Search Results - "van Genderen, F. R."
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Measuring patients' perceptions on their functional abilities: validation of the Haemophilia Activities List
Published in Haemophilia : the official journal of the World Federation of Hemophilia (01-01-2006)“…Recently, the Haemophilia Activities List (HAL), a haemophilia‐specific self‐assessment questionnaire to assess a patient's self‐perceived functional ability,…”
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Pain and functional limitations in patients with severe haemophilia
Published in Haemophilia : the official journal of the World Federation of Hemophilia (01-03-2006)“…Patients with severe haemophilia often experience pain caused by haemophilic arthropathy, and it is known that pain acts as a predictor of disability. The role…”
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Functional consequences of haemophilia in adults: the development of the Haemophilia Activities List
Published in Haemophilia : the official journal of the World Federation of Hemophilia (01-09-2004)“…Several instruments can be used to evaluate the functional status of patients with haemophilia, but none of these instruments is specific for haemophilia. We…”
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Participation and risk-taking behaviour in sports in children with haemophilia
Published in Haemophilia : the official journal of the World Federation of Hemophilia (01-05-2009)“…The aim of this study was to investigate participation in sports activities and risk‐taking behaviour in children with haemophilia and the relationship to…”
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Assessing functional health status in adults with haemophilia: towards a preliminary core set of clinimetric instruments based on a literature search in Rheumatoid Arthritis and Osteoarthritis
Published in Haemophilia : the official journal of the World Federation of Hemophilia (01-07-2005)“…People with haemophilia experience a progressive deterioration of their functional health status. Regular clinical assessment of functional health status…”
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Recent developments in clinimetric instruments
Published in Haemophilia : the official journal of the World Federation of Hemophilia (01-07-2006)“…Assessment of impairment and function is essential in order to monitor joint status and evaluate therapeutic interventions in patients with haemophilia. The…”
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The use of a disability model in haemophilia research
Published in Haemophilia : the official journal of the World Federation of Hemophilia (01-09-2005)“…Most haemophilia research is medically orientated. However, assessment of the impact of disease on the individual is different when viewed from a…”
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Upper limb lymphedema 27 (ULL27): Dutch translation and validation of an illness-specific health-related quality of life questionnaire for patients with upper limb lymphedema
Published in Lymphology (01-09-2008)“…The health-related quality of life questionnaire for lymphedema of the upper limb (ULL27) was translated into Dutch according to international guidelines and…”
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Determinants of participation in patients with severe haemophilia
Published in Haemophilia : the official journal of the World Federation of Hemophilia (01-11-2012)“…Summary The multifactorial nature of disability makes it difficult to point out a specific cause for limitations in participation. The conceptual framework of…”
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Perceived competence in children and adolescents with haemophilia: an explorative study
Published in Haemophilia : the official journal of the World Federation of Hemophilia (01-01-2011)“…With the introduction of prophylaxis, restricting children with haemophilia to participate in physical activities was no longer necessary. Subsequently, many…”
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Patients with chronic whiplash-associated disorders: relationship between clinical and psychological factors and functional health status
Published in American journal of physical medicine & rehabilitation (01-03-2009)“…To examine the relative contribution of cervical impairments and psychosocial factors to perceived disability among people with chronic whiplash-associated…”
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Pain in patients with chronic idiopathic axonal polyneuropathy
Published in European neurology (01-01-2010)“…Pain in patients with chronic idiopathic axonal polyneuropathy (CIAP) has never been studied in detail. The aim of the study was to investigate the pain…”
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