Advancing Methods for Patient and Community Engagement

• Published in: Western journal of nursing research Vol. 43; no. 10; pp. 903 - 904
• Main Authors: Rawl, Susan M., Newhouse, Robin P.
• Format: Journal Article
• Language: English
• Published: Los Angeles, CA SAGE Publications 01-10-2021; SAGE PUBLICATIONS, INC
• Subjects: Clinical decision making; Clinical outcomes; Evidence-based medicine; Informed consent; Medical research; Nurses; Patient education; Patient-centered care; Patients; Physicians; Stakeholders
• ISSN: 0193-9459; 1552-8456
• DOI: 10.1177/01939459211027656

Over a decade ago, the Patient-Centered Outcomes Research Institute (PCORI) was authorized by the Patient Protection and Affordable Care Act of 2010. The purpose of PCORI is to fund comparative clinical effectiveness research (CER) to provide reliable evidence to help patients and their health care providers make informed decisions. The PCORI Methodology Committee was formed by statute to develop methods standards for the conduct of CER that is funded by PCORI. It is not surprising that the need for patient-centeredness standards quickly emerged as one of the first priorities (PCORI, 2012), and it remains a central methods standard today for the conduct of CER (PCORI Methodology Committee, 2019). Since that time, the use of methods for patient and stakeholder engagement has grown, with the PCORI funding portfolio leading to a body of evidence including a conceptual model (Forsythe et al., 2018) and engagement rubric (PCORI, 2014; Sheridan et al., 2018).Because of nursing’s professional role and science, one of the major alignments and opportunities between PCORI and nursing priorities are the methods for engagement of patients and stakeholders (Newhouse et al., 2015). Using the PCORI definition, research engagement includes “the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process—from planning the study, to conducting the study, and disseminating study results” (PCORI, 2018). According to PCORI,