A Bespoke Social Network for Deaf Women in Ecuador to Access Information on Sexual and Reproductive Health

Many deaf women face the lack of numerous resources related to their personal development. The unavailability of proper information on Sexual and Reproductive Health (SRH), in particular, causes problems of sexually transmitted infections, unwanted pregnancy in adolescence, sexual violence, complica...

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Published in:International journal of environmental research and public health Vol. 16; no. 20; p. 3962
Main Authors: Robles-Bykbaev, Yaroslava, Oyola-Flores, Christian, Robles-Bykbaev, Vladimir Espartaco, López-Nores, Martín, Ingavélez-Guerra, Paola, Pazos-Arias, José Juan, Pesántez-Avilés, Fernando, Ramos-Cabrer, Manuel
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Published: Switzerland MDPI AG 17-10-2019
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Abstract Many deaf women face the lack of numerous resources related to their personal development. The unavailability of proper information on Sexual and Reproductive Health (SRH), in particular, causes problems of sexually transmitted infections, unwanted pregnancy in adolescence, sexual violence, complications during pregnancy, etc. In response to this, we have created a social network that delivers SRH content (verified and validated by experts) to women with different degrees of hearing loss. The site features a recommender system that selects the most relevant pieces of content to deliver to each woman, driven by her individual preferences, needs and levels of knowledge on the different subjects. We report experiments conducted in Cuenca, Ecuador, between 2017 and 2018 with 98 volunteers from low- and middle-income settings, aiming to evaluate the quality and appeal of the contents, the coherence of the methodology followed to create them, and the effectiveness of the content recommendations. The positive results encourage the frequent creation of new content and the refinement of the recommendation logic as the cohort of users expands over time.
AbstractList Many deaf women face the lack of numerous resources related to their personal development. The unavailability of proper information on Sexual and Reproductive Health (SRH), in particular, causes problems of sexually transmitted infections, unwanted pregnancy in adolescence, sexual violence, complications during pregnancy, etc. In response to this, we have created a social network that delivers SRH content (verified and validated by experts) to women with different degrees of hearing loss. The site features a recommender system that selects the most relevant pieces of content to deliver to each woman, driven by her individual preferences, needs and levels of knowledge on the different subjects. We report experiments conducted in Cuenca, Ecuador, between 2017 and 2018 with 98 volunteers from low- and middle-income settings, aiming to evaluate the quality and appeal of the contents, the coherence of the methodology followed to create them, and the effectiveness of the content recommendations. The positive results encourage the frequent creation of new content and the refinement of the recommendation logic as the cohort of users expands over time.
[...]on the one hand, many hearing-impaired youngsters who have finished primary school still suffer from functional illiteracy or have serious difficulties in understanding texts and expressing themselves [2,3]. [...]the illiteracy ratios among deaf people are much greater than among non-deaf or regular people, and the taboo surrounding sexual and reproductive issues contributes to a large knowledge gap between hearing and non-hearing women during their maturation years and ever after those [12]. Informed by these findings, we have created a bespoke social network for deaf women in Ecuador, which yields guidelines for similar developments in other countries. Besides the specificities of structure and format, our site features a recommender system that addresses (as far as we know, for the first time) a persistent problem in this kind of online resources: it is not enough to attract the target users to a web site; once they have landed on it, it is necessary to face them with properly selected content, in order to make the most of the short time that they are likely to spend browsing its content [22]. Content Creation Guidelines Grounded on a review of the literature in relation to the creation of accessible multimedia contents for hearing-impaired people [23,24], accumulated evidence on how to design and deliver SHR information [25,26] and experiences in running bespoke social networks targeted at certain social groups [27,28], we carried out an ethnographic study in 2016 to involve deaf women in the identification of guidelines for the creation of new materials to offer in our social network.
Author Ramos-Cabrer, Manuel
Pesántez-Avilés, Fernando
Ingavélez-Guerra, Paola
Robles-Bykbaev, Yaroslava
Oyola-Flores, Christian
Robles-Bykbaev, Vladimir Espartaco
López-Nores, Martín
Pazos-Arias, José Juan
AuthorAffiliation 2 AtlantTIC Research Center, Department of Telematics Engineering, University of Vigo, 36310 Vigo, Spain; mlnores@det.uvigo.es (M.L.-N.); jose@det.uvigo.es (J.J.P.-A.); mramos@det.uvigo.es (M.R.-C.)
1 GI-IATa, UNESCO Chair on Support Technologies for Educational Inclusion, Universidad Politécnica Salesiana, 010102 Cuenca, Ecuador; zrobles@ups.edu.ec (Y.R.-B.); coyola@est.ups.edu.ec (C.O.-F.); pcingavelez@ups.edu.ec (P.I.-G.); fpesantez@ups.edu.ec (F.P.-A.)
AuthorAffiliation_xml – name: 1 GI-IATa, UNESCO Chair on Support Technologies for Educational Inclusion, Universidad Politécnica Salesiana, 010102 Cuenca, Ecuador; zrobles@ups.edu.ec (Y.R.-B.); coyola@est.ups.edu.ec (C.O.-F.); pcingavelez@ups.edu.ec (P.I.-G.); fpesantez@ups.edu.ec (F.P.-A.)
– name: 2 AtlantTIC Research Center, Department of Telematics Engineering, University of Vigo, 36310 Vigo, Spain; mlnores@det.uvigo.es (M.L.-N.); jose@det.uvigo.es (J.J.P.-A.); mramos@det.uvigo.es (M.R.-C.)
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Keywords recommender system
hearing loss
Sexual and Reproductive Health
deaf women
Ecuadorian Sign Language
Language English
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Snippet Many deaf women face the lack of numerous resources related to their personal development. The unavailability of proper information on Sexual and Reproductive...
[...]on the one hand, many hearing-impaired youngsters who have finished primary school still suffer from functional illiteracy or have serious difficulties in...
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StartPage 3962
SubjectTerms Access to Information
Adolescent
Adult
Browsing
Communication
Content management software
Deafness
Design
Ecuador
Ethnography
Female
Guidelines
Hearing
Hearing loss
Humans
Illiteracy
Internet resources
Literature reviews
Low income groups
Pregnancy
Pregnancy, Unwanted
Recommender systems
Reproduction
Reproductive Health
Sex Offenses
Sexual Behavior
Sexual Health
Sexually Transmitted Diseases
Sign language
Social Networking
Social networks
Social organization
Websites
Womens health
Young Adult
Title A Bespoke Social Network for Deaf Women in Ecuador to Access Information on Sexual and Reproductive Health
URI https://www.ncbi.nlm.nih.gov/pubmed/31627417
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Volume 16
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