OP‐21 QUALITY OF LIFE BEFORE AND AFTER BIOFEEDBACK TREATMENT IN MYELOMENINGOCELE PATIENT
Introduction: Myelomeningocele is the most common birth defect that causes physical disability, causing fecal incontinence and thus preventing the social integration of these children and adolescents since they reach adulthood being incontinent. Objective: To improve the quality of life and manometr...
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| Published in: | Journal of pediatric gastroenterology and nutrition Vol. 61; no. 4; pp. 518 - 0 |
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| Main Authors: | , , , |
| Format: | Journal Article |
| Language: | English |
| Published: |
United States
01-10-2015
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| Online Access: | Get full text |
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| Summary: | Introduction:
Myelomeningocele is the most common birth defect that causes physical disability, causing fecal incontinence and thus preventing the social integration of these children and adolescents since they reach adulthood being incontinent.
Objective:
To improve the quality of life and manometric values after biofeedback therapy.
Method:
longitudinal, prospective, analytical and experimental study. The study includes children 5 to 15 years with myelomeningocele and fecal incontinence and their parents. After obtaining informed consent and assent, the PedsQMtm generic questionnaire was applied and anorectal manometry and initial biofeedback sessions were then conducted. After treatment completion, the questionnaire was applied again aforementioned. The analysis was done following the Student test and Fisher and Chi square.
Results:
A total of 17 patients aged between 5 and 15 years and their parents were included in the study. Initially all the patients presented fecal incontinence using diapers and did not use toilet.
Only 3 children requiring the use of wheelchairs to roam and 2 orthopedic equipment; the remaining 12 (70.6%) walked without any equipment.
After treatment, all patients improved their fecal incontinence and nine of them stop using diaper (P = 0,0005674). All started the use of the toilet (P = 0,0000001).
Comparing manometric results to begining and the end of treatment with biofeedback we improved voluntary contraction and sensitivity With a P value of 0.00002 and 0.004 respectively. With these results we can prove that there is relationship between biofeedback treatment and improvement in the sensivity and voluntary contraction.
As to test quality of life of children and parents at the beginning and end of treatment, statistically significant differences were observed. It follows from this analysis that there is an improvement in the quality of life for both children and parents after the treatment with biofeedback. But this improvement was most noticeable in the parents than children.
Conclusions:
Clinical improvement and manometry data provides highly significant values. The improvement in quality of life is more notable in the parents. Perhaps these children have developed strategies and stronger psychosocial skills than their parents, because they were born with the disorder and assume daily as such. Unlike parents who encounter this unexpected situation in their lives. |
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| ISSN: | 0277-2116 1536-4801 |
| DOI: | 10.1097/01.mpg.0000472225.94044.68 |