The Lived Experience of Physical Separation for Hospice Patients and Families amid COVID-19

• Published in: Journal of pain and symptom management Vol. 63; no. 6; pp. 971 - 979
• Main Authors: Washington, Karla T., Piontek, Amy, Jabbari, JoAnn, Benson, Jacquelyn J., Demiris, George, Tatum, Paul E., Oliver, Debra Parker
• Format: Journal Article
• Language: English
• Published: United States Elsevier Inc 01-06-2022; Elsevier Limited; American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc
• Subjects: Cancer; Caregivers; Clinical research; Clinical trials; Coronaviruses; COVID-19; Disease transmission; End of life decisions; family; Health care; Hospice care; hospices; Interdisciplinary aspects; Interruptions; Medical personnel; Original; Pandemics; Patients; Public health; Relatives; social isolation; Teams; Caregivers; COVID-19; social isolation; hospices; family; patients
• ISSN: 0885-3924; 1873-6513
• DOI: 10.1016/j.jpainsymman.2022.02.019

Many hospice patients were physically separated from family members and healthcare professionals during the early COVID-19 pandemic.
Researchers sought to describe the lived experience of physical separation for hospice patients and family caregivers who adhered to public health guidelines intended to limit the transmission of COVID-19 in the spring of 2020.
Researchers performed a secondary analysis of qualitative data collected during a multi-site clinical trial of an intervention that incorporated family caregivers into care plan reviews during biweekly hospice interdisciplinary team meetings. Twenty-eight adult family caregivers of hospice patients with cancer participated in at least one care plan review between March 7, 2020 and June 10, 2020. The final analytic dataset included the transcribed content of 60 care plan reviews, which were analyzed via reflexive thematic analysis.
Hospice patients and their family caregivers experienced physical separation as interrupted care that resulted in the potential for unmet informational, functional, and social and emotional needs. Connection strategies employed to adapt to care interruptions and address patient and caregiver needs were not consistently effective.
Inclusive, innovative connection strategies are needed to ensure that high-quality end-of-life care is provided to hospice patients and their family caregivers when physical presence must be limited.