Formation of a stakeholder group of women with a lived experience of Post-partum Psychoses (PP) – Experience from a perinatal psychiatry service in India

Our paper describes the process of creating a stakeholder group for service development and research in Postpartum Psychosis (PP) at a Perinatal Psychiatry Service in India. We involved women who have recovered from PP as `experts by experience’ in identifying areas that need attention from a resear...

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Bibliographic Details
Published in:Asian journal of psychiatry Vol. 84; p. 103592
Main Authors: Vaiphei, Kimneihat, Yaresheemi, Shivanand, Yang, Jessica M.K., Di Florio, Arianna, Chandra, Prabha S., Thippeswamy, Harish
Format: Journal Article
Language:English
Published: Netherlands Elsevier B.V 01-06-2023
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Summary:Our paper describes the process of creating a stakeholder group for service development and research in Postpartum Psychosis (PP) at a Perinatal Psychiatry Service in India. We involved women who have recovered from PP as `experts by experience’ in identifying areas that need attention from a research and service perspectives. A total of 13 group meetings were conducted, in which 9 group meetings involved women with lived experiences of PP and 4 group meetings were with the family members involved in the care of women during the PP episode. Of the 58 participants, 23 women and two family members expressed their willingness to participate in future stakeholder meetings. Involvement of women with PP and their caregivers as stakeholders in mental health decision-making appears feasible in a LMIC setting and should be encouraged. •Our paper describes the process of creating a stakeholder group for service development and research in Postpartum Psychosis (PP) in India.•Involvement of women who have recovered from PP as `experts by experience’ facilitates representation and helps to identify areas that need further research.•Involvement of women with PP and their caregivers in mental health decision-making appears feasible in a LMIC setting.
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ISSN:1876-2018
1876-2026
DOI:10.1016/j.ajp.2023.103592