Seeking cancer treatment for their children: experience of parents from areas distant from Lima-Peru

ABSTRACT Objective: To understand the experiences of parents of children with cancer who come from areas distant from Lima-Peru during the search for cancer treatment for their children. Method: A descriptive-exploratory qualitative approach study. Focus groups and semi-structured interviews were ca...

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Published in:Revista Gaúcha de Enfermagem Vol. 42
Main Authors: Falcón, Gladys Carmela Santos, Espinoza, Lili Ana Ordoñez, Siles, María del Carmen Velandres, Chapoñan, Roberto Zegarra, Huaman, Jhon Alex Zeladita
Format: Journal Article
Language:English
Published: Universidade Federal do Rio Grande do Sul 2021
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Abstract ABSTRACT Objective: To understand the experiences of parents of children with cancer who come from areas distant from Lima-Peru during the search for cancer treatment for their children. Method: A descriptive-exploratory qualitative approach study. Focus groups and semi-structured interviews were carried out. The sample consisted of 18 parents who come from remote areas from Lima who attended specialized hospitals. The qualitative analysis was of thematic content, proposed by Minayo. Results: Three categories emerged: Accessing cancer care in Lima hospitals; Having diverse personal experiences during their child’s treatment; and Reporting the socioeconomic and labor impact during their stay in Lima. Final considerations: Understanding these experiences could help health professionals to implement strategies of socioeconomic support to facilitate access to health services for children with cancer. Hospitals must guarantee the satisfaction of the basic needs of parents. RESUMO Objetivo: Compreender as experiências de pais de crianças com câncer provenientes de áreas distantes de Lima, Peru, durante a busca pelo tratamento oncológico de seus filhos. Método: Estudo de abordagem qualitativa, do tipo descritivo-exploratório. Grupos focais e entrevistas semiestruturadas foram realizadas. A amostra foi composta por 18 pais de áreas remotas que foram a hospitais e a análise foi do tipo temático proposto por Minayo. Resultados: Surgiram três categorias: Acesso ao tratamento do câncer nos hospitais de Lima; Tendo diversas experiências pessoais durante o tratamento do filho; e Relatando o impacto socioeconômico e trabalhista durante a estadia em Lima. Considerações finais: O entendimento dessas experiências poderia ajudar aos profissionais de saúde a implementar estratégias de apoio socioeconômico para facilitar o acesso de crianças com câncer aos serviços de saúde. Os hospitais devem garantir a satisfação das necessidades básicas dos pais. RESUMEN Objetivo: Comprender las experiencias de los padres de niños con cáncer que proceden de zonas distantes a Lima-Perú durante la búsqueda del tratamiento oncológico de sus hijos. Método: Estudio de enfoque cualitativo tipo descriptivo-exploratorio. Se realizó grupos focales y entrevistas semiestructuradas. La muestra estuvo constituida por 18 padres provenientes de zonas alejadas a Lima que acudieron a hospitales especializados. El análisis cualitativo fue de contenido temático, propuesto por Minayo. Resultados: Emergieron tres categorías: Accediendo a atención oncológica en los hospitales de Lima; Teniendo diversas experiencias personales durante el tratamiento de su niño; y Relatando el impacto socioeconómico y laboral durante su permanencia en Lima. Consideraciones finales: Comprender estas experiencias podría ayudar a los profesionales de la salud a implementar estrategias de soporte socioeconómico para facilitar el acceso de los niños con cáncer a los servicios de salud. Los hospitales deben garantizar la satisfacción de necesidades básicas de los padres.
AbstractList ABSTRACT Objective: To understand the experiences of parents of children with cancer who come from areas distant from Lima-Peru during the search for cancer treatment for their children. Method: A descriptive-exploratory qualitative approach study. Focus groups and semi-structured interviews were carried out. The sample consisted of 18 parents who come from remote areas from Lima who attended specialized hospitals. The qualitative analysis was of thematic content, proposed by Minayo. Results: Three categories emerged: Accessing cancer care in Lima hospitals; Having diverse personal experiences during their child’s treatment; and Reporting the socioeconomic and labor impact during their stay in Lima. Final considerations: Understanding these experiences could help health professionals to implement strategies of socioeconomic support to facilitate access to health services for children with cancer. Hospitals must guarantee the satisfaction of the basic needs of parents. RESUMO Objetivo: Compreender as experiências de pais de crianças com câncer provenientes de áreas distantes de Lima, Peru, durante a busca pelo tratamento oncológico de seus filhos. Método: Estudo de abordagem qualitativa, do tipo descritivo-exploratório. Grupos focais e entrevistas semiestruturadas foram realizadas. A amostra foi composta por 18 pais de áreas remotas que foram a hospitais e a análise foi do tipo temático proposto por Minayo. Resultados: Surgiram três categorias: Acesso ao tratamento do câncer nos hospitais de Lima; Tendo diversas experiências pessoais durante o tratamento do filho; e Relatando o impacto socioeconômico e trabalhista durante a estadia em Lima. Considerações finais: O entendimento dessas experiências poderia ajudar aos profissionais de saúde a implementar estratégias de apoio socioeconômico para facilitar o acesso de crianças com câncer aos serviços de saúde. Os hospitais devem garantir a satisfação das necessidades básicas dos pais. RESUMEN Objetivo: Comprender las experiencias de los padres de niños con cáncer que proceden de zonas distantes a Lima-Perú durante la búsqueda del tratamiento oncológico de sus hijos. Método: Estudio de enfoque cualitativo tipo descriptivo-exploratorio. Se realizó grupos focales y entrevistas semiestructuradas. La muestra estuvo constituida por 18 padres provenientes de zonas alejadas a Lima que acudieron a hospitales especializados. El análisis cualitativo fue de contenido temático, propuesto por Minayo. Resultados: Emergieron tres categorías: Accediendo a atención oncológica en los hospitales de Lima; Teniendo diversas experiencias personales durante el tratamiento de su niño; y Relatando el impacto socioeconómico y laboral durante su permanencia en Lima. Consideraciones finales: Comprender estas experiencias podría ayudar a los profesionales de la salud a implementar estrategias de soporte socioeconómico para facilitar el acceso de los niños con cáncer a los servicios de salud. Los hospitales deben garantizar la satisfacción de necesidades básicas de los padres.
ABSTRACT Objective: To understand the experiences of parents of children with cancer who come from areas distant from Lima-Peru during the search for cancer treatment for their children. Method: A descriptive-exploratory qualitative approach study. Focus groups and semi-structured interviews were carried out. The sample consisted of 18 parents who come from remote areas from Lima who attended specialized hospitals. The qualitative analysis was of thematic content, proposed by Minayo. Results: Three categories emerged: Accessing cancer care in Lima hospitals; Having diverse personal experiences during their child’s treatment; and Reporting the socioeconomic and labor impact during their stay in Lima. Final considerations: Understanding these experiences could help health professionals to implement strategies of socioeconomic support to facilitate access to health services for children with cancer. Hospitals must guarantee the satisfaction of the basic needs of parents.
Author Falcón, Gladys Carmela Santos
Chapoñan, Roberto Zegarra
Espinoza, Lili Ana Ordoñez
Siles, María del Carmen Velandres
Huaman, Jhon Alex Zeladita
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