“I Should Know Better”: The Roles of Relationships, Spirituality, Disclosure, Stigma, and Shame for Older Women Living With HIV Seeking Support in the South
The population of older people living with HIV in the United States is growing. Little is known about specific challenges older HIV-infected women face in coping with the disease and its attendant stressors. To understand these issues for older women, we conducted semi-structured in-depth interviews...
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| Published in: | The Journal of the Association of Nurses in AIDS Care Vol. 26; no. 1; pp. 12 - 23 |
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| Main Authors: | , , , , , , |
| Format: | Journal Article |
| Language: | English |
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01-01-2015
Lippincott Williams & Wilkins Ovid Technologies |
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| Abstract | The population of older people living with HIV in the United States is growing. Little is known about specific challenges older HIV-infected women face in coping with the disease and its attendant stressors. To understand these issues for older women, we conducted semi-structured in-depth interviews with 15 women (13 African American, 2 Caucasian) 50 years of age and older (range 50–79 years) in HIV care in the southeastern United States, and coded transcripts for salient themes. Many women felt isolated and inhibited from seeking social connection due to reluctance to disclose their HIV status, which they viewed as more shameful at their older ages. Those receiving social support did so mainly through relationships with family and friends, rather than romantic relationships. Spirituality provided great support for all participants, although fear of disclosure led several to restrict connections with a church community. Community-level stigma-reduction programs may help older HIV-infected women receive support. |
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| AbstractList | The population of older people living with HIV in the United States is growing. Little is known about specific challenges older HIV-infected women face in coping with the disease and its attendant stressors. To understand these issues for older women, we conducted semi-structured in-depth interviews with 15 women (13 African American, 2 Caucasian) 50 years of age and older (range 50-79 years) in HIV care in the southeastern United States, and coded transcripts for salient themes. Many women felt isolated and inhibited from seeking social connection due to reluctance to disclose their HIV status, which they viewed as more shameful at their older ages. Those receiving social support did so mainly through relationships with family and friends, rather than romantic relationships. Spirituality provided great support for all participants, although fear of disclosure led several to restrict connections with a church community. Community-level stigma-reduction programs may help older HIV-infected women receive support. 39 references The population of older people living with HIV in the United States is growing. Little is known about specific challenges older HIV-infected women face in coping with the disease and its attendant stressors. To understand these issues for older women, we conducted semi-structured in-depth interviews with 15 women (13 African American, 2 Caucasian) 50 years of age and older (range 50–79 years) in HIV care in the southeastern United States, and coded transcripts for salient themes. Many women felt isolated and inhibited from seeking social connection due to reluctance to disclose their HIV status, which they viewed as more shameful at their older ages. Those receiving social support did so mainly through relationships with family and friends, rather than romantic relationships. Spirituality provided great support for all participants, although fear of disclosure led several to restrict connections with a church community. Community-level stigma-reduction programs may help older HIV-infected women receive support. The population of older people living with HIV in the United States is growing. Little is known about specific challenges older HIV-infected women face in coping with the disease and its attendant stressors. To understand these issues for older women, we conducted semi-structured in-depth interviews with 15 women (13 African American, 2 Caucasian) 50 years of age and older (range 50-79 years) in HIV care in the southeastern United States, and coded transcripts for salient themes. Many women felt isolated and inhibited from seeking social connection due to reluctance to disclose their HIV status, which they viewed as more shameful at their older ages. Those receiving social support did so mainly through relationships with family and friends, rather than romantic relationships. Spirituality provided great support for all participants, although fear of disclosure led several to restrict connections with a church community. Community-level stigma-reduction programs may help older HIV-infected women receive support. The population of older people living with HIV in the United States is growing. Little is known about specific challenges older HIV-infected women face in coping with the disease and its attendant stressors. To understand these issues for older women, we conducted semi-structured in-depth interviews with 15 women (13 African American, 2 Caucasian) 50 years of age and older (range 50–79) in HIV care in the Southeastern United States, and coded transcripts for salient themes. Many women felt isolated and inhibited from seeking social connection due to reluctance to disclose their HIV status, which they viewed as more shameful at their older ages. Those receiving social support did so mainly through relationships with family and friends, rather than romantic relationships. Spirituality provided great support for all participants, although fear of disclosure led several to restrict connections with a church community. Community-level stigma-reduction programs may help older HIV-infected women receive support. |
| Author | Patterson, Kristine B. Grodensky, Catherine A. Abernethy, Melinda G. Golin, Carol E. Mamo, Meheret Dennis, Alexis C. Jones, Chaunetta |
| Author_xml | – sequence: 1 givenname: Catherine A. surname: Grodensky fullname: Grodensky, Catherine A. – sequence: 2 givenname: Carol E. surname: Golin fullname: Golin, Carol E. – sequence: 3 givenname: Chaunetta surname: Jones fullname: Jones, Chaunetta – sequence: 4 givenname: Meheret surname: Mamo fullname: Mamo, Meheret – sequence: 5 givenname: Alexis C. surname: Dennis fullname: Dennis, Alexis C. – sequence: 6 givenname: Melinda G. surname: Abernethy fullname: Abernethy, Melinda G. – sequence: 7 givenname: Kristine B. surname: Patterson fullname: Patterson, Kristine B. |
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| Cites_doi | 10.1345/aph.10215 10.1097/00002030-200418001-00007 10.1097/00002030-200418001-00004 |
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| Copyright | 2015 Association of Nurses in AIDS Care Copyright © 2015 Association of Nurses in AIDS Care. Published by Elsevier Inc. All rights reserved. Copyright SAGE PUBLICATIONS, INC. Jan-Feb 2015 2014 Association of Nurses in AIDS Care. Published by Elsevier Inc. All rights reserved. 2014 |
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| Keywords | social support disclosure stigma aging HIV spirituality |
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| Snippet | The population of older people living with HIV in the United States is growing. Little is known about specific challenges older HIV-infected women face in... |
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| SubjectTerms | Adaptation, Psychological Aged Aging Black or African American - psychology Disclosure Female Friends HIV HIV Infections - ethnology HIV Infections - psychology Human immunodeficiency virus Humans Interpersonal Relations Interviews as Topic Middle Aged Older people Qualitative Research Self Disclosure Shame Social Stigma Social Support Southeastern United States Spirituality stigma Womens health |
| Title | “I Should Know Better”: The Roles of Relationships, Spirituality, Disclosure, Stigma, and Shame for Older Women Living With HIV Seeking Support in the South |
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