Values of Importance to Patients With Cardiovascular Disease as a Foundation for eHealth Design and Evaluation: Mixed Methods Study
eHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a cardiovascular disease (CVD). Creating long-lasting effects on lifestyle change and health outcomes with eHealth interventions is challenging and requires go...
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Published in: | JMIR cardio Vol. 5; no. 2; p. e33252 |
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Abstract | eHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a cardiovascular disease (CVD). Creating long-lasting effects on lifestyle change and health outcomes with eHealth interventions is challenging and requires good understanding of patient values.
The aim of the study was to identify values of importance to patients with CVD to aid in designing a technological lifestyle platform.
A mixed method design was applied, combining data from usability testing with an additional online survey study, to validate the outcomes of the usability tests.
A total of 11 relevant patient values were identified, including the need for security, support, not wanting to feel anxious, tailoring of treatment, and personalized, accessible care. The validation survey shows that all values but one (value 9: To have extrinsic motivation to accomplish goals or activities [related to health/lifestyle]) were regarded as important/very important. A rating of very unimportant or unimportant was given by less than 2% of the respondents (value 1: 4/641, 0.6%; value 2: 10/641, 1.6%; value 3: 9/641, 1.4%; value 4: 5/641, 0.8%; value 5: 10/641, 1.6%; value 6: 4/641, 0.6%; value 7: 10/639, 1.6%; value 8: 4/639, 0.6%; value 10: 3/636, 0.5%; value 11: 4/636, 0.6%) to all values except but one (value 9: 56/636, 8.8%).
There is a high consensus among patients regarding the identified values reflecting goals and themes central to their lives, while living with or managing their CVD. The identified values can serve as a foundation for future research to translate and integrate these values into the design of the eHealth technology. This may call for prioritization of values, as not all values can be met equally. |
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AbstractList | Background: eHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a cardiovascular disease (CVD). Creating long-lasting effects on lifestyle change and health outcomes with eHealth interventions is challenging and requires good understanding of patient values. Objective: The aim of the study was to identify values of importance to patients with CVD to aid in designing a technological lifestyle platform. Methods: A mixed method design was applied, combining data from usability testing with an additional online survey study, to validate the outcomes of the usability tests. Results: A total of 11 relevant patient values were identified, including the need for security, support, not wanting to feel anxious, tailoring of treatment, and personalized, accessible care. The validation survey shows that all values but one (value 9: To have extrinsic motivation to accomplish goals or activities [related to health/lifestyle]) were regarded as important/very important. A rating of very unimportant or unimportant was given by less than 2% of the respondents (value 1: 4/641, 0.6%; value 2: 10/641, 1.6%; value 3: 9/641, 1.4%; value 4: 5/641, 0.8%; value 5: 10/641, 1.6%; value 6: 4/641, 0.6%; value 7: 10/639, 1.6%; value 8: 4/639, 0.6%; value 10: 3/636, 0.5%; value 11: 4/636, 0.6%) to all values except but one (value 9: 56/636, 8.8%). Conclusions: There is a high consensus among patients regarding the identified values reflecting goals and themes central to their lives, while living with or managing their CVD. The identified values can serve as a foundation for future research to translate and integrate these values into the design of the eHealth technology. This may call for prioritization of values, as not all values can be met equally. eHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a cardiovascular disease (CVD). Creating long-lasting effects on lifestyle change and health outcomes with eHealth interventions is challenging and requires good understanding of patient values. The aim of the study was to identify values of importance to patients with CVD to aid in designing a technological lifestyle platform. A mixed method design was applied, combining data from usability testing with an additional online