Using Peer Support in Developing Empowering Mental Health Services (UPSIDES): Background, Rationale and Methodology
Peers are people with lived experience of mental illness. Peer support is an established intervention in which peers offer support to others with mental illness. A large proportion of people living with severe mental illness receive no care. The care gap is largest in low- and middle-income countrie...
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| Published in: | Annals of global health Vol. 85; no. 1; p. 53 |
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| Main Authors: | , , , , , , , , , , , , , , , |
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Ubiquity Press
05-04-2019
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| Abstract | Peers are people with lived experience of mental illness. Peer support is an established intervention in which peers offer support to others with mental illness. A large proportion of people living with severe mental illness receive no care. The care gap is largest in low- and middle-income countries, with detrimental effects on individuals and societies. The global shortage of human resources for mental health is an important driver of the care gap. Peers are an under-used resource in global mental health.
To describe rationale and methodology of an international multicentre study which will scale-up peer support for people with severe mental illness in high-, middle-, and low-income countries through mixed-methods implementation research.
UPSIDES is an international community of research and practice for peer support, including peer support workers, mental health researchers, and other relevant stakeholders in eight study sites across six countries in Europe, Africa, and Asia. During the first two years of UPSIDES, a series of qualitative studies and systematic reviews will explore stakeholders' perceptions and the current state of peer support at each site. Findings will be incorporated into a conceptual framework to guide the development of a culturally appropriate peer support intervention to be piloted across all study sites. All intervention and study materials will be translated according to internationally recognised guidelines.Expected Impact: UPSIDES: will leverage the unique expertise of people with lived experience of mental illness to strengthen mental health systems in high-, middle- and low-income countries. UPSIDES will actively involve and empower service users and embed patient-centeredness, recovery orientation, human rights approaches, and community participation into services. The focus on capacity-building of peers may prove particularly valuable in low-resource settings in which shortages of human capital are most severe. |
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| AbstractList | BACKGROUNDPeers are people with lived experience of mental illness. Peer support is an established intervention in which peers offer support to others with mental illness. A large proportion of people living with severe mental illness receive no care. The care gap is largest in low- and middle-income countries, with detrimental effects on individuals and societies. The global shortage of human resources for mental health is an important driver of the care gap. Peers are an under-used resource in global mental health. OBJECTIVESTo describe rationale and methodology of an international multicentre study which will scale-up peer support for people with severe mental illness in high-, middle-, and low-income countries through mixed-methods implementation research. METHODSUPSIDES is an international community of research and practice for peer support, including peer support workers, mental health researchers, and other relevant stakeholders in eight study sites across six countries in Europe, Africa, and Asia. During the first two years of UPSIDES, a series of qualitative studies and systematic reviews will explore stakeholders' perceptions and the current state of peer support at each site. Findings will be incorporated into a conceptual framework to guide the development of a culturally appropriate peer support intervention to be piloted across all study sites. All intervention and study materials will be translated according to internationally recognised guidelines.Expected Impact: UPSIDES: will leverage the unique expertise of people with lived experience of mental illness to strengthen mental health systems in high-, middle- and low-income countries. UPSIDES will actively involve and empower service users and embed patient-centeredness, recovery orientation, human rights approaches, and community participation into services. The focus on capacity-building of peers may prove particularly valuable in low-resource settings in which shortages of human capital are most severe. Background: Peers are people with lived experience of mental illness. Peer support is an established intervention in which peers offer support to others with mental illness. A large proportion of people living with severe mental illness receive no care. The care gap is largest in low- and middle-income countries, with detrimental effects on