‘It gives you the skills of how you can cope’: Exploring the self‐reported experience of patients receiving in‐centre haemodialysis on participating in chosen art activities

• Published in: Health expectations : an international journal of public participation in health care and health policy Vol. 24; no. 6; pp. 1979 - 1987
• Main Authors: Taylor, Francesca, Drennan, Vari M., Turner, Marie‐Louise, Jones, Jeunita, Popoola, Joyce
• Format: Journal Article
• Language: English
• Published: England John Wiley & Sons, Inc 01-12-2021; John Wiley and Sons Inc; Wiley
• Subjects: Adaptation, Psychological; Arts; Boredom; Coping; Coronaviruses; COVID-19; Creative writing; Data collection; Dialysis; Fatigue; Female; Hemodialysis; Hospitals; Humans; Identity; Interviews; kidney failure; Male; Motivation; Original; Participation; Patient control; patient preference; Patients; Professionals; Psychosocial factors; Qualitative Research; Quality of life; Renal Dialysis; Research methodology; Research methods; Self Report; self‐concept; Social Environment; Stigma; Talking; Trust; Tutoring; Uptake; United Kingdom > UK; United States > US; Ireland; patient preference; kidney failure; art; qualitative research; self-concept; renal dialysis
• ISSN: 1369-6513; 1369-7625
• DOI: 10.1111/hex.13337

Background
Increasing numbers of patients are receiving dialysis, particularly in high‐income countries. Patients receiving haemodialysis often experience fatigue, anxiety, depression and boredom. It is suggested that arts activities could have a therapeutic effect.
Objective
This study aimed to explore patients' perspectives of participating while on dialysis in chosen arts and creative living activities provided by tutors at the bedside.
Design
Qualitative semi‐structured interviews in the interpretive tradition were conducted, with thematic analysis.
Setting and Participants
Fifteen patients of different ages, genders and ethnicities who participated in an arts activity while receiving haemodialysis in an inner‐city dialysis unit in England were included in this study.
Results
Participants reported positive experiences of engaging in art activities. Their views on the value of the activities were grouped into five themes: diversion from receiving haemodialysis, a sense of achievement, contribution to a more positive self‐identity, increased confidence and motivation and a therapeutic talking relationship. Participants suggested that patient peer promotion of the activities could increase uptake, with patient choice of activity seen as important.
Conclusions
Participation in a chosen arts activity while receiving haemodialysis was perceived by patients to have positive psychosocial effects. We theorize three potential explanatory mechanisms for these effects: That the experience of participating in the activities engendered positive psychological states of ‘being in the flow’; enhanced self‐esteem to add to personal coping mechanisms; and offered additional facets to the patient's identity that countered the stigmatizing effect of receiving dialysis.
Patient or Public Contribution
Patients and public representatives advised on the design, research methods and tools.