Perspective of family members regarding the process of dying in the intensive care unit

This study aimed to investigate the perspective of family members on end-of-life in the Intensive Care Unit. This is an exploratory descriptive study with a qualitative approach. Semi-structured individual interviews were held with eight family members of terminally-ill patients receiving inpatient...

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Published in:Texto & contexto enfermagem Vol. 23; no. 3; pp. 751 - 757
Main Authors: Souza, Thieli Lemos de, Barilli, Sofia Louise Santin, Azeredo, Nára Selaimem Gaertner de
Format: Journal Article
Language:English
Published: Universidade Federal de Santa Catarina, Programa de Pós Graduação em Enfermagem 01-09-2014
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Abstract This study aimed to investigate the perspective of family members on end-of-life in the Intensive Care Unit. This is an exploratory descriptive study with a qualitative approach. Semi-structured individual interviews were held with eight family members of terminally-ill patients receiving inpatient treatment in an Intensive Care Unit in a public hospital in Porto Alegre, in the State of Rio Grande do Sul . The method of content analysis was used for data analysis. During the process of dying, it was evident that the feelings experienced by the family members were diverse, including distress, insecurity, anger, guilt and missing the loved one. Also demonstrated by the family members were the importance of being with the loved person, and the desire to establish a link between the team-patient-family Este estudio tuvo como objetivo conocer la perspectiva de la familia sobre la terminalidad de la vida en la Unidad de Cuidados Intensivos. Se trata de un enfoque cualitativo exploratorio descriptivo. Se realizaron entrevistas individuales y semi-estructuradas con ocho miembros de la familia de los pacientes terminales ingresados en una Unidad de Cuidados Intensivos de un hospital público en Porto Alegre-RS. Para el análisis de datos, se utilizó la técnica de análisis de contenido. Durante el proceso de morir, se hizo evidente que los sentimientos experimentados por los miembros de la familia son diversos, incluyendo ansiedad, inseguridad, ira, culpa y el deseo de estar con la persona. También se demostró la importancia de estar junto a la persona amada y el deseo de establecer un enlace entre equipo de salud-paciente-familia. Este estudo objetivou conhecer a perspectiva de familiares sobre a terminalidade da vida na Unidade de Terapia Intensiva. Trata-se de um estudo exploratório descritivo com abordagem qualitativa. Foram realizadas entrevistas individuais semi-estruturadas com oito familiares de pacientes terminais internados em uma Unidade de Terapia Intensiva de um hospital público de Porto Alegre-RS. Para a análise dos dados, foi utilizado o método de análise de conteúdo. Durante o processo de morrer, evidenciou-se que os sentimentos vivenciados pelos familiares foram diversos, como angústia, insegurança, revolta, culpa e saudade. Também foi demonstrado pelos familiares a importância de estar junto da pessoa amada e o desejo de estabelecer um vínculo entre equipe-paciente-família.
AbstractList This study aimed to investigate the perspective of family members on end-of-life in the Intensive Care Unit. This is an exploratory descriptive study with a qualitative approach. Semi-structured individual interviews were held with eight family members of terminally-ill patients receiving inpatient treatment in an Intensive Care Unit in a public hospital in Porto Alegre, in the State of Rio Grande do Sul . The method of content analysis was used for data analysis. During the process of dying, it was evident that the feelings experienced by the family members were diverse, including distress, insecurity, anger, guilt and missing the loved one. Also demonstrated by the family members were the importance of being with the loved person, and the desire to establish a link between the team-patient-family
This study aimed to investigate the perspective of family members on end-of-life in the Intensive Care Unit. This is an exploratory descriptive study with a qualitative approach. Semi-structured individual interviews were held with eight family members of terminally-ill patients receiving inpatient treatment in an Intensive Care Unit in a public hospital in Porto Alegre, in the State of Rio Grande do Sul . The method of content analysis was used for data analysis. During the process of dying, it was evident that the feelings experienced by the family members were diverse, including distress, insecurity, anger, guilt and missing the loved one. Also demonstrated by the family members were the importance of being with the loved person, and the desire to establish a link between the team-patient-family Este estudio tuvo como objetivo conocer la perspectiva de la familia sobre la terminalidad de la vida en la Unidad de Cuidados Intensivos. Se trata de un enfoque cualitativo exploratorio descriptivo. Se realizaron entrevistas individuales y semi-estructuradas con ocho miembros de la familia de los pacientes terminales ingresados en una Unidad de Cuidados Intensivos de un hospital público en Porto Alegre-RS. Para el análisis de datos, se utilizó la técnica de análisis de contenido. Durante el proceso de morir, se hizo evidente que los sentimientos experimentados por los miembros de la familia son diversos, incluyendo ansiedad, inseguridad, ira, culpa y el deseo de estar con la persona. También se demostró la importancia de estar junto a la persona amada y el deseo de establecer un enlace entre equipo de salud-paciente-familia. Este estudo objetivou conhecer a perspectiva de familiares sobre a terminalidade da vida na Unidade de Terapia Intensiva. Trata-se de um estudo exploratório descritivo com abordagem qualitativa. Foram realizadas entrevistas individuais semi-estruturadas com oito familiares de pacientes terminais internados em uma Unidade de Terapia Intensiva de um hospital público de Porto Alegre-RS. Para a análise dos dados, foi utilizado o método de análise de conteúdo. Durante o processo de morrer, evidenciou-se que os sentimentos vivenciados pelos familiares foram diversos, como angústia, insegurança, revolta, culpa e saudade. Também foi demonstrado pelos familiares a importância de estar junto da pessoa amada e o desejo de estabelecer um vínculo entre equipe-paciente-família.
Author Souza, Thieli Lemos de
Barilli, Sofia Louise Santin
Azeredo, Nára Selaimem Gaertner de
AuthorAffiliation Universidade Federal do Rio Grande do Sul
Grupo Hospitalar Conceição
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  givenname: Thieli Lemos de
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  givenname: Sofia Louise Santin
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  fullname: Barilli, Sofia Louise Santin
  organization: Universidade Federal do Rio Grande do Sul, Brazil
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  givenname: Nára Selaimem Gaertner de
  surname: Azeredo
  fullname: Azeredo, Nára Selaimem Gaertner de
  organization: UFRGS, Brazil
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10.1016/j.suc.2004.11.002
10.1590/S0103-507X2008000400009
10.1378/chest.124.1.392
10.1001/archinte.166.1.101
10.1590/S1413-81232013000900014
10.1590/S0104-11692007000100013
10.1590/S0104-07072011000500027
10.1590/S0080-62342011000300027
10.1590/S0103-507X2008000400016
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Issue 3
Keywords Terminally ill
Morte
Intensive care units
Enfermo terminal
Muerte
Familia
Death
Family
Unidades de terapia intensiva
Unidades de cuidados intensivos
Doente terminal
Família
Language English
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  issue: 4
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  article-title: Family presence and environmental factors at the time of a patient's death in an ICU
  publication-title: Acta Anaesthesiol Scand
– volume: 159
  start-page: 1803
  issue: 15
  year: 1999
  end-page: 1806
  article-title: Do patients want physicians to inquire about their spiritual or religious beliefs if they become gravely ill?
  publication-title: Arch Intern Med
– volume: 15
  start-page: 84
  issue: 1
  year: 2007
  end-page: 92
  article-title: Family members' needs at intensive care units: comparative analysis between a public and a private hospital
  publication-title: Rev Latino-Am Enferm
– volume: 20
  start-page: 370
  issue: 4
  year: 2008
  end-page: 375
  article-title: Vivência de familiares internados em unidades de terapia intensiva
  publication-title: Rev Bras Ter Intensiva
– start-page: 12
  year: 2011
  end-page: 36
  article-title: A experiência do paciente com doença crítica
  publication-title: Cuidados críticos de enfermagem: uma abordagem holística
  contributor:
    fullname: Bizek, KS
– year: 2012
  publication-title: Análise de conteúdo
  contributor:
    fullname: Bardin, L
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  start-page: 45
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  end-page: 51
  article-title: Qualidade e humanização do atendimento em Medicina Intensiva
  publication-title: Qual a visão dos familiares? Rev Bras Ter Intensiva
– volume: 166
  start-page: 101
  issue: 1
  year: 2006
  end-page: 105
  article-title: "Are you at peace?": one item to probe spiritual concerns at the end of life
  publication-title: Arch Intern Med
– year: 2012
  publication-title: Cuidados paliativos nas unidades de terapia intensiva
  contributor:
    fullname: Moritz, RD
– volume: 20
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  issue: 4
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  article-title: Terminalidade e cuidados paliativos na unidade de terapia intensiva
  publication-title: Rev Bras Ter Intensiva
– year: 2012
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  contributor:
    fullname: Ariés, P
– volume: 124
  start-page: 392
  issue: 1
  year: 2003
  end-page: 397
  article-title: Dying in the ICU: perspectives of family members
  publication-title: Chest
– volume: 85
  start-page: 257
  issue: 2
  year: 2005
  end-page: 272
  article-title: Spiritual issues in surgical palliative care
  publication-title: Surg Clin North America
– volume: 20
  start-page: 214
  issue: esp
  year: 2011
  end-page: 222
  article-title: Familiares enlutados: compreensão fenomenológica existencial de suas vivências
  publication-title: Texto Contexto Enferm
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