Development of GO Move: A Website for Children With Unilateral Cerebral Palsy

• Published in: OTJR (Thorofare, N.J.) Vol. 44; no. 4; pp. 589 - 596
• Main Authors: Shierk, Angela, Roberts, Heather, Habeeb, Youstina, Dursun, Nigar, Cekmece, Cigdem, Bonikowski, Marcin, Pyrzanowska, Weronika, Carranza, Jorge, Granados Garcia, Gabriela, Clegg, Nancy, Delgado, Mauricio R.
• Format: Journal Article
• Language: English
• Published: Los Angeles, CA SAGE Publications 01-10-2024; SAGE PUBLICATIONS, INC
• Subjects: Cerebral palsy; Cerebral Palsy - psychology; Cerebral Palsy - rehabilitation; Child; Data collection; Developmental disabilities; Female; Home Care Services; Humans; Internet; Male; Occupational Therapy - methods; Parents; Qualitative analysis; Qualitative Research; Websites; family-centered practice; exercise; cerebral plasy; knowledge translation; pediatrics
• DOI: 10.1177/15394492231225141
• EISSN: 1938-2383
• ISSN: 1539-4492; 1938-2383

It is unknown if an online tool is wanted by therapists and parents of individuals with unilateral cerebral palsy (UCP) to support implementation of goal-directed home programs, and if wanted, the recommended features for the tool. The objective was to explore the experiences of therapists and parents who have implemented home programs, seek guidance on translating a paper-based home program toolbox into a mobile website, and develop the website. Qualitative descriptive methodology guided data collection using semi-structured interviews and thematic analysis, validated with field notes and member checking. A team science, iterative approach was used to integrate the themes into the development of the mobile website. Five primary themes including recommendations for the functionality, features, content, and naming of the mobile website were identified. Parents and therapists value home programs. Participants provided recommendations regarding content and features, and the GO Move mobile website was developed based on the recommendations.
Plain Language Summary
Development of Go Move: A Website for Children With Unilateral Cerebral Palsy
Therapists and parents of children with unilateral cerebral palsy were interviewed to understand their experience of home programs and gain input for creating a mobile website with information on goal setting and implementing home programs. The interviews provided valuable information about the functionality, features, content, and naming of the website. GO Move, a mobile website aimed to provide information on goal setting, activity selection, and tracking of exercises and activities in the home environment for children with unilateral cerebral palsy, was developed based on the information from the interviews.