessment. Factors predicting patients' need for assistance with the assessment were also investigated and implications for assessment instrument design are considered. [(BNI unique abstract)] 24 references The aims of the study were to explore the ability of cancer patients who are primarily receiving palliative care to use a touchscreen computer for assessment of symptoms and mobility and to investigate which factors predicted the need for assistance during the assessment. Before the main data collection, a pilot study was conducted to explore the preferences of these patients toward using such a computerized assessment tool. Patients were recruited from nine different inpatient and outpatient palliative care and general cancer clinics in Norway. The patients responded to 60 items on symptoms and mobility directly on the computer. In the pilot study ( n = 20), 11 patients (55.0%) preferred computerized assessment over paper and pencil, whereas five (25.0%) had no preference. In the main data collection, 370 patients (52.7% men with mean age 62 years and mean Karnofsky Performance Status score of 70) completed the assessment. Eighty-six patients (23.2%) required assistance. Patients requiring assistance were significantly older, had worse performance status, and poorer cognitive function than those not requiring assistance. Predictors for requiring assistance were age ( P < 0.001) and performance status ( P < 0.001). Because higher age and worse performance status resulted in more need of assistance, assessment tools should be short and user-friendly to ensure good compliance in frail patients.
Author	Hjermstad, Marianne Jensen, PhD Sigurdardottir, Katrin Ruth, MD Oldervoll, Line M., PhD Loge, Jon Håvard, MD, PhD Paulsen, Ørnulf, MD Kaasa, Stein, MD, PhD Haugen, Dagny Faksvåg, MD, PhD Fyllingen, Even Hovig
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Snippet	Abstract The aims of the study were to explore the ability of cancer patients who are primarily receiving palliative care to use a touchscreen computer for... The aims of the study were to explore the ability of cancer patients who are primarily receiving palliative care to use a touchscreen computer for assessment... Quantitative research in Norway examining the ability of palliative care cancer patients to use a touchscreen computer for symptom and mobility assessment....
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SubjectTerms	Adult Age Factors Aged Aged, 80 and over Anesthesia & Perioperative Care Biological and medical sciences cancer Computerized assessment computers Data Collection Diagnosis, Computer-Assisted Feasibility Studies Female Humans Linear Models Male Medical sciences Middle Aged Mobility Mobility Limitation Pain Medicine Palliative care Palliative Care - ethics Palliative Care - trends Pharmacology. Drug treatments quality of life Software symptom assessment Symptoms User-Computer Interface
Title	Computer-Based Assessment of Symptoms and Mobility in Palliative Care: Feasibility and Challenges
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