survey study, to validate the outcomes of the usability tests. A total of 11 relevant patient values were identified, including the need for security, support, not wanting to feel anxious, tailoring of treatment, and personalized, accessible care. The validation survey shows that all values but one (value 9: To have extrinsic motivation to accomplish goals or activities [related to health/lifestyle]) were regarded as important/very important. A rating of very unimportant or unimportant was given by less than 2% of the respondents (value 1: 4/641, 0.6%; value 2: 10/641, 1.6%; value 3: 9/641, 1.4%; value 4: 5/641, 0.8%; value 5: 10/641, 1.6%; value 6: 4/641, 0.6%; value 7: 10/639, 1.6%; value 8: 4/639, 0.6%; value 10: 3/636, 0.5%; value 11: 4/636, 0.6%) to all values except but one (value 9: 56/636, 8.8%). There is a high consensus among patients regarding the identified values reflecting goals and themes central to their lives, while living with or managing their CVD. The identified values can serve as a foundation for future research to translate and integrate these values into the design of the eHealth technology. This may call for prioritization of values, as not all values can be met equally. BackgroundeHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a cardiovascular disease (CVD). Creating long-lasting effects on lifestyle change and health outcomes with eHealth interventions is challenging and requires good understanding of patient values. ObjectiveThe aim of the study was to identify values of importance to patients with CVD to aid in designing a technological lifestyle platform. MethodsA mixed method design was applied, combining data from usability testing with an additional online survey study, to validate the outcomes of the usability tests. ResultsA total of 11 relevant patient values were identified, including the need for security, support, not wanting to feel anxious, tailoring of treatment, and personalized, accessible care. The validation survey shows that all values but one (value 9: To have extrinsic motivation to accomplish goals or activities [related to health/lifestyle]) were regarded as important/very important. A rating of very unimportant or unimportant was given by less than 2% of the respondents (value 1: 4/641, 0.6%; value 2: 10/641, 1.6%; value 3: 9/641, 1.4%; value 4: 5/641, 0.8%; value 5: 10/641, 1.6%; value 6: 4/641, 0.6%; value 7: 10/639, 1.6%; value 8: 4/639, 0.6%; value 10: 3/636, 0.5%; value 11: 4/636, 0.6%) to all values except but one (value 9: 56/636, 8.8%). ConclusionsThere is a high consensus among patients regarding the identified values reflecting goals and themes central to their lives, while living with or managing their CVD. The identified values can serve as a foundation for future research to translate and integrate these values into the design of the eHealth technology. This may call for prioritization of values, as not all values can be met equally. |
Author | van Gemert-Pijnen, Julia Ewc Janssen, Veronica R Bente, Britt E IJzerman, Renée Vh Pieterse, Marcel E Evers, Andrea Wm Breeman, Linda D Kraaijenhagen, Roderik Groeneveld, Rik Gh Wentzel, Jobke de Buisonjé, David R |
AuthorAffiliation | 7 NDDO Institute for Prevention and Early Diagnostics (NIPED) Amsterdam Netherlands 4 Department of Cardiology Amsterdam University Medical Center Academic Medical Center Amsterdam Netherlands 6 Vital10 Amsterdam Netherlands 1 Department of Psychology, Health and Technology Centre for eHealth and Wellbeing Research University of Twente Enschede Netherlands 3 Unit of Health, Medical, and Neuropsychology Faculty of Social and Behavioural Sciences Leiden University Leiden Netherlands 2 Research Group IT Innovations in Health Care Windesheim University of Applied Sciences Zwolle Netherlands 5 Department of Cardiology Leiden University Medical Center Leiden Netherlands 8 Department of Psychiatry Leiden University Medical Center Leiden Netherlands |
AuthorAffiliation_xml | – name: 2 Research Group IT Innovations in Health Care Windesheim University of Applied Sciences Zwolle Netherlands – name: 8 Department of Psychiatry Leiden University Medical Center Leiden Netherlands – name: 1 Department of Psychology, Health and Technology Centre for eHealth and Wellbeing Research University of Twente Enschede Netherlands – name: 6 Vital10 Amsterdam Netherlands – name: 4 Department of Cardiology Amsterdam University Medical Center Academic Medical Center Amsterdam Netherlands – name: 7 NDDO Institute for Prevention and Early Diagnostics (NIPED) Amsterdam Netherlands – name: 3 Unit of Health, Medical, and Neuropsychology Faculty of Social and Behavioural Sciences Leiden University Leiden Netherlands – name: 5 Department of Cardiology Leiden University Medical Center Leiden Netherlands |
Author_xml | – sequence: 1 givenname: Britt E orcidid: 0000-0002-9142-4946 surname: Bente fullname: Bente, Britt E organization: Department of Psychology, Health and Technology, Centre for eHealth and Wellbeing Research, University of Twente, Enschede, Netherlands – sequence: 2 givenname: Jobke orcidid: 0000-0003-3897-4436 surname: Wentzel fullname: Wentzel, Jobke organization: Research Group IT Innovations in Health Care, Windesheim University of Applied Sciences, Zwolle, Netherlands – sequence: 3 givenname: Rik Gh orcidid: 0000-0002-5347-1119 surname: Groeneveld fullname: Groeneveld, Rik Gh organization: Department of Psychology, Health and Technology, Centre for eHealth and Wellbeing Research, University of Twente, Enschede, Netherlands – sequence: 4 givenname: Renée Vh orcidid: 0000-0002-2079-6814 surname: IJzerman fullname: IJzerman, Renée Vh organization: Department of Cardiology, Amsterdam University Medical Center, Academic Medical Center, Amsterdam, Netherlands – sequence: 5 givenname: David R orcidid: 0000-0002-7773-1130 surname: de Buisonjé fullname: de Buisonjé, David R organization: Unit of Health, Medical, and Neuropsychology, Faculty of Social and Behavioural Sciences, Leiden University, Leiden, Netherlands – sequence: 6 givenname: Linda D orcidid: 0000-0002-4441-2731 surname: Breeman fullname: Breeman, Linda D organization: Unit of Health, Medical, and Neuropsychology, Faculty of Social and Behavioural Sciences, Leiden University, Leiden, Netherlands – sequence: 7 givenname: Veronica R orcidid: 0000-0003-4113-6716 surname: Janssen fullname: Janssen, Veronica R organization: Department of Cardiology, Leiden University Medical Center, Leiden, Netherlands – sequence: 8 givenname: Roderik orcidid: 0000-0002-5102-0197 surname: Kraaijenhagen fullname: Kraaijenhagen, Roderik organization: NDDO Institute for Prevention and Early Diagnostics (NIPED), Amsterdam, Netherlands – sequence: 9 givenname: Marcel E orcidid: 0000-0002-6900-3088 surname: Pieterse fullname: Pieterse, Marcel E organization: Department of Psychology, Health and Technology, Centre for eHealth and Wellbeing Research, University of Twente, Enschede, Netherlands – sequence: 10 givenname: Andrea Wm orcidid: 0000-0002-0090-5091 surname: Evers fullname: Evers, Andrea Wm organization: Department of Psychiatry, Leiden University Medical Center, Leiden, Netherlands – sequence: 11 givenname: Julia Ewc orcidid: 0000-0001-6511-7240 surname: van Gemert-Pijnen fullname: van Gemert-Pijnen, Julia Ewc organization: Department of Psychology, Health and Technology, Centre for eHealth and Wellbeing Research, University of Twente, Enschede, Netherlands |
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Copyright | Britt E Bente, Jobke Wentzel, Rik GH Groeneveld, Renée VH IJzerman, David R de Buisonjé, Linda D Breeman, Veronica R Janssen, Roderik Kraaijenhagen, Marcel E Pieterse, Andrea WM Evers, Julia EWC van Gemert-Pijnen. Originally published in JMIR Cardio (https://cardio.jmir.org), 22.10.2021. 2021. This work is licensed under https://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. Britt E Bente, Jobke Wentzel, Rik GH Groeneveld, Renée VH IJzerman, David R de Buisonjé, Linda D Breeman, Veronica R Janssen, Roderik Kraaijenhagen, Marcel E Pieterse, Andrea WM Evers, Julia EWC van Gemert-Pijnen. Originally published in JMIR Cardio (https://cardio.jmir.org), 22.10.2021. 2021 |
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Snippet | eHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a cardiovascular... Background: eHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a... BACKGROUNDeHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a... BackgroundeHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a... |
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SubjectTerms | Blood pressure Cardiovascular disease Consent Data analysis Datasets Health behavior Lifestyles Mixed methods research Original Paper Patients Personal health Usability Values |
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Title | Values of Importance to Patients With Cardiovascular Disease as a Foundation for eHealth Design and Evaluation: Mixed Methods Study |
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