A Bespoke Social Network for Deaf Women in Ecuador to Access Information on Sexual and Reproductive Health
Many deaf women face the lack of numerous resources related to their personal development. The unavailability of proper information on Sexual and Reproductive Health (SRH), in particular, causes problems of sexually transmitted infections, unwanted pregnancy in adolescence, sexual violence, complica...
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Published in: | International journal of environmental research and public health Vol. 16; no. 20; p. 3962 |
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Abstract | Many deaf women face the lack of numerous resources related to their personal development. The unavailability of proper information on Sexual and Reproductive Health (SRH), in particular, causes problems of sexually transmitted infections, unwanted pregnancy in adolescence, sexual violence, complications during pregnancy, etc. In response to this, we have created a social network that delivers SRH content (verified and validated by experts) to women with different degrees of hearing loss. The site features a recommender system that selects the most relevant pieces of content to deliver to each woman, driven by her individual preferences, needs and levels of knowledge on the different subjects. We report experiments conducted in Cuenca, Ecuador, between 2017 and 2018 with 98 volunteers from low- and middle-income settings, aiming to evaluate the quality and appeal of the contents, the coherence of the methodology followed to create them, and the effectiveness of the content recommendations. The positive results encourage the frequent creation of new content and the refinement of the recommendation logic as the cohort of users expands over time. |
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AbstractList | Many deaf women face the lack of numerous resources related to their personal development. The unavailability of proper information on Sexual and Reproductive Health (SRH), in particular, causes problems of sexually transmitted infections, unwanted pregnancy in adolescence, sexual violence, complications during pregnancy, etc. In response to this, we have created a social network that delivers SRH content (verified and validated by experts) to women with different degrees of hearing loss. The site features a recommender system that selects the most relevant pieces of content to deliver to each woman, driven by her individual preferences, needs and levels of knowledge on the different subjects. We report experiments conducted in Cuenca, Ecuador, between 2017 and 2018 with 98 volunteers from low- and middle-income settings, aiming to evaluate the quality and appeal of the contents, the coherence of the methodology followed to create them, and the effectiveness of the content recommendations. The positive results encourage the frequent creation of new content and the refinement of the recommendation logic as the cohort of users expands over time. [...]on the one hand, many hearing-impaired youngsters who have finished primary school still suffer from functional illiteracy or have serious difficulties in understanding texts and expressing themselves [2,3]. [...]the illiteracy ratios among deaf people are much greater than among non-deaf or regular people, and the taboo surrounding sexual and reproductive issues contributes to a large knowledge gap between hearing and non-hearing women during their maturation years and ever after those [12]. Informed by these findings, we have created a bespoke social network for deaf women in Ecuador, which yields guidelines for similar developments in other countries. Besides the specificities of structure and format, our site features a recommender system that addresses (as far as we know, for the first time) a persistent problem in this kind of online resources: it is not enough to attract the target users to a web site; once they have landed on it, it is necessary to face them with properly selected content, in order to make the most of the short time that they are likely to spend browsing its content [22]. Content Creation Guidelines Grounded on a review of the literature in relation to the creation of accessible multimedia contents for hearing-impaired people [23,24], accumulated evidence on how to design and deliver SHR information [25,26] and experiences in running bespoke social networks targeted at certain social groups [27,28], we carried out an ethnographic study in 2016 to involve deaf women in the identification of guidelines for the creation of new materials to offer in our social network. |
Author | Ramos-Cabrer, Manuel Pesántez-Avilés, Fernando Ingavélez-Guerra, Paola Robles-Bykbaev, Yaroslava Oyola-Flores, Christian Robles-Bykbaev, Vladimir Espartaco López-Nores, Martín Pazos-Arias, José Juan |
