Idiopathic Intracranial Hypertension: A Case Study of Patient Engagement in the Treatment of a Chronic Disease
Idiopathic intracranial hypertension is a rare neurological disorder characterized by increased intracranial pressure, which can lead to visual loss and headaches. While medical therapy exists, weight loss is the only disease-modifying treatment. Weight loss is the only therapy that leads to sustain...
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Published in: | Journal of patient experience Vol. 9; p. 23743735221094088 |
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Abstract | Idiopathic intracranial hypertension is a rare neurological disorder characterized by increased intracranial pressure, which can lead to visual loss and headaches. While medical therapy exists, weight loss is the only disease-modifying treatment. Weight loss is the only therapy that leads to sustained resolution of papilledema. Involving the patient in their disease management through patient engagement is a way to improve disease outcomes, and strengthen the therapeutic relationship. This feature discusses an overview of the disease, a patient's experience, and a physician's perspective. |
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AbstractList | Idiopathic intracranial hypertension is a rare neurological disorder characterized by increased intracranial pressure, which can lead to visual loss and headaches. While medical therapy exists, weight loss is the only disease-modifying treatment. Weight loss is the only therapy that leads to sustained resolution of papilledema. Involving the patient in their disease management through patient engagement is a way to improve disease outcomes, and strengthen the therapeutic relationship. This feature discusses an overview of the disease, a patient's experience, and a physician's perspective. |
Author | Gelkopf, Maxwell J McAllister, Laura Sundaram, Arun NE Gilani, Kia |
AuthorAffiliation | 3 Division of Neurology, University of Toronto, Toronto, Canada 1 Department of Ophthalmology, 6221 Western University , Schulich School of Medicine and Dentistry, London, Canada 2 Ophthalmology & Vision Sciences, 71545 Sunnybrook Health Sciences Centre , University of Toronto, Toronto, Canada |
AuthorAffiliation_xml | – name: 1 Department of Ophthalmology, 6221 Western University , Schulich School of Medicine and Dentistry, London, Canada – name: 2 Ophthalmology & Vision Sciences, 71545 Sunnybrook Health Sciences Centre , University of Toronto, Toronto, Canada – name: 3 Division of Neurology, University of Toronto, Toronto, Canada |
Author_xml | – sequence: 1 givenname: Maxwell J orcidid: 0000-0002-0002-1595 surname: Gelkopf fullname: Gelkopf, Maxwell J – sequence: 2 givenname: Laura surname: McAllister fullname: McAllister, Laura – sequence: 3 givenname: Kia surname: Gilani fullname: Gilani, Kia – sequence: 4 givenname: Arun NE surname: Sundaram fullname: Sundaram, Arun NE email: Arun.Sundaram@sunnybrook.ca |
BackLink | https://www.ncbi.nlm.nih.gov/pubmed/35465411$$D View this record in MEDLINE/PubMed |
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Cites_doi | 10.1001/archneur.1988.00520320065016 10.1212/WNL.0b013e3182190f51 10.1136/bmj.c2701 10.1002/tera.1420370407 10.1016/j.ncl.2010.03.003 10.1097/WNO.0000000000000448 10.1097/WNO.0b013e3182594001 10.1227/01.NEU.0000109042.87246.3C 10.1186/1471-2458-14-648 10.1136/jnnp-2017-317440 10.1097/WNO.0000000000000332 10.1017/CBO9780511544996 10.1212/WNL.0b013e3182a55f17 10.1503/cjs.016616 10.1016/j.ajo.2004.12.091 10.1016/S1474-4422(06)70442-2 10.1186/s13012-018-0784-z 10.1001/jamaneurol.2014.133 10.1016/S0161-6420(98)91234-9 10.1007/s00415-002-0791-4 |
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Keywords | clinician–patient relationship challenges patient expectations patient/relationship-centered skills medical decision making patient perspectives/narratives communication patient engagement |
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Title | Idiopathic Intracranial Hypertension: A Case Study of Patient Engagement in the Treatment of a Chronic Disease |
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