individuals and societies. The global shortage of human resources for mental health is an important driver of the care gap. Peers are an under-used resource in global mental health.Objectives: To describe rationale and methodology of an international multicentre study which will scale-up peer support for people with severe mental illness in high-, middle-, and low-income countries through mixed-methods implementation research.Methods: UPSIDES is an international community of research and practice for peer support, including peer support workers, mental health researchers, and other relevant stakeholders in eight study sites across six countries in Europe, Africa, and Asia. During the first two years of UPSIDES, a series of qualitative studies and systematic reviews will explore stakeholders’ perceptions and the current state of peer support at each site. Findings will be incorporated into a conceptual framework to guide the development of a culturally appropriate peer support intervention to be piloted across all study sites. All intervention and study materials will be translated according to internationally recognised guidelines.Expected Impact: UPSIDES: will leverage the unique expertise of people with lived experience of mental illness to strengthen mental health systems in high-, middle- and low-income countries. UPSIDES will actively involve and empower service users and embed patient-centeredness, recovery orientation, human rights approaches, and community participation into services. The focus on capacity-building of peers may prove particularly valuable in low-resource settings in which shortages of human capital are most severe. Peers are people with lived experience of mental illness. Peer support is an established intervention in which peers offer support to others with mental illness. A large proportion of people living with severe mental illness receive no care. The care gap is largest in low- and middle-income countries, with detrimental effects on individuals and societies. The global shortage of human resources for mental health is an important driver of the care gap. Peers are an under-used resource in global mental health. To describe rationale and methodology of an international multicentre study which will scale-up peer support for people with severe mental illness in high-, middle-, and low-income countries through mixed-methods implementation research. UPSIDES is an international community of research and practice for peer support, including peer support workers, mental health researchers, and other relevant stakeholders in eight study sites across six countries in Europe, Africa, and Asia. During the first two years of UPSIDES, a series of qualitative studies and systematic reviews will explore stakeholders' perceptions and the current state of peer support at each site. Findings will be incorporated into a conceptual framework to guide the development of a culturally appropriate peer support intervention to be piloted across all study sites. All intervention and study materials will be translated according to internationally recognised guidelines.Expected Impact: UPSIDES: will leverage the unique expertise of people with lived experience of mental illness to strengthen mental health systems in high-, middle- and low-income countries. UPSIDES will actively involve and empower service users and embed patient-centeredness, recovery orientation, human rights approaches, and community participation into services. The focus on capacity-building of peers may prove particularly valuable in low-resource settings in which shortages of human capital are most severe. Background: Peers are people with lived experience of mental illness. Peer support is an established intervention in which peers offer support to others with mental illness. A large proportion of people living with severe mental illness receive no care. The care gap is largest in low- and middle-income countries, with detrimental effects on individuals and societies. The global shortage of human resources for mental health is an important driver of the care gap. Peers are an under-used resource in global mental health. Objectives: To describe rationale and methodology of an international multicentre study which will scale-up peer support for people with severe mental illness in high-, middle-, and low-income countries through mixed-methods implementation research. Methods: UPSIDES is an international community of research and practice for peer support, including peer support workers, mental health researchers, and other relevant stakeholders in eight study sites across six countries in Europe, Africa, and Asia. During the first two years of UPSIDES, a series of qualitative studies and systematic reviews will explore stakeholders’ perceptions and the current state of peer support at each site. Findings will be incorporated into a conceptual framework to guide the development of a culturally appropriate peer support intervention to be piloted across all study sites. All intervention and study materials will be translated according to internationally recognised guidelines. Expected Impact: UPSIDES: will leverage the unique expertise of people with lived experience of mental illness to strengthen mental health systems in high-, middle- and low-income countries. UPSIDES will actively involve and empower service users and embed patient-centeredness, recovery orientation, human rights approaches, and community participation into services. The focus on capacity-building of peers may prove particularly valuable in low-resource settings in which shortages of human capital are most severe. |
