Challenges in co‐produced dementia research: A critical perspective and discussion to inform future directions
Key points There is a move towards meaningful collaboration of people living with dementia in the research process, but these processes are rarely critiqued, with more critical reflection needed. Current academic structures, frameworks, and funding processes limit meaningful collaboration, particula...
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| Published in: | International journal of geriatric psychiatry Vol. 38; no. 9; pp. e5998 - n/a |
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| Main Authors: | , , , , |
| Format: | Journal Article |
| Language: | English |
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01-09-2023
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| Abstract | Key points
There is a move towards meaningful collaboration of people living with dementia in the research process, but these processes are rarely critiqued, with more critical reflection needed.
Current academic structures, frameworks, and funding processes limit meaningful collaboration, particularly in relation to academic language and hierarchies of evidence.
There is a need for an environment that can enable the collaboration that is at the heart of a co‐produced ethos, but creating such an environment of reciprocity in dementia research requires extensive time, resources and emotional support.
It is important to embrace the tensions of the contexts we, as researchers, work within and continue to strive towards learning and growth, and fairer and more equitable ways of working in co‐produced dementia research. |
|---|---|
| AbstractList | Key points
There is a move towards meaningful collaboration of people living with dementia in the research process, but these processes are rarely critiqued, with more critical reflection needed.
Current academic structures, frameworks, and funding processes limit meaningful collaboration, particularly in relation to academic language and hierarchies of evidence.
There is a need for an environment that can enable the collaboration that is at the heart of a co‐produced ethos, but creating such an environment of reciprocity in dementia research requires extensive time, resources and emotional support.
It is important to embrace the tensions of the contexts we, as researchers, work within and continue to strive towards learning and growth, and fairer and more equitable ways of working in co‐produced dementia research. There is a move towards meaningful collaboration of people living with dementia in the research process, but these processes are rarely critiqued, with more critical reflection needed. Current academic structures, frameworks, and funding processes limit meaningful collaboration, particularly in relation to academic language and hierarchies of evidence. There is a need for an environment that can enable the collaboration that is at the heart of a co‐produced ethos, but creating such an environment of reciprocity in dementia research requires extensive time, resources and emotional support. It is important to embrace the tensions of the contexts we, as researchers, work within and continue to strive towards learning and growth, and fairer and more equitable ways of working in co‐produced dementia research. |
| Author | Brown, Paula Warran, Katey Ashworth, Rosalie Greenwood, Frankie Robertson, Martin |
| Author_xml | – sequence: 1 givenname: Katey orcidid: 0000-0002-8962-3575 surname: Warran fullname: Warran, Katey email: kwarran@ed.ac.uk organization: University of Edinburgh – sequence: 2 givenname: Frankie orcidid: 0000-0001-6097-9335 surname: Greenwood fullname: Greenwood, Frankie organization: University of Edinburgh – sequence: 3 givenname: Rosalie orcidid: 0000-0003-4378-1735 surname: Ashworth fullname: Ashworth, Rosalie organization: NHS Tayside – sequence: 4 givenname: Martin orcidid: 0000-0002-8899-0365 surname: Robertson fullname: Robertson, Martin organization: University of Edinburgh – sequence: 5 givenname: Paula orcidid: 0009-0006-7253-0395 surname: Brown fullname: Brown, Paula organization: University of Edinburgh |
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| ContentType | Journal Article |
| Copyright | 2023 The Authors. International Journal of Geriatric Psychiatry published by John Wiley & Sons Ltd. 2023. This article is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. |
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| References | 2017; 40 1980; 137 2021; 7 2019; 4 2021; 44 2015; 18 2019; 31 2019; 32 2019; 17 2019; 19 2003; 37 2019; 18 2022; 21 2004; 2 2018; 22 2018; 87 1992; 12 2018; 26 2016; 35 2020; 19 2016; 12 2010; 22 2013; 18 2020; 6 2018; 17 1988; 3 2023 2017; 15 2022 2021 2019; 22 2020 2004; 13 2022; 12 2018 2022; 14 2014; 13 2018; 30 2016 2020; 23 2012; 27 2022; 32 2014; 17 2007; 21 e_1_2_13_24_1 e_1_2_13_49_1 e_1_2_13_47_1 e_1_2_13_20_1 e_1_2_13_22_1 e_1_2_13_43_1 e_1_2_13_8_1 e_1_2_13_41_1 e_1_2_13_6_1 e_1_2_13_17_1 e_1_2_13_19_1 e_1_2_13_13_1 e_1_2_13_15_1 e_1_2_13_38_1 e_1_2_13_32_1 e_1_2_13_55_1 e_1_2_13_11_1 e_1_2_13_53_1 e_1_2_13_51_1 e_1_2_13_30_1 e_1_2_13_4_1 e_1_2_13_2_1 e_1_2_13_29_1 e_1_2_13_25_1 Hare P (e_1_2_13_36_1) 2020 e_1_2_13_48_1 e_1_2_13_27_1 e_1_2_13_46_1 e_1_2_13_21_1 e_1_2_13_44_1 e_1_2_13_23_1 e_1_2_13_42_1 e_1_2_13_9_1 e_1_2_13_40_1 National Institute for Health and Care Research (e_1_2_13_7_1) 2023 Kara H (e_1_2_13_34_1) 2022 (e_1_2_13_10_1) 2020; 6 e_1_2_13_18_1 e_1_2_13_39_1 e_1_2_13_35_1 e_1_2_13_16_1 e_1_2_13_37_1 e_1_2_13_31_1 e_1_2_13_12_1 e_1_2_13_33_1 e_1_2_13_54_1 e_1_2_13_52_1 Banks S (e_1_2_13_56_1) 2018 Hickey G (e_1_2_13_14_1) 2018 e_1_2_13_50_1 e_1_2_13_5_1 Kitwood T (e_1_2_13_45_1) 1988; 3 e_1_2_13_3_1 Houston A (e_1_2_13_26_1) e_1_2_13_28_1 |
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| Snippet | Key points
There is a move towards meaningful collaboration of people living with dementia in the research process, but these processes are rarely critiqued,... There is a move towards meaningful collaboration of people living with dementia in the research process, but these processes are rarely critiqued, with more... |
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| StartPage | e5998 |
| SubjectTerms | co‐production critical Dementia Dementia disorders Geriatric psychiatry |
| Title | Challenges in co‐produced dementia research: A critical perspective and discussion to inform future directions |
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| Volume | 38 |
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