Perspective of family members regarding the process of dying in the intensive care unit
This study aimed to investigate the perspective of family members on end-of-life in the Intensive Care Unit. This is an exploratory descriptive study with a qualitative approach. Semi-structured individual interviews were held with eight family members of terminally-ill patients receiving inpatient...
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Published in: | Texto & contexto enfermagem Vol. 23; no. 3; pp. 751 - 757 |
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Abstract | This study aimed to investigate the perspective of family members on end-of-life in the Intensive Care Unit. This is an exploratory descriptive study with a qualitative approach. Semi-structured individual interviews were held with eight family members of terminally-ill patients receiving inpatient treatment in an Intensive Care Unit in a public hospital in Porto Alegre, in the State of Rio Grande do Sul . The method of content analysis was used for data analysis. During the process of dying, it was evident that the feelings experienced by the family members were diverse, including distress, insecurity, anger, guilt and missing the loved one. Also demonstrated by the family members were the importance of being with the loved person, and the desire to establish a link between the team-patient-family
Este estudio tuvo como objetivo conocer la perspectiva de la familia sobre la terminalidad de la vida en la Unidad de Cuidados Intensivos. Se trata de un enfoque cualitativo exploratorio descriptivo. Se realizaron entrevistas individuales y semi-estructuradas con ocho miembros de la familia de los pacientes terminales ingresados en una Unidad de Cuidados Intensivos de un hospital público en Porto Alegre-RS. Para el análisis de datos, se utilizó la técnica de análisis de contenido. Durante el proceso de morir, se hizo evidente que los sentimientos experimentados por los miembros de la familia son diversos, incluyendo ansiedad, inseguridad, ira, culpa y el deseo de estar con la persona. También se demostró la importancia de estar junto a la persona amada y el deseo de establecer un enlace entre equipo de salud-paciente-familia.
Este estudo objetivou conhecer a perspectiva de familiares sobre a terminalidade da vida na Unidade de Terapia Intensiva. Trata-se de um estudo exploratório descritivo com abordagem qualitativa. Foram realizadas entrevistas individuais semi-estruturadas com oito familiares de pacientes terminais internados em uma Unidade de Terapia Intensiva de um hospital público de Porto Alegre-RS. Para a análise dos dados, foi utilizado o método de análise de conteúdo. Durante o processo de morrer, evidenciou-se que os sentimentos vivenciados pelos familiares foram diversos, como angústia, insegurança, revolta, culpa e saudade. Também foi demonstrado pelos familiares a importância de estar junto da pessoa amada e o desejo de estabelecer um vínculo entre equipe-paciente-família. |
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AbstractList | This study aimed to investigate the perspective of family members on end-of-life in the Intensive Care Unit. This is an exploratory descriptive study with a qualitative approach. Semi-structured individual interviews were held with eight family members of terminally-ill patients receiving inpatient treatment in an Intensive Care Unit in a public hospital in Porto Alegre, in the State of Rio Grande do Sul . The method of content analysis was used for data analysis. During the process of dying, it was evident that the feelings experienced by the family members were diverse, including distress, insecurity, anger, guilt and missing the loved one. Also demonstrated by the family members were the importance of being with the loved person, and the desire to establish a link between the team-patient-family This study aimed to investigate the perspective of family members on end-of-life in the Intensive Care Unit. This is an exploratory descriptive study with a qualitative approach. Semi-structured individual interviews were held with eight family members of terminally-ill patients receiving inpatient treatment in an Intensive Care Unit in a public hospital in Porto Alegre, in the State of Rio Grande do Sul . The method of content analysis was used for data analysis. During the process of dying, it was evident that the feelings experienced