| Author | Basangwa, David Ryan, Grace Slade, Mike Moran, Galia Pathare, Soumitra Mahlke, Candelaria Baillie, Dave Puschner, Bernd Lachmann, Max Müller-Stierlin, Annabel Repper, Julie Ramesh, Mary Shamba, Donat Nixdorf, Rebecca Nakku, Juliet Kalha, Jasmine |
| AuthorAffiliation | 3 Department of Psychiatry, University Medical Centre Hamburg-Eppendorf, DE 7 Ifakara Health Institute, Dar es Salaam, TZ 1 Department of Psychiatry and Psychotherapy II, Ulm University, DE 9 Centre for Mental Health Law and Policy, Indian Law Society, Pune, IN 2 ImROC (Implementing Recovery through Organisational Change), Department of Learning and Organisational Development, Nottinghamshire Healthcare Foundation NHS Trust, Nottingham, UK 6 East London NHS Foundation Trust, London, UK 8 Department of Social Work, Ben Gurion University of the Negev, Beer Sheva, IL 5 Centre for Global Mental Health, London School of Hygiene and Tropical Medicine, UK 10 School of Health Sciences, Institute of Mental Health, University of Nottingham, UK 4 Butabika National Referral Hospital, Kampala, UG |
| AuthorAffiliation_xml | – name: 6 East London NHS Foundation Trust, London, UK – name: 1 Department of Psychiatry and Psychotherapy II, Ulm University, DE – name: 10 School of Health Sciences, Institute of Mental Health, University of Nottingham, UK – name: 7 Ifakara Health Institute, Dar es Salaam, TZ – name: 2 ImROC (Implementing Recovery through Organisational Change), Department of Learning and Organisational Development, Nottinghamshire Healthcare Foundation NHS Trust, Nottingham, UK – name: 8 Department of Social Work, Ben Gurion University of the Negev, Beer Sheva, IL – name: 3 Department of Psychiatry, University Medical Centre Hamburg-Eppendorf, DE – name: 5 Centre for Global Mental Health, London School of Hygiene and Tropical Medicine, UK – name: 4 Butabika National Referral Hospital, Kampala, UG – name: 9 Centre for Mental Health Law and Policy, Indian Law Society, Pune, IN |
| Author_xml | – sequence: 1 givenname: Bernd surname: Puschner fullname: Puschner, Bernd organization: Department of Psychiatry and Psychotherapy II, Ulm University, DE – sequence: 2 givenname: Julie surname: Repper fullname: Repper, Julie organization: ImROC (Implementing Recovery through Organisational Change), Department of Learning and Organisational Development, Nottinghamshire Healthcare Foundation NHS Trust, Nottingham, UK – sequence: 3 givenname: Candelaria surname: Mahlke fullname: Mahlke, Candelaria organization: Department of Psychiatry, University Medical Centre Hamburg-Eppendorf, DE – sequence: 4 givenname: Rebecca surname: Nixdorf fullname: Nixdorf, Rebecca organization: Department of Psychiatry, University Medical Centre Hamburg-Eppendorf, DE – sequence: 5 givenname: David surname: Basangwa fullname: Basangwa, David organization: Butabika National Referral Hospital, Kampala, UG – sequence: 6 givenname: Juliet surname: Nakku fullname: Nakku, Juliet organization: Butabika National Referral Hospital, Kampala, UG – sequence: 7 givenname: Grace surname: Ryan fullname: Ryan, Grace organization: Centre for Global Mental Health, London School of Hygiene and Tropical Medicine, UK – sequence: 8 givenname: Dave surname: Baillie fullname: Baillie, Dave organization: East London NHS Foundation Trust, London, UK – sequence: 9 givenname: Donat surname: Shamba fullname: Shamba, Donat organization: Ifakara Health Institute, Dar es Salaam, TZ – sequence: 10 givenname: Mary surname: Ramesh fullname: Ramesh, Mary organization: Ifakara Health Institute, Dar es Salaam, TZ – sequence: 11 givenname: Galia surname: Moran fullname: Moran, Galia organization: Department of Social Work, Ben Gurion University of the Negev, Beer Sheva, IL – sequence: 12 givenname: Max surname: Lachmann fullname: Lachmann, Max organization: Department of Social Work, Ben Gurion University of the Negev, Beer Sheva, IL – sequence: 13 givenname: Jasmine surname: Kalha fullname: Kalha, Jasmine organization: Centre for Mental Health Law and Policy, Indian Law Society, Pune, IN – sequence: 14 givenname: Soumitra surname: Pathare fullname: Pathare, Soumitra organization: Centre for Mental Health Law and Policy, Indian Law Society, Pune, IN – sequence: 15 givenname: Annabel surname: Müller-Stierlin fullname: Müller-Stierlin, Annabel organization: Department of Psychiatry and Psychotherapy II, Ulm University, DE – sequence: 16 givenname: Mike surname: Slade fullname: Slade, Mike organization: School of Health Sciences, Institute of Mental Health, University of Nottingham, UK |
| BackLink | https://www.ncbi.nlm.nih.gov/pubmed/30951270$$D View this record in MEDLINE/PubMed |
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