Idiopathic Intracranial Hypertension: A Case Study of Patient Engagement in the Treatment of a Chronic Disease

Idiopathic intracranial hypertension is a rare neurological disorder characterized by increased intracranial pressure, which can lead to visual loss and headaches. While medical therapy exists, weight loss is the only disease-modifying treatment. Weight loss is the only therapy that leads to sustain...

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Published in:Journal of patient experience Vol. 9; p. 23743735221094088
Main Authors: Gelkopf, Maxwell J, McAllister, Laura, Gilani, Kia, Sundaram, Arun NE
Format: Journal Article
Language:English
Published: Los Angeles, CA SAGE Publications 01-04-2022
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Abstract Idiopathic intracranial hypertension is a rare neurological disorder characterized by increased intracranial pressure, which can lead to visual loss and headaches. While medical therapy exists, weight loss is the only disease-modifying treatment. Weight loss is the only therapy that leads to sustained resolution of papilledema. Involving the patient in their disease management through patient engagement is a way to improve disease outcomes, and strengthen the therapeutic relationship. This feature discusses an overview of the disease, a patient's experience, and a physician's perspective.
AbstractList Idiopathic intracranial hypertension is a rare neurological disorder characterized by increased intracranial pressure, which can lead to visual loss and headaches. While medical therapy exists, weight loss is the only disease-modifying treatment. Weight loss is the only therapy that leads to sustained resolution of papilledema. Involving the patient in their disease management through patient engagement is a way to improve disease outcomes, and strengthen the therapeutic relationship. This feature discusses an overview of the disease, a patient's experience, and a physician's perspective.
Author Gelkopf, Maxwell J
McAllister, Laura
Sundaram, Arun NE
Gilani, Kia
AuthorAffiliation 3 Division of Neurology, University of Toronto, Toronto, Canada
1 Department of Ophthalmology, 6221 Western University , Schulich School of Medicine and Dentistry, London, Canada
2 Ophthalmology & Vision Sciences, 71545 Sunnybrook Health Sciences Centre , University of Toronto, Toronto, Canada
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  givenname: Arun NE
  surname: Sundaram
  fullname: Sundaram, Arun NE
  email: Arun.Sundaram@sunnybrook.ca
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Keywords clinician–patient relationship
challenges
patient expectations
patient/relationship-centered skills
medical decision making
patient perspectives/narratives
communication
patient engagement
Language English
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Physician patient relationships
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Title Idiopathic Intracranial Hypertension: A Case Study of Patient Engagement in the Treatment of a Chronic Disease
URI https://journals.sagepub.com/doi/full/10.1177/23743735221094088
https://www.ncbi.nlm.nih.gov/pubmed/35465411
https://www.proquest.com/docview/2767417036
https://search.proquest.com/docview/2655107865
https://pubmed.ncbi.nlm.nih.gov/PMC9019380
https://doaj.org/article/5952e270cb134c7fb01faff9affadf51
Volume 9
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