Recruiting and Retaining People With Disabilities for Qualitative Health Research: Challenges and Solutions

There are 56.7 million people with disabilities (PWD) living in the United States; yet, PWD are significantly underrepresented in health research. Even when researchers purposively seek to include PWD in studies, challenges emerge related to recruitment and retention, leading to inadequate represent...

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Bibliographic Details
Published in:	Qualitative health research Vol. 29; no. 7; pp. 1056 - 1064
Main Authors:	Banas, Jennifer R., Magasi, Susan, The, Kim, Victorson, David E.
Format:	Journal Article
Language:	English
Published:	Los Angeles, CA SAGE Publications 01-06-2019 SAGE PUBLICATIONS, INC
Subjects:	Community-Based Participatory Research Disabled Persons Health disparities Health Services Research Healthcare Disparities Humans Medical research Participation Participatory research Partnerships People with disabilities Perpetuation Personnel Selection Qualitative Research Recruitment United States United States United States > US North American qualitative health research qualitative research quantitative research literature review community-based participatory research recruitment and retention people with disabilities
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Summary:	There are 56.7 million people with disabilities (PWD) living in the United States; yet, PWD are significantly underrepresented in health research. Even when researchers purposively seek to include PWD in studies, challenges emerge related to recruitment and retention, leading to inadequate representation and surface understandings of this population. This in turn contributes to the perpetuation of implicit and explicit health disparities that are already experienced by this population. Grounded within a qualitative, community-based participatory health research framework, we highlight challenges associated with recruiting and retaining PWD in health research, including a critical analysis of the research enterprise structure, how this disables accessible research practices for PWD, and leads to continued skepticism among PWD regarding the value of participating in research. Finally, we propose solutions to create and maintain a culture of access and inclusion as well as long-term collaborative and equity-focused partnerships.
Bibliography:	ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 23
ISSN:	1049-7323 1552-7557
DOI:	10.1177/1049732319833361