Patients’ Perspectives on What Makes a Better Care Experience While Undergoing Treatment for Oropharyngeal Dysphagia Secondary to Head and Neck Cancer
Patients’ perceptions on what makes a better care experience for head and neck cancer (HNca) have not been widely sought. Patients’ perceptions can play a crucial role in shaping quality care and client involvement. To investigate patients’ perspectives on what makes a better care experience while u...
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| Published in: | Dysphagia Vol. 35; no. 4; pp. 702 - 716 |
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| Main Authors: | , , , |
| Format: | Journal Article |
| Language: | English |
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01-08-2020
Springer Springer Nature B.V |
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| Abstract | Patients’ perceptions on what makes a better care experience for head and neck cancer (HNca) have not been widely sought. Patients’ perceptions can play a crucial role in shaping quality care and client involvement. To investigate patients’ perspectives on what makes a better care experience while undergoing rehabilitation for oropharyngeal dysphagia secondary to HNca. Qualitative data were collected in the form of semi-structured interviews from eight patients after they had undergone rehabilitation for HNca. The data were thematically analysed by two researchers independently. Six themes, plus subthemes, were identified. These themes were Supportive network is essential; Reassurance from staff professionalism; Access to service; Using own motivation and resilience; Receiving the right information and Ongoing shock and adjustment. Results are discussed in context of the literature and clinical implications and future research are recommended. Collation of patients’ perspectives is valuable to increase insight into what makes a better rehabilitative journey for patients with HNca. Rehabilitation that is holistic, specialised and patient-specific is highly valued by patients with HNca. |
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| AbstractList | Patients’ perceptions on what makes a better care experience for head and neck cancer (HNca) have not been widely sought. Patients’ perceptions can play a crucial role in shaping quality care and client involvement. To investigate patients’ perspectives on what makes a better care experience while undergoing rehabilitation for oropharyngeal dysphagia secondary to HNca. Qualitative data were collected in the form of semi-structured interviews from eight patients after they had undergone rehabilitation for HNca. The data were thematically analysed by two researchers independently. Six themes, plus subthemes, were identified. These themes were Supportive network is essential; Reassurance from staff professionalism; Access to service; Using own motivation and resilience; Receiving the right information and Ongoing shock and adjustment. Results are discussed in context of the literature and clinical implications and future research are recommended. Collation of patients’ perspectives is valuable to increase insight into what makes a better rehabilitative journey for patients with HNca. Rehabilitation that is holistic, specialised and patient-specific is highly valued by patients with HNca. |
| Audience | Academic |
| Author | Bain, Jessica Checklin, Martin Bath, Lucy Lethbridge, Kate |
| Author_xml | – sequence: 1 givenname: Martin orcidid: 0000-0002-9758-4334 surname: Checklin fullname: Checklin, Martin email: Martin.checklin@epworth.org.au organization: Speech Pathology and Dietetics, Epworth Rehabilitation and Mental Health, Epworth Healthcare – sequence: 2 givenname: Jessica surname: Bain fullname: Bain, Jessica organization: Speech Pathology and Dietetics, Epworth Rehabilitation and Mental Health, Epworth Healthcare – sequence: 3 givenname: Lucy surname: Bath fullname: Bath, Lucy organization: Speech Pathology and Dietetics, Epworth Rehabilitation and Mental Health, Epworth Healthcare – sequence: 4 givenname: Kate surname: Lethbridge fullname: Lethbridge, Kate organization: Speech Pathology and Dietetics, Epworth Rehabilitation and Mental Health, Epworth Healthcare |
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| CitedBy_id | crossref_primary_10_1007_s00455_021_10287_3 crossref_primary_10_1080_09638288_2023_2280073 crossref_primary_10_3390_nursrep12020025 crossref_primary_10_1097_MOO_0000000000000881 crossref_primary_10_1007_s00405_020_06507_5 crossref_primary_10_1177_14604582221087128 crossref_primary_10_1007_s00455_023_10640_8 crossref_primary_10_1007_s00520_021_06062_7 |
| Cites_doi | 10.1002/hed.25113 10.1016/j.jpainsymman.2014.04.014 10.1016/S0194-5998(99)70287-1 10.1007/s00520-012-1483-y 10.1111/jocn.12151 10.1016/j.ejon.2010.07.006 10.1007/s00520-017-3618-7 10.1016/j.otohns.2006.10.018 10.1002/pon.2063 10.1007/s00455-015-9623-4 10.1002/(SICI)1097-0347(199909)21:6<531::AID-HED6>3.0.CO;2-M 10.1046/j.1365-2702.2003.00751.x 10.1044/2016_AJSLP-15-0170 10.1007/s00520-013-1870-z 10.3109/17549507.2013.861869 10.1007/s00520-014-2117-3 10.1016/j.oraloncology.2012.12.002 10.2471/BLT.16.179309 10.1191/1478088706qp063oa 10.1097/NCC.0000000000000229 10.1177/1525822X05279903 10.1002/pon.3343 10.3109/17549507.2015.1010581 10.1016/j.oraloncology.2015.04.014 10.1007/s00455-018-9917-4 10.1097/SPC.0000000000000322 |
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| Keywords | Deglutition and deglutition disorders Head and neck cancer Oncology Dysphagia Rehabilitation Patients’ perspectives |
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| Snippet | Patients’ perceptions on what makes a better care experience for head and neck cancer (HNca) have not been widely sought. Patients’ perceptions can play a... Patients' perceptions on what makes a better care experience for head and neck cancer (HNca) have not been widely sought. Patients' perceptions can play a... |
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| SubjectTerms | Care and treatment Deglutition disorders Dysphagia Gastroenterology Head & neck cancer Head and neck cancer Hepatology Imaging Medical research Medicine Medicine & Public Health Medicine, Experimental Motivation Original Article Otorhinolaryngology Patients Radiology Rehabilitation |
| Title | Patients’ Perspectives on What Makes a Better Care Experience While Undergoing Treatment for Oropharyngeal Dysphagia Secondary to Head and Neck Cancer |
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