Search Results - "Wood, Sue"
-
1
A patient-centred and multi-stakeholder co-designed observational prospective study protocol: Example of the adolescent experience of treatment for X-linked hypophosphataemia (XLH)
Published in PloS one (19-01-2024)“…The importance of patient centricity and keeping the patient at the heart of research design is now well recognised within the healthcare community. The…”
Get full text
Journal Article -
2
The International X-Linked Hypophosphatemia (XLH) Registry: first interim analysis of baseline demographic, genetic and clinical data
Published in Orphanet journal of rare diseases (27-09-2023)“…Abstract Background X-linked hypophosphatemia (XLH) is a rare, hereditary, progressive, renal phosphate-wasting disorder characterized by a pathological…”
Get full text
Journal Article -
3
The Medical Dictionary for Regulatory Activities (MedDRA)
Published in Drug safety (01-02-1999)“…The International Conference on Harmonisation has agreed upon the structure and content of the Medical Dictionary for Regulatory Activities (MedDRA) version…”
Get full text
Journal Article -
4
Craniosynostosis in Patients With X‐Linked Hypophosphatemia: A Review
Published in JBMR plus (01-05-2023)“…ABSTRACT Craniosynostosis is a rare condition of skull development, manifesting during fetal and early infant development, and is usually congenital…”
Get full text
Journal Article -
5
Health correlates of autonomy, control and professional relationships in the nursing work environment
Published in Journal of advanced nursing (01-05-2003)“…Background. Internationally, nursing is facing a variety of challenges including changes in health systems, an ageing workforce and escalating shortages of…”
Get full text
Journal Article -
6
A literature review to understand the burden of disease in people living with tumour-induced osteomalacia
Published in Osteoporosis international (01-09-2022)“…Summary This study reviews publications to describe the signs, symptoms and impact of tumour-induced osteomalacia (TIO) on patients’ burden of disease. TIO is…”
Get full text
Journal Article -
7
Anonymous was an embroiderer
Published in Fusion journal (01-09-2016)“…Although shunned by the field of art history, the anonymous craft object, if it is beautiful enough and deemed important enough, may still find a home in the…”
Get full text
Journal Article -
8
First Interim Analysis of the International X-Linked Hypophosphataemia (XLH) Registry: Adult Population Baseline Characteristics
Published in Bone Reports (01-05-2022)Get full text
Journal Article -
9
Burosumab Improves Patient-Reported Outcomes in Adults With Tumor-Induced Osteomalacia: Mixed-Methods Analysis
Published in Journal of bone and mineral research (01-11-2023)“…Tumor-induced osteomalacia (TIO) is an ultra-rare disease caused by tumors that secrete fibroblast growth factor 23, leading to chronic hypophosphatemia, poor…”
Get full text
Journal Article -
10
Clinical and molecular predictors of mortality in neurofibromatosis 2: a UK national analysis of 1192 patients
Published in Journal of medical genetics (01-10-2015)“…Neurofibromatosis 2 (NF2) is an autosomal-dominant tumour predisposition syndrome characterised by bilateral vestibular schwannomas, considerable morbidity and…”
Get more information
Journal Article -
11
Update of surgical treatment of polydactyly
Published in Current opinion in pediatrics (23-11-2022)Get full text
Journal Article -
12
Streamlining orthopaedic nursing
Published in Nursing New Zealand (Wellington, N.Z. : 1995) (01-07-2014)Get more information
Journal Article -
13
Update of surgical treatment of polydactyly
Published in Current opinion in pediatrics (01-02-2023)“…Polydactyly presents with variable extent of duplication and may involve preaxial/radial (hand)/medial (foot), postaxial/ulnar (hand)/lateral (foot) or central…”
Get full text
Journal Article -
14
Asthma terminology and classification in hospital records
Published in Health information management (2005)“…Asthma is a national health priority area in Australia, and there is significant interest in capturing relevant detail about hospitalisations as a result of…”
Get full text
Journal Article -
15
-
16
Community treatment orders: clinical and social outcomes, and a subgroup analysis from the OCTET RCT
Published in Acta psychiatrica Scandinavica (01-05-2015)“…Objective Despite widespