Monitoring Developmental Risk and Promoting Success for Children With Congenital Heart Disease: Recommendations for Cardiac Neurodevelopmental Follow-Up Programs
Survival of children born with complex congenital heart disease (CHD) has improved dramatically in recent years. However, research studies document high rates of neurologic abnormality and neurodevelopmental impairment in this patient population. The American Heart Association (AHA) and American Aca...
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Published in: | Clinical practice in pediatric psychology Vol. 2; no. 2; pp. 153 - 165 |
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Educational Publishing Foundation
01-06-2014
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Abstract | Survival of children born with complex congenital heart disease (CHD) has improved dramatically in recent years. However, research studies document high rates of neurologic abnormality and neurodevelopmental impairment in this patient population. The American Heart Association (AHA) and American Academy of Pediatrics (AAP) recently released guidelines for developmental screening, surveillance, and evaluation of children with CHD. The AHA and AAP jointly developed the guidelines in light of increased awareness of long-term cognitive, behavioral, and social sequelae of CHD and the underutilization of remedial services and supports that address these concerns. The guidelines provide an impetus for hospitals to incorporate formal neurodevelopmental follow-up as an integral component of cardiac care. Existing cardiac neurodevelopment programs are rapidly emerging in the United States, Canada, and abroad. Members of the Society of Pediatric Psychology's Cardiology Special Interest Group collaborated in this effort to describe the essential components of cardiac neurodevelopmental follow-up programs, review implementation and program development challenges, and consider future directions for the field of cardiac neurodevelopment. |
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AbstractList | Survival of children born with complex congenital heart disease (CHD) has improved dramatically in recent years. However, research studies document high rates of neurologic abnormality and neurodevelopmental impairment in this patient population. The American Heart Association (AHA) and American Academy of Pediatrics (AAP) recently released guidelines for developmental screening, surveillance, and evaluation of children with CHD. The AHA and AAP jointly developed the guidelines in light of increased awareness of long-term cognitive, behavioral, and social sequelae of CHD and the underutilization of remedial services and supports that address these concerns. The guidelines provide an impetus for hospitals to incorporate formal neurodevelopmental follow-up as an integral component of cardiac care. Existing cardiac neurodevelopment programs are rapidly emerging in the United States, Canada, and abroad. Members of the Society of Pediatric Psychology's Cardiology Special Interest Group collaborated in this effort to describe the essential components of cardiac neurodevelopmental follow-up programs, review implementation and program development challenges, and consider future directions for the field of cardiac neurodevelopment. Survival of children born with complex congenital heart disease (CHD) has improved dramatically in recent years. However, research studies document high rates of neurologic abnormality and neurodevelopmental impairment in this patient population. The American Heart Association (AHA) and American Academy of Pediatrics (AAP) recently released guidelines for developmental screening, surveillance, and evaluation of children with CHD. The AHA and AAP jointly developed the guidelines in light of increased awareness of long-term cognitive, behavioral, and social sequelae of CHD and the underutilization of remedial services and supports that address these concerns. The guidelines provide an impetus for hospitals to incorporate formal neurodevelopmental follow-up as an integral component of cardiac care. Existing cardiac neurodevelopment programs are rapidly emerging in the United States, Canada, and abroad. Members of the Society of Pediatric Psychology’s Cardiology Special Interest Group collaborated in this effort to describe the essential components of cardiac neurodevelopmental follow-up programs, review implementation and program development challenges, and consider future directions for the field of cardiac neurodevelopment. (PsycINFO Database Record (c) 2016 APA, all rights reserved) (Source: journal abstract) |
Author | Brosig, Cheryl Butcher, Jennifer Butler, Samantha Ware, Janice Sanz, Jacqueline H Sananes, Renée Struemph, Kari Sood, Erica Ilardi, Dawn L |
Author_xml | – sequence: 1 givenname: Cheryl surname: Brosig fullname: Brosig, Cheryl organization: Medical College of Wisconsin, Department of Pediatrics and Herma Heart Center, Children's Hospital of Wisconsin, Milwaukee, Wisconsin – sequence: 2 givenname: Jennifer surname: Butcher fullname: Butcher, Jennifer organization: University of Michigan Medical School and C.S. Mott Children's Hospital, Ann Arbor, Michigan – sequence: 3 givenname: Samantha surname: Butler fullname: Butler, Samantha organization: Harvard Medical School and Boston Children's Hospital, Boston, Massachusetts – sequence: 4 givenname: Dawn L surname: Ilardi fullname: Ilardi, Dawn L organization: Emory University School of Medicine and Department of Neuropsychology, Children's Healthcare of Atlanta, Atlanta, Georgia – sequence: 5 givenname: Renée surname: Sananes fullname: Sananes, Renée organization: Labatt Family Heart Centre, Hospital for Sick Children, Toronto, Canada – sequence: 6 givenname: Jacqueline H surname: Sanz fullname: Sanz, Jacqueline H organization: The George Washington University School of Medicine, Departments of Psychiatry and Behavioral Sciences & Pediatrics and Division of Pediatric Neuropsychology, Children's National Medical Center, Washington, DC – sequence: 7 givenname: Erica surname: Sood fullname: Sood, Erica email: erica.sood@nemours.org organization: Thomas Jefferson University, Department of Pediatrics and Nemours Cardiac Center, Alfred I. duPont Hospital for Children, Wilmington, Delaware – sequence: 8 givenname: Kari surname: Struemph fullname: Struemph, Kari organization: Division of Behavioral Health, Alfred I. duPont Hospital for Children – sequence: 9 givenname: Janice surname: Ware fullname: Ware, Janice organization: Harvard Medical School and Boston Children's Hospital |
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Copyright | 2014 American Psychological Association 2014, American Psychological Association |
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Editor | Shroff Pendley, Jennifer Tynan, W. Douglas |
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Keywords | congenital heart disease neurodevelopmental assessment cardiac neurodevelopmental program pediatric cardiology early intervention |
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Snippet | Survival of children born with complex congenital heart disease (CHD) has improved dramatically in recent years. However, research studies document high rates... |
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SubjectTerms | Cardiology Heart Disorders Human Intervention Measurement Neurodevelopmental Disorders Pediatrics |
Title | Monitoring Developmental Risk and Promoting Success for Children With Congenital Heart Disease: Recommendations for Cardiac Neurodevelopmental Follow-Up Programs |
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