The Arabic version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

• Published in: Rheumatology international Vol. 38; no. Suppl 1; pp. 43 - 49
• Main Authors: Al-Mayouf, Sulaiman M., AlE’ed, Ashwaq, Muzaffer, Mohammed, Consolaro, Alessandro, Bovis, Francesca, Ruperto, Nicolino
• Format: Journal Article
• Language: English
• Published: Berlin/Heidelberg Springer Berlin Heidelberg 01-04-2018; Springer Nature B.V
• Subjects: Adolescent; Age of Onset; Arthritis; Arthritis, Juvenile - diagnosis; Arthritis, Juvenile - physiopathology; Arthritis, Juvenile - psychology; Arthritis, Juvenile - therapy; Case-Control Studies; Child; Child, Preschool; Cultural Characteristics; Disability Evaluation; Female; Health Status; Humans; Male; Medicine; Medicine & Public Health; Parents - psychology; Patient Reported Outcome Measures; Patients; Patients - psychology; Predictive Value of Tests; Prognosis; Psychometrics; Quality of Life; Quantitative psychology; Reproducibility of Results; Rheumatology; Rheumatology - methods; Saudi Arabia; Translating; Validation Studies; Saudi Arabia; Health-related quality of life; Disease status; Functional ability; JAMAR; Juvenile idiopathic arthritis
• ISSN: 0172-8172; 1437-160X
• DOI: 10.1007/s00296-018-3979-3

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Arabic language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic and clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 100 JIA patients (27.0% systemic JIA, 23.0% oligoarticular, 25.0% RF negative polyarthritis, and 25.0% other categories) and 100 healthy children, were enrolled in one paediatric rheumatology centre. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed satisfactory psychometric performances. In conclusion, the Arabic version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and in clinical research.