by the family members were diverse, including distress, insecurity, anger, guilt and missing the loved one. Also demonstrated by the family members were the importance of being with the loved person, and the desire to establish a link between the team-patient-family Este estudio tuvo como objetivo conocer la perspectiva de la familia sobre la terminalidad de la vida en la Unidad de Cuidados Intensivos. Se trata de un enfoque cualitativo exploratorio descriptivo. Se realizaron entrevistas individuales y semi-estructuradas con ocho miembros de la familia de los pacientes terminales ingresados en una Unidad de Cuidados Intensivos de un hospital público en Porto Alegre-RS. Para el análisis de datos, se utilizó la técnica de análisis de contenido. Durante el proceso de morir, se hizo evidente que los sentimientos experimentados por los miembros de la familia son diversos, incluyendo ansiedad, inseguridad, ira, culpa y el deseo de estar con la persona. También se demostró la importancia de estar junto a la persona amada y el deseo de establecer un enlace entre equipo de salud-paciente-familia. Este estudo objetivou conhecer a perspectiva de familiares sobre a terminalidade da vida na Unidade de Terapia Intensiva. Trata-se de um estudo exploratório descritivo com abordagem qualitativa. Foram realizadas entrevistas individuais semi-estruturadas com oito familiares de pacientes terminais internados em uma Unidade de Terapia Intensiva de um hospital público de Porto Alegre-RS. Para a análise dos dados, foi utilizado o método de análise de conteúdo. Durante o processo de morrer, evidenciou-se que os sentimentos vivenciados pelos familiares foram diversos, como angústia, insegurança, revolta, culpa e saudade. Também foi demonstrado pelos familiares a importância de estar junto da pessoa amada e o desejo de estabelecer um vínculo entre equipe-paciente-família. |
Author | Souza, Thieli Lemos de Barilli, Sofia Louise Santin Azeredo, Nára Selaimem Gaertner de |
AuthorAffiliation | Universidade Federal do Rio Grande do Sul Grupo Hospitalar Conceição |
AuthorAffiliation_xml | – name: Universidade Federal do Rio Grande do Sul – name: Grupo Hospitalar Conceição |
Author_xml | – sequence: 1 givenname: Thieli Lemos de surname: Souza fullname: Souza, Thieli Lemos de organization: Conceição Hospital Group, Brazil – sequence: 2 givenname: Sofia Louise Santin surname: Barilli fullname: Barilli, Sofia Louise Santin organization: Universidade Federal do Rio Grande do Sul, Brazil – sequence: 3 givenname: Nára Selaimem Gaertner de surname: Azeredo fullname: Azeredo, Nára Selaimem Gaertner de organization: UFRGS, Brazil |
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DocumentTitleAlternate | Perspectiva de familiares sobre o processo de morrer em unidade de terapia intensiva |
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Keywords | Terminally ill Morte Intensive care units Enfermo terminal Muerte Familia Death Family Unidades de terapia intensiva Unidades de cuidados intensivos Doente terminal Família |
Language | English |
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References | Moritz RD (ref4) 2012 Santos EM (ref9) 2011; 20 Ariés P (ref19) 2012 Cassorla RMS (ref11) 2009 Steinhauser KE (ref17) 2006; 166 Komessu JH (ref6) 2009 Urizzi F (ref1) 2008; 20 Moritz RD (ref2) 2008; 20 (ref15) 2010 Penha RM (ref13) 2012; 21 Hinshaw DB (ref14) 2005; 85 Ferreira NMLA (ref3) 2008; 17 Silva CF (ref5) 2013; 18 Souza JL (ref12) 2009 Silva RS (ref22) 2011; 45 Freitas KS (ref23) 2007; 15 Fridh I (ref24) 2007; 51 Bizek KS (ref8) 2011 Kübler-Ross E (ref10) 2008 King D (ref18) 1994; 39 Bardin L (ref7) 2012 Ehman J (ref16) 1999; 159 Wallau RA (ref20) 2006; 18 Heyland DK (ref21) 2003; 124 Souza, JL; Costa, SMM; Salcedo, EAC; Camy, LFS; Carvalho, FL; Duarte, CAM 2009 2013; 18 Kübler-Ross, E 2008 2010 Bardin, L 2012 2008; 17 Bizek, KS 2011 2011; 20 Cassorla, RMS 2009 Moritz, RD 2012 2005; 85 2006; 18 2011; 45 2007; 51 2008; 20 1994; 39 Ariés, P 2012 Komessu, JH 2009 1999; 159 2003; 124 2012; 21 2006; 166 2007; 15 |
References_xml | – volume: 159 start-page: 1803 issue: 15 year: 1999 ident: ref16 article-title: Do patients want physicians to inquire about their spiritual or religious beliefs if they become gravely ill? publication-title: Arch Intern Med doi: 10.1001/archinte.159.15.1803 contributor: fullname: Ehman J – year: 2012 ident: ref19 contributor: fullname: Ariés P – volume: 17 start-page: 33 issue: 1 year: 2008 ident: ref3 article-title: Cuidados paliativos e família publication-title: Rev Ciênc Méd contributor: fullname: Ferreira NMLA – year: 2008 ident: ref10 contributor: fullname: Kübler-Ross E – start-page: 145 year: 2009 ident: ref12 article-title: A família, a morte e a equipe: acolhimento no cuidado com a criança publication-title: Cuidados paliativos: discutindo a vida, a morte e o morrer contributor: fullname: Souza JL – year: 2012 ident: ref4 contributor: fullname: Moritz RD – year: 2012 ident: ref7 contributor: fullname: Bardin L – volume: 51 start-page: 395 issue: 4 year: 2007 ident: ref24 article-title: Family presence and environmental factors at the time of a patient's death in an ICU publication-title: Acta Anaesthesiol Scand doi: 10.1111/j.1399-6576.2006.01250.x contributor: fullname: Fridh I – volume: 21 start-page: 260 issue: 2 year: 2012 ident: ref13 article-title: Significado de espiritualidade para a enfermagem em cuidados intesivos publication-title: Texto Contexto Enferm doi: 10.1590/S0104-07072012000200002 contributor: fullname: Penha RM – volume: 85 start-page: 257 issue: 2 year: 2005 ident: ref14 article-title: Spiritual issues in surgical palliative care publication-title: Surg Clin North America doi: 10.1016/j.suc.2004.11.002 contributor: fullname: Hinshaw DB – volume: 39 start-page: 349 issue: 4 year: 1994 ident: ref18 article-title: Beliefs and attitudes of hospital inpatients about faith healing and prayer publication-title: J Fam Pract contributor: fullname: King D – volume: 20 start-page: 370 issue: 4 year: 2008 ident: ref1 article-title: Vivência de familiares internados em unidades de terapia intensiva publication-title: Rev Bras Ter Intensiva doi: 10.1590/S0103-507X2008000400009 contributor: fullname: Urizzi F – start-page: 59 year: 2009 ident: ref11 article-title: Negação e outras defesas frente à morte publication-title: Cuidados paliativos: discutindo a vida, a morte e o morrer contributor: fullname: Cassorla RMS – volume: 124 start-page: 392 issue: 1 year: 2003 ident: ref21 article-title: Dying in the ICU: perspectives of family members publication-title: Chest doi: 10.1378/chest.124.1.392 contributor: fullname: Heyland DK – volume: 18 start-page: 45 issue: 1 year: 2006 ident: ref20 article-title: Qualidade e humanização do atendimento em Medicina Intensiva publication-title: Qual a visão dos familiares? Rev Bras Ter Intensiva contributor: fullname: Wallau RA – volume: 166 start-page: 101 issue: 1 year: 2006 ident: ref17 article-title: "Are you at peace?": one item to probe spiritual concerns at the end of life publication-title: Arch Intern Med doi: 10.1001/archinte.166.1.101 contributor: fullname: Steinhauser KE – volume: 18 start-page: 2597 issue: 9 year: 2013 ident: ref5 article-title: Concepções da equipe multiprofissional sobre a implementação dos cuidados paliativos na unidade de terapia intensiva publication-title: Ciênc Saúde Colet doi: 10.1590/S1413-81232013000900014 contributor: fullname: Silva CF – volume: 15 start-page: 84 issue: 1 year: 2007 ident: ref23 article-title: Family members' needs at intensive care units: comparative analysis between a public and a private hospital publication-title: Rev Latino-Am Enferm doi: 10.1590/S0104-11692007000100013 contributor: fullname: Freitas KS – volume: 20 start-page: 214 issue: esp year: 2011 ident: ref9 article-title: Familiares enlutados: compreensão fenomenológica existencial de suas vivências publication-title: Texto Contexto Enferm doi: 10.1590/S0104-07072011000500027 contributor: fullname: Santos EM – start-page: 12 year: 2011 ident: ref8 article-title: A experiência do paciente com doença crítica publication-title: Cuidados críticos de enfermagem: uma abordagem holística contributor: fullname: Bizek KS – year: 2009 ident: ref6 contributor: fullname: Komessu JH – volume: 45 start-page: 738 issue: 3 year: 2011 ident: ref22 article-title: Cuidando do paciente no processo de morte na unidade de terapia intensiva publication-title: Rev Esc Enferm USP doi: 10.1590/S0080-62342011000300027 contributor: fullname: Silva RS – year: 2010 ident: ref15 – volume: 20 start-page: 422 issue: 4 year: 2008 ident: ref2 article-title: Terminalidade e cuidados paliativos na unidade de terapia intensiva publication-title: Rev Bras Ter Intensiva doi: 10.1590/S0103-507X2008000400016 contributor: fullname: Moritz RD – year: 2009 publication-title: Assistir familiares de pacientes fora de possibilidades terapêuticas: competência do enfermeiro [tese] contributor: fullname: Komessu, JH – volume: 39 start-page: 349 issue: 4 year: 1994 end-page: 352 article-title: Beliefs and attitudes of hospital inpatients about faith healing and prayer publication-title: J Fam Pract – volume: 21 start-page: 260 issue: 2 year: 2012 end-page: 268 article-title: Significado de espiritualidade para a enfermagem em cuidados intesivos publication-title: Texto Contexto Enferm – volume: 18 start-page: 2597 issue: 9 year: 2013 end-page: 2604 article-title: Concepções da equipe multiprofissional sobre a implementação dos cuidados paliativos na unidade de terapia intensiva publication-title: Ciênc Saúde Colet – year: 2008 publication-title: Sobre a morte e o morrer contributor: fullname: Kübler-Ross, E – year: 2010 publication-title: Spirituality in Cancer – start-page: 59 year: 2009 end-page: 76 article-title: Negação e outras defesas frente à morte publication-title: Cuidados paliativos: discutindo a vida, a morte e o morrer contributor: fullname: Cassorla, RMS – start-page: 145 year: 2009 end-page: 164 article-title: A família, a morte e a equipe: acolhimento no cuidado com a criança publication-title: Cuidados paliativos: discutindo a vida, a morte e o morrer contributor: fullname: Souza, JL; Costa, SMM; Salcedo, EAC; Camy, LFS; Carvalho, FL; Duarte, CAM – volume: 45 start-page: 738 issue: 3 year: 2011 end-page: 744 article-title: Cuidando do paciente no processo de morte na unidade de terapia intensiva publication-title: Rev Esc Enferm USP – volume: 17 start-page: 33 issue: 1 year: 2008 end-page: 42 article-title: Cuidados paliativos e família publication-title: Rev Ciênc Méd – volume: 51 start-page: 395 issue: 4 year: 2007 end-page: 401 article-title: Family presence and environmental factors at the time of a patient's death in an ICU publication-title: Acta Anaesthesiol Scand – volume: 159 start-page: 1803 issue: 15 year: 1999 end-page: 1806 article-title: Do patients want physicians to inquire about their spiritual or religious beliefs if they become gravely ill? publication-title: Arch Intern Med – volume: 15 start-page: 84 issue: 1 year: 2007 end-page: 92 article-title: Family members' needs at intensive care units: comparative analysis between a public and a private hospital publication-title: Rev Latino-Am Enferm – volume: 20 start-page: 370 issue: 4 year: 2008 end-page: 375 article-title: Vivência de familiares internados em unidades de terapia intensiva publication-title: Rev Bras Ter Intensiva – start-page: 12 year: 2011 end-page: 36 article-title: A experiência do paciente com doença crítica publication-title: Cuidados críticos de enfermagem: uma abordagem holística contributor: fullname: Bizek, KS – year: 2012 publication-title: Análise de conteúdo contributor: fullname: Bardin, L – volume: 18 start-page: 45 issue: 1 year: 2006 end-page: 51 article-title: Qualidade e humanização do atendimento em Medicina Intensiva publication-title: Qual a visão dos familiares? Rev Bras Ter Intensiva – volume: 166 start-page: 101 issue: 1 year: 2006 end-page: 105 article-title: "Are you at peace?": one item to probe spiritual concerns at the end of life publication-title: Arch Intern Med – year: 2012 publication-title: Cuidados paliativos nas unidades de terapia intensiva contributor: fullname: Moritz, RD – volume: 20 start-page: 422 issue: 4 year: 2008 end-page: 428 article-title: Terminalidade e cuidados paliativos na unidade de terapia intensiva publication-title: Rev Bras Ter Intensiva – year: 2012 publication-title: História da morte no ocidente contributor: fullname: Ariés, P – volume: 124 start-page: 392 issue: 1 year: 2003 end-page: 397 article-title: Dying in the ICU: perspectives of family members publication-title: Chest – volume: 85 start-page: 257 issue: 2 year: 2005 end-page: 272 article-title: Spiritual issues in surgical palliative care publication-title: Surg Clin North America – volume: 20 start-page: 214 issue: esp year: 2011 end-page: 222 article-title: Familiares enlutados: compreensão fenomenológica existencial de suas vivências publication-title: Texto Contexto Enferm |
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Title | Perspective of family members regarding the process of dying in the intensive care unit |
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