Development, validation and evaluation of a patient information booklet for rectal cancer survivors with a stoma: A three-step approach
•Lack of information to cancer survivors hampers quality of life.•Written information should be provided at the healthcare facility.•Three-step approach for development of written patient information material.•Written material led to high patient satisfaction and increased perceived knowledge.•The a...
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| Published in: | Patient education and counseling Vol. 104; no. 9; pp. 2275 - 2285 |
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| Main Authors: | , , , , |
| Format: | Journal Article |
| Language: | English |
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Elsevier B.V
01-09-2021
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| Abstract | •Lack of information to cancer survivors hampers quality of life.•Written information should be provided at the healthcare facility.•Three-step approach for development of written patient information material.•Written material led to high patient satisfaction and increased perceived knowledge.•The application of this three-step approach may improve cancer survivorship care.
Quantitatively measure the degree of patient satisfaction and perceived acquired knowledge through the development of a patient information booklet for rectal cancer survivors with a stoma, according to a novel three-step approach.
The study included a systematic literature review to identify relevant information for the booklet, which was validated by experts based on relevance, clarity and essentiality. It underwent testing on quality, readability, and layout and design and was quantitatively evaluated by rectal cancer survivors with a stoma.
In total, 145 articles were used for the development of the booklet. It scored 91% for relevance according to 17 experts, 70% for readability, 75.63% for quality and 23 out of 32 for design. The mean score of patient satisfaction was 8.03 out of 10. All 20 patients found the booklet ‘useful’ and 95% felt better informed.
The booklet scored high for patient satisfaction and increased perceived acquired information. It ensured satisfactory levels of quality, readability, and layout and design.
This study offers a novel three-step approach for development of informational tools for cancer survivors, assuring that a variety of newly created written patient materials would be of increased quality and relevance to any target population. |
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| AbstractList | OBJECTIVEQuantitatively measure the degree of patient satisfaction and perceived acquired knowledge through the development of a patient information booklet for rectal cancer survivors with a stoma, according to a novel three-step approach. METHODSThe study included a systematic literature review to identify relevant information for the booklet, which was validated by experts based on relevance, clarity and essentiality. It underwent testing on quality, readability, and layout and design and was quantitatively evaluated by rectal cancer survivors with a stoma. RESULTSIn total, 145 articles were used for the development of the booklet. It scored 91% for relevance according to 17 experts, 70% for readability, 75.63% for quality and 23 out of 32 for design. The mean score of patient satisfaction was 8.03 out of 10. All 20 patients found the booklet 'useful' and 95% felt better informed. CONCLUSIONSThe booklet scored high for patient satisfaction and increased perceived acquired information. It ensured satisfactory levels of quality, readability, and layout and design. PRACTICE IMPLICATIONSThis study offers a novel three-step approach for development of informational tools for cancer survivors, assuring that a variety of newly created written patient materials would be of increased quality and relevance to any target population. Quantitatively measure the degree of patient satisfaction and perceived acquired knowledge through the development of a patient information booklet for rectal cancer survivors with a stoma, according to a novel three-step approach. The study included a systematic literature review to identify relevant information for the booklet, which was validated by experts based on relevance, clarity and essentiality. It underwent testing on quality, readability, and layout and design and was quantitatively evaluated by rectal cancer survivors with a stoma. In total, 145 articles were used for the development of the booklet. It scored 91% for relevance according to 17 experts, 70% for readability, 75.63% for quality and 23 out of 32 for design. The mean score of patient satisfaction was 8.03 out of 10. All 20 patients found the booklet 'useful' and 95% felt better informed. The booklet scored high for patient satisfaction and increased perceived acquired information. It ensured satisfactory levels of quality, readability, and layout and design. This study offers a novel three-step approach for development of informational tools for cancer survivors, assuring that a variety of newly created written patient materials would be of increased quality and relevance to any target population. •Lack of information to cancer survivors hampers quality of life.•Written information should be provided at the healthcare facility.•Three-step approach for development of written patient information material.•Written material led to high patient satisfaction and increased perceived knowledge.•The application of this three-step approach may improve cancer survivorship care. Quantitatively measure the degree of patient satisfaction and perceived acquired knowledge through the development of a patient information booklet for rectal cancer survivors with a stoma, according to a novel three-step approach. The study included a systematic literature review to identify relevant information for the booklet, which was validated by experts based on relevance, clarity and essentiality. It underwent testing on quality, readability, and layout and design and was quantitatively evaluated by rectal cancer survivors with a stoma. In total, 145 articles were used for the development of the booklet. It scored 91% for relevance according to 17 experts, 70% for readability, 75.63% for quality and 23 out of 32 for design. The mean score of patient satisfaction was 8.03 out of 10. All 20 patients found the booklet ‘useful’ and 95% felt better informed. The booklet scored high for patient satisfaction and increased perceived acquired information. It ensured satisfactory levels of quality, readability, and layout and design. This study offers a novel three-step approach for development of informational tools for cancer survivors, assuring that a variety of newly created written patient materials would be of increased quality and relevance to any target population. |
| Author | Secomandi, Laura E. Olsder, Linde Giannopoulos, Panagiotis Mertens, Yannick J. van Leeuwen, Barbara L. |
| Author_xml | – sequence: 1 givenname: Panagiotis orcidid: 0000-0001-5475-8368 surname: Giannopoulos fullname: Giannopoulos, Panagiotis email: p.giannopoulos@umcg.nl organization: Department of Surgical Oncology, University of Groningen, Groningen, the Netherlands – sequence: 2 givenname: Yannick J. orcidid: 0000-0002-0156-5965 surname: Mertens fullname: Mertens, Yannick J. organization: Department of Surgical Oncology, University of Groningen, Groningen, the Netherlands – sequence: 3 givenname: Laura E. orcidid: 0000-0002-5288-6953 surname: Secomandi fullname: Secomandi, Laura E. organization: Department of Surgical Oncology, University of Groningen, Groningen, the Netherlands – sequence: 4 givenname: Linde surname: Olsder fullname: Olsder, Linde organization: Department of Gastrointestinal Oncology, University of Groningen, Groningen, the Netherlands – sequence: 5 givenname: Barbara L. surname: van Leeuwen fullname: van Leeuwen, Barbara L. organization: Department of Surgical Oncology, University of Groningen, Groningen, the Netherlands |
| BackLink | https://www.ncbi.nlm.nih.gov/pubmed/33685763$$D View this record in MEDLINE/PubMed |
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| CitedBy_id | crossref_primary_10_1016_j_annonc_2023_09_3117 crossref_primary_10_1371_journal_pone_0304180 |
| Cites_doi | 10.1007/s11764-012-0235-9 10.1023/A:1010625806500 10.1016/j.jpainsymman.2016.05.027 10.4103/0250-474X.103857 10.1097/PRS.0b013e3181de24bc 10.1038/nrdp.2015.65 10.1093/annonc/mdq413 10.1097/MEJ.0000000000000264 10.1186/s12891-017-1914-5 10.1136/bmj.39246.581169.80 10.1177/0193945903252998 10.1007/s13187-012-0314-7 10.1016/j.ejcsup.2014.03.001 10.1097/00006199-198611000-00017 10.1002/nur.20147 10.1177/1527154414538102 10.1200/JCO.2013.51.7540 10.1371/journal.pmed.1000097 10.1111/j.1369-7625.2004.00273.x 10.1634/theoncologist.2015-0258 |
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| Copyright | 2021 Elsevier B.V. Copyright © 2021 The Author(s). Published by Elsevier B.V. All rights reserved. |
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| Issue | 9 |
| Keywords | Patient information Three-step approach Stoma Patient satisfaction Rectal cancer Cancer survivorship |
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| Title | Development, validation and evaluation of a patient information booklet for rectal cancer survivors with a stoma: A three-step approach |
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