AuthorAffiliation | 2 AtlantTIC Research Center, Department of Telematics Engineering, University of Vigo, 36310 Vigo, Spain; mlnores@det.uvigo.es (M.L.-N.); jose@det.uvigo.es (J.J.P.-A.); mramos@det.uvigo.es (M.R.-C.) 1 GI-IATa, UNESCO Chair on Support Technologies for Educational Inclusion, Universidad Politécnica Salesiana, 010102 Cuenca, Ecuador; zrobles@ups.edu.ec (Y.R.-B.); coyola@est.ups.edu.ec (C.O.-F.); pcingavelez@ups.edu.ec (P.I.-G.); fpesantez@ups.edu.ec (F.P.-A.) |
AuthorAffiliation_xml | – name: 1 GI-IATa, UNESCO Chair on Support Technologies for Educational Inclusion, Universidad Politécnica Salesiana, 010102 Cuenca, Ecuador; zrobles@ups.edu.ec (Y.R.-B.); coyola@est.ups.edu.ec (C.O.-F.); pcingavelez@ups.edu.ec (P.I.-G.); fpesantez@ups.edu.ec (F.P.-A.) – name: 2 AtlantTIC Research Center, Department of Telematics Engineering, University of Vigo, 36310 Vigo, Spain; mlnores@det.uvigo.es (M.L.-N.); jose@det.uvigo.es (J.J.P.-A.); mramos@det.uvigo.es (M.R.-C.) |
Author_xml | – sequence: 1 givenname: Yaroslava surname: Robles-Bykbaev fullname: Robles-Bykbaev, Yaroslava email: zrobles@ups.edu.ec organization: GI-IATa, UNESCO Chair on Support Technologies for Educational Inclusion, Universidad Politécnica Salesiana, 010102 Cuenca, Ecuador. zrobles@ups.edu.ec – sequence: 2 givenname: Christian surname: Oyola-Flores fullname: Oyola-Flores, Christian email: coyola@est.ups.edu.ec organization: GI-IATa, UNESCO Chair on Support Technologies for Educational Inclusion, Universidad Politécnica Salesiana, 010102 Cuenca, Ecuador. coyola@est.ups.edu.ec – sequence: 3 givenname: Vladimir Espartaco orcidid: 0000-0002-7645-8793 surname: Robles-Bykbaev fullname: Robles-Bykbaev, Vladimir Espartaco email: vrobles@ups.edu.ec organization: GI-IATa, UNESCO Chair on Support Technologies for Educational Inclusion, Universidad Politécnica Salesiana, 010102 Cuenca, Ecuador. vrobles@ups.edu.ec – sequence: 4 givenname: Martín orcidid: 0000-0002-4802-607X surname: López-Nores fullname: López-Nores, Martín email: mlnores@det.uvigo.es organization: AtlantTIC Research Center, Department of Telematics Engineering, University of Vigo, 36310 Vigo, Spain. mlnores@det.uvigo.es – sequence: 5 givenname: Paola surname: Ingavélez-Guerra fullname: Ingavélez-Guerra, Paola email: pcingavelez@ups.edu.ec organization: GI-IATa, UNESCO Chair on Support Technologies for Educational Inclusion, Universidad Politécnica Salesiana, 010102 Cuenca, Ecuador. pcingavelez@ups.edu.ec – sequence: 6 givenname: José Juan surname: Pazos-Arias fullname: Pazos-Arias, José Juan email: jose@det.uvigo.es organization: AtlantTIC Research Center, Department of Telematics Engineering, University of Vigo, 36310 Vigo, Spain. jose@det.uvigo.es – sequence: 7 givenname: Fernando surname: Pesántez-Avilés fullname: Pesántez-Avilés, Fernando email: fpesantez@ups.edu.ec organization: GI-IATa, UNESCO Chair on Support Technologies for Educational Inclusion, Universidad Politécnica Salesiana, 010102 Cuenca, Ecuador. fpesantez@ups.edu.ec – sequence: 8 givenname: Manuel surname: Ramos-Cabrer fullname: Ramos-Cabrer, Manuel email: mramos@det.uvigo.es organization: AtlantTIC Research Center, Department of Telematics Engineering, University of Vigo, 36310 Vigo, Spain. mramos@det.uvigo.es |
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Cites_doi | 10.1007/s13187-013-0529-2 10.3390/ijerph15122746 10.1123/pes.15.3.288 10.1145/1941487.1941498 10.1080/19317611.2013.823899 10.1037/a0015771 10.1016/j.evalprogplan.2014.12.010 10.1145/564376.564421 10.3390/ijerph16030417 10.3390/ijerph14010088 10.1016/j.dhjo.2016.07.002 10.3390/ijerph16071126 10.1080/15332985.2018.1498045 10.3390/ijerph15102165 10.3917/spub.133.0235 10.1016/j.procs.2016.09.060 10.1109/ARGENCON.2018.8646055 10.3390/ijerph16061024 10.1016/j.jadohealth.2014.09.012 |
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Keywords | recommender system hearing loss Sexual and Reproductive Health deaf women Ecuadorian Sign Language |
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Snippet | Many deaf women face the lack of numerous resources related to their personal development. The unavailability of proper information on Sexual and Reproductive... [...]on the one hand, many hearing-impaired youngsters who have finished primary school still suffer from functional illiteracy or have serious difficulties in... |
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SubjectTerms | Access to Information Adolescent Adult Browsing Communication Content management software Deafness Design Ecuador Ethnography Female Guidelines Hearing Hearing loss Humans Illiteracy Internet resources Literature reviews Low income groups Pregnancy Pregnancy, Unwanted Recommender systems Reproduction Reproductive Health Sex Offenses Sexual Behavior Sexual Health Sexually Transmitted Diseases Sign language Social Networking Social networks Social organization Websites Womens health Young Adult |
Title | A Bespoke Social Network for Deaf Women in Ecuador to Access Information on Sexual and Reproductive Health |
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