Moral distress in carers for people with an intellectual disability who died during the COVID‐19 pandemic, a template analysis extending the Barlem and Ramos model of moral distress

Background This article aims to understand moral distress in carers of people with an intellectual disability during the COVID‐19 pandemic. Method Nine staff carers of seven people with an intellectual disability, who had been participants of the IDS‐TILDA study in Ireland, who died during the COVID...

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Bibliographic Details
Published in:	Journal of applied research in intellectual disabilities Vol. 36; no. 3; pp. 507 - 515
Main Authors:	Kelly, Kathyan, Margaret, Haigh, McCarron, Mary, McCallion, Philip, Burke, Eilish, Wormald, Andrew David
Format:	Journal Article
Language:	English
Published:	Oxford, UK Blackwell Publishing Ltd 01-05-2023 Wiley Wiley Subscription Services, Inc
Subjects:	Barriers Caregiver Attitudes Caregiver Role Caregivers caring COVID-19 COVID-19 - epidemiology Death Death & dying Foreign Countries Humans Intellectual disabilities Intellectual Disability Intellectual Disability - epidemiology moral distress Moral injury moral residue moral resilience Moral Values Morals Pandemics Stress Stress Variables Well Being Ireland COVID-19 moral residue caring moral distress moral resilience intellectual disability
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Summary:	Background This article aims to understand moral distress in carers of people with an intellectual disability during the COVID‐19 pandemic. Method Nine staff carers of seven people with an intellectual disability, who had been participants of the IDS‐TILDA study in Ireland, who died during the COVID‐19 pandemic participated in in‐depth, semi‐structured telephone interviews. Template analysis was used to analyze the interviews. Results Obstructions in performing their duties left carers feeling powerless and experiencing moral conflict distress, moral constraint distress and moral uncertainty distress. Most managed to connect to the moral dimension in their work through peer support, understanding they fulfilled the wishes of the deceased, and/or thinking about how they or others did the best they could for the person they were caring for. Conclusions This research demonstrates that while restrictions may have been effective in reducing the spread of COVID‐19, they were potentially damaging to carer wellbeing.
Bibliography:	ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 23
ISSN:	1360-2322 1468-3148
DOI:	10.1111/jar.13073