Values of Importance to Patients With Cardiovascular Disease as a Foundation for eHealth Design and Evaluation: Mixed Methods Study

eHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a cardiovascular disease (CVD). Creating long-lasting effects on lifestyle change and health outcomes with eHealth interventions is challenging and requires go...

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Published in:JMIR cardio Vol. 5; no. 2; p. e33252
Main Authors: Bente, Britt E, Wentzel, Jobke, Groeneveld, Rik Gh, IJzerman, Renée Vh, de Buisonjé, David R, Breeman, Linda D, Janssen, Veronica R, Kraaijenhagen, Roderik, Pieterse, Marcel E, Evers, Andrea Wm, van Gemert-Pijnen, Julia Ewc
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Published: Canada JMIR Publications 22-10-2021
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Abstract eHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a cardiovascular disease (CVD). Creating long-lasting effects on lifestyle change and health outcomes with eHealth interventions is challenging and requires good understanding of patient values. The aim of the study was to identify values of importance to patients with CVD to aid in designing a technological lifestyle platform. A mixed method design was applied, combining data from usability testing with an additional online survey study, to validate the outcomes of the usability tests. A total of 11 relevant patient values were identified, including the need for security, support, not wanting to feel anxious, tailoring of treatment, and personalized, accessible care. The validation survey shows that all values but one (value 9: To have extrinsic motivation to accomplish goals or activities [related to health/lifestyle]) were regarded as important/very important. A rating of very unimportant or unimportant was given by less than 2% of the respondents (value 1: 4/641, 0.6%; value 2: 10/641, 1.6%; value 3: 9/641, 1.4%; value 4: 5/641, 0.8%; value 5: 10/641, 1.6%; value 6: 4/641, 0.6%; value 7: 10/639, 1.6%; value 8: 4/639, 0.6%; value 10: 3/636, 0.5%; value 11: 4/636, 0.6%) to all values except but one (value 9: 56/636, 8.8%). There is a high consensus among patients regarding the identified values reflecting goals and themes central to their lives, while living with or managing their CVD. The identified values can serve as a foundation for future research to translate and integrate these values into the design of the eHealth technology. This may call for prioritization of values, as not all values can be met equally.
AbstractList Background: eHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a cardiovascular disease (CVD). Creating long-lasting effects on lifestyle change and health outcomes with eHealth interventions is challenging and requires good understanding of patient values. Objective: The aim of the study was to identify values of importance to patients with CVD to aid in designing a technological lifestyle platform. Methods: A mixed method design was applied, combining data from usability testing with an additional online survey study, to validate the outcomes of the usability tests. Results: A total of 11 relevant patient values were identified, including the need for security, support, not wanting to feel anxious, tailoring of treatment, and personalized, accessible care. The validation survey shows that all values but one (value 9: To have extrinsic motivation to accomplish goals or activities [related to health/lifestyle]) were regarded as important/very important. A rating of very unimportant or unimportant was given by less than 2% of the respondents (value 1: 4/641, 0.6%; value 2: 10/641, 1.6%; value 3: 9/641, 1.4%; value 4: 5/641, 0.8%; value 5: 10/641, 1.6%; value 6: 4/641, 0.6%; value 7: 10/639, 1.6%; value 8: 4/639, 0.6%; value 10: 3/636, 0.5%; value 11: 4/636, 0.6%) to all values except but one (value 9: 56/636, 8.8%). Conclusions: There is a high consensus among patients regarding the identified values reflecting goals and themes central to their lives, while living with or managing their CVD. The identified values can serve as a foundation for future research to translate and integrate these values into the design of the eHealth technology. This may call for prioritization of values, as not all values can be met equally.
eHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a cardiovascular disease (CVD). Creating long-lasting effects on lifestyle change and health outcomes with eHealth interventions is challenging and requires good understanding of patient values. The aim of the study was to identify values of importance to patients with CVD to aid in designing a technological lifestyle platform. A mixed method design was applied, combining data from usability testing with an additional online survey study, to validate the outcomes of the usability tests. A total of 11 relevant patient values were identified, including the need for security, support, not wanting to feel anxious, tailoring of treatment, and personalized, accessible care. The validation survey shows that all values but one (value 9: To have extrinsic motivation to accomplish goals or activities [related to health/lifestyle]) were regarded as important/very important. A rating of very unimportant or unimportant was given by less than 2% of the respondents (value 1: 4/641, 0.6%; value 2: 10/641, 1.6%; value 3: 9/641, 1.4%; value 4: 5/641, 0.8%; value 5: 10/641, 1.6%; value 6: 4/641, 0.6%; value 7: 10/639, 1.6%; value 8: 4/639, 0.6%; value 10: 3/636, 0.5%; value 11: 4/636, 0.6%) to all values except but one (value 9: 56/636, 8.8%). There is a high consensus among patients regarding the identified values reflecting goals and themes central to their lives, while living with or managing their CVD. The identified values can serve as a foundation for future research to translate and integrate these values into the design of the eHealth technology. This may call for prioritization of values, as not all values can be met equally.
BackgroundeHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a cardiovascular disease (CVD). Creating long-lasting effects on lifestyle change and health outcomes with eHealth interventions is challenging and requires good understanding of patient values. ObjectiveThe aim of the study was to identify values of importance to patients with CVD to aid in designing a technological lifestyle platform. MethodsA mixed method design was applied, combining data from usability testing with an additional online survey study, to validate the outcomes of the usability tests. ResultsA total of 11 relevant patient values were identified, including the need for security, support, not wanting to feel anxious, tailoring of treatment, and personalized, accessible care. The validation survey shows that all values but one (value 9: To have extrinsic motivation to accomplish goals or activities [related to health/lifestyle]) were regarded as important/very important. A rating of very unimportant or unimportant was given by less than 2% of the respondents (value 1: 4/641, 0.6%; value 2: 10/641, 1.6%; value 3: 9/641, 1.4%; value 4: 5/641, 0.8%; value 5: 10/641, 1.6%; value 6: 4/641, 0.6%; value 7: 10/639, 1.6%; value 8: 4/639, 0.6%; value 10: 3/636, 0.5%; value 11: 4/636, 0.6%) to all values except but one (value 9: 56/636, 8.8%). ConclusionsThere is a high consensus among patients regarding the identified values reflecting goals and themes central to their lives, while living with or managing their CVD. The identified values can serve as a foundation for future research to translate and integrate these values into the design of the eHealth technology. This may call for prioritization of values, as not all values can be met equally.
Author van Gemert-Pijnen, Julia Ewc
Janssen, Veronica R
Bente, Britt E
IJzerman, Renée Vh
Pieterse, Marcel E
Evers, Andrea Wm
Breeman, Linda D
Kraaijenhagen, Roderik
Groeneveld, Rik Gh
Wentzel, Jobke
de Buisonjé, David R
AuthorAffiliation 7 NDDO Institute for Prevention and Early Diagnostics (NIPED) Amsterdam Netherlands
4 Department of Cardiology Amsterdam University Medical Center Academic Medical Center Amsterdam Netherlands
6 Vital10 Amsterdam Netherlands
1 Department of Psychology, Health and Technology Centre for eHealth and Wellbeing Research University of Twente Enschede Netherlands
3 Unit of Health, Medical, and Neuropsychology Faculty of Social and Behavioural Sciences Leiden University Leiden Netherlands
2 Research Group IT Innovations in Health Care Windesheim University of Applied Sciences Zwolle Netherlands
5 Department of Cardiology Leiden University Medical Center Leiden Netherlands
8 Department of Psychiatry Leiden University Medical Center Leiden Netherlands
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  organization: Department of Psychology, Health and Technology, Centre for eHealth and Wellbeing Research, University of Twente, Enschede, Netherlands
BackLink https://www.ncbi.nlm.nih.gov/pubmed/34677130$$D View this record in MEDLINE/PubMed
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crossref_primary_10_14267_VEZTUD_2022_07_06
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Copyright Britt E Bente, Jobke Wentzel, Rik GH Groeneveld, Renée VH IJzerman, David R de Buisonjé, Linda D Breeman, Veronica R Janssen, Roderik Kraaijenhagen, Marcel E Pieterse, Andrea WM Evers, Julia EWC van Gemert-Pijnen. Originally published in JMIR Cardio (https://cardio.jmir.org), 22.10.2021.
2021. This work is licensed under https://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.
Britt E Bente, Jobke Wentzel, Rik GH Groeneveld, Renée VH IJzerman, David R de Buisonjé, Linda D Breeman, Veronica R Janssen, Roderik Kraaijenhagen, Marcel E Pieterse, Andrea WM Evers, Julia EWC van Gemert-Pijnen. Originally published in JMIR Cardio (https://cardio.jmir.org), 22.10.2021. 2021
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– notice: 2021. This work is licensed under https://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.
– notice: Britt E Bente, Jobke Wentzel, Rik GH Groeneveld, Renée VH IJzerman, David R de Buisonjé, Linda D Breeman, Veronica R Janssen, Roderik Kraaijenhagen, Marcel E Pieterse, Andrea WM Evers, Julia EWC van Gemert-Pijnen. Originally published in JMIR Cardio (https://cardio.jmir.org), 22.10.2021. 2021
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Keywords app
cardiovascular disease
cardiovascular
patient values
eHealth
platform
lifestyle
evaluation
design
health behavior
user-centered design
behavior
intervention
support
mobile app
Language English
License Britt E Bente, Jobke Wentzel, Rik GH Groeneveld, Renée VH IJzerman, David R de Buisonjé, Linda D Breeman, Veronica R Janssen, Roderik Kraaijenhagen, Marcel E Pieterse, Andrea WM Evers, Julia EWC van Gemert-Pijnen. Originally published in JMIR Cardio (https://cardio.jmir.org), 22.10.2021.
This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Cardio, is properly cited. The complete bibliographic information, a link to the original publication on https://cardio.jmir.org, as well as this copyright and license information must be included.
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Snippet eHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a cardiovascular...
Background: eHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a...
BACKGROUNDeHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a...
BackgroundeHealth interventions are developed to support and facilitate patients with lifestyle changes and self-care tasks after being diagnosed with a...
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SubjectTerms Blood pressure
Cardiovascular disease
Consent
Data analysis
Datasets
Health behavior
Lifestyles
Mixed methods research
Original Paper
Patients
Personal health
Usability
Values
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Title Values of Importance to Patients With Cardiovascular Disease as a Foundation for eHealth Design and Evaluation: Mixed Methods Study
URI https://www.ncbi.nlm.nih.gov/pubmed/34677130
https://www.proquest.com/docview/2590723410
https://search.proquest.com/docview/2584439491
https://pubmed.ncbi.nlm.nih.gov/PMC8571692
https://doaj.org/article/795fd6af2f3b454ea8f0468d94429274
Volume 5
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