Monitoring Developmental Risk and Promoting Success for Children With Congenital Heart Disease: Recommendations for Cardiac Neurodevelopmental Follow-Up Programs

Survival of children born with complex congenital heart disease (CHD) has improved dramatically in recent years. However, research studies document high rates of neurologic abnormality and neurodevelopmental impairment in this patient population. The American Heart Association (AHA) and American Aca...

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Published in:Clinical practice in pediatric psychology Vol. 2; no. 2; pp. 153 - 165
Main Authors: Brosig, Cheryl, Butcher, Jennifer, Butler, Samantha, Ilardi, Dawn L, Sananes, Renée, Sanz, Jacqueline H, Sood, Erica, Struemph, Kari, Ware, Janice
Format: Journal Article
Language:English
Published: Educational Publishing Foundation 01-06-2014
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Abstract Survival of children born with complex congenital heart disease (CHD) has improved dramatically in recent years. However, research studies document high rates of neurologic abnormality and neurodevelopmental impairment in this patient population. The American Heart Association (AHA) and American Academy of Pediatrics (AAP) recently released guidelines for developmental screening, surveillance, and evaluation of children with CHD. The AHA and AAP jointly developed the guidelines in light of increased awareness of long-term cognitive, behavioral, and social sequelae of CHD and the underutilization of remedial services and supports that address these concerns. The guidelines provide an impetus for hospitals to incorporate formal neurodevelopmental follow-up as an integral component of cardiac care. Existing cardiac neurodevelopment programs are rapidly emerging in the United States, Canada, and abroad. Members of the Society of Pediatric Psychology's Cardiology Special Interest Group collaborated in this effort to describe the essential components of cardiac neurodevelopmental follow-up programs, review implementation and program development challenges, and consider future directions for the field of cardiac neurodevelopment.
AbstractList Survival of children born with complex congenital heart disease (CHD) has improved dramatically in recent years. However, research studies document high rates of neurologic abnormality and neurodevelopmental impairment in this patient population. The American Heart Association (AHA) and American Academy of Pediatrics (AAP) recently released guidelines for developmental screening, surveillance, and evaluation of children with CHD. The AHA and AAP jointly developed the guidelines in light of increased awareness of long-term cognitive, behavioral, and social sequelae of CHD and the underutilization of remedial services and supports that address these concerns. The guidelines provide an impetus for hospitals to incorporate formal neurodevelopmental follow-up as an integral component of cardiac care. Existing cardiac neurodevelopment programs are rapidly emerging in the United States, Canada, and abroad. Members of the Society of Pediatric Psychology's Cardiology Special Interest Group collaborated in this effort to describe the essential components of cardiac neurodevelopmental follow-up programs, review implementation and program development challenges, and consider future directions for the field of cardiac neurodevelopment.
Survival of children born with complex congenital heart disease (CHD) has improved dramatically in recent years. However, research studies document high rates of neurologic abnormality and neurodevelopmental impairment in this patient population. The American Heart Association (AHA) and American Academy of Pediatrics (AAP) recently released guidelines for developmental screening, surveillance, and evaluation of children with CHD. The AHA and AAP jointly developed the guidelines in light of increased awareness of long-term cognitive, behavioral, and social sequelae of CHD and the underutilization of remedial services and supports that address these concerns. The guidelines provide an impetus for hospitals to incorporate formal neurodevelopmental follow-up as an integral component of cardiac care. Existing cardiac neurodevelopment programs are rapidly emerging in the United States, Canada, and abroad. Members of the Society of Pediatric Psychology’s Cardiology Special Interest Group collaborated in this effort to describe the essential components of cardiac neurodevelopmental follow-up programs, review implementation and program development challenges, and consider future directions for the field of cardiac neurodevelopment. (PsycINFO Database Record (c) 2016 APA, all rights reserved) (Source: journal abstract)
Author Brosig, Cheryl
Butcher, Jennifer
Butler, Samantha
Ware, Janice
Sanz, Jacqueline H
Sananes, Renée
Struemph, Kari
Sood, Erica
Ilardi, Dawn L
Author_xml – sequence: 1
  givenname: Cheryl
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  organization: Medical College of Wisconsin, Department of Pediatrics and Herma Heart Center, Children's Hospital of Wisconsin, Milwaukee, Wisconsin
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  organization: University of Michigan Medical School and C.S. Mott Children's Hospital, Ann Arbor, Michigan
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  organization: Harvard Medical School and Boston Children's Hospital, Boston, Massachusetts
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  givenname: Dawn L
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  fullname: Ilardi, Dawn L
  organization: Emory University School of Medicine and Department of Neuropsychology, Children's Healthcare of Atlanta, Atlanta, Georgia
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  givenname: Renée
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  organization: Labatt Family Heart Centre, Hospital for Sick Children, Toronto, Canada
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  organization: Thomas Jefferson University, Department of Pediatrics and Nemours Cardiac Center, Alfred I. duPont Hospital for Children, Wilmington, Delaware
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  givenname: Kari
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  fullname: Struemph, Kari
  organization: Division of Behavioral Health, Alfred I. duPont Hospital for Children
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  givenname: Janice
  surname: Ware
  fullname: Ware, Janice
  organization: Harvard Medical School and Boston Children's Hospital
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Copyright 2014 American Psychological Association
2014, American Psychological Association
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Keywords congenital heart disease
neurodevelopmental assessment
cardiac neurodevelopmental program
pediatric cardiology
early intervention
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Snippet Survival of children born with complex congenital heart disease (CHD) has improved dramatically in recent years. However, research studies document high rates...
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apa
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StartPage 153
SubjectTerms Cardiology
Heart Disorders
Human
Intervention
Measurement
Neurodevelopmental Disorders
Pediatrics
Title Monitoring Developmental Risk and Promoting Success for Children With Congenital Heart Disease: Recommendations for Cardiac Neurodevelopmental Follow-Up Programs
URI http://psycnet.apa.org/journals/cpp/2/2/153
https://www.proquest.com/docview/1536005703
Volume 2
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