The Uveitis Patient Passport: A Self-Care Tool

• Published in: Ocular immunology and inflammation Vol. 28; no. 3; pp. 433 - 438
• Main Authors: Bailie, Heather N., Liu, Xiaoxuan, Bruynseels, Alice, Denniston, Alastair K., Shah, Peter, Sii, Freda
• Format: Journal Article
• Language: English
• Published: England Taylor & Francis 02-04-2020
• Subjects: Aged; Chronic Disease; Disease Management; Female; Follow-Up Studies; Forms and Records Control; Humans; Male; Middle Aged; patient education; Patient Education as Topic - methods; patient involvement; patient passport; patient voice; qualitative; Self Care - methods; self-care; Surveys and Questionnaires; uveitis; Uveitis - therapy; patient voice; Chronic disease; patient passport; qualitative; patient education; patient involvement; uveitis; self-care
• ISSN: 0927-3948; 1744-5078
• DOI: 10.1080/09273948.2019.1569240

Purpose: Patient self-care tools can improve patient outcomes in chronic disease. In uveitis, there is an unmet need for the innovative Uveitis Patient Passport (UPP). This study aims to evaluate the success of the passport's introduction into a tertiary uveitis service through patient experience.
Methods: The UPP, created in consultation with patients and the multidisciplinary team, was evaluated using a patient questionnaire and mixed quantitative and qualitative methodology.
Results: Key themes emerged, with the passport used by participants as a self-care resource and an aid for cross-specialty communication. Patient involvement in evaluation identified key areas for passport development in line with patient needs. These included improving clinician engagement and future transference into a smartphone application.
Conclusion: The introduction of the first UPP was a success, especially as a self-care tool for supporting patients in managing their uveitis with the potential to improve patient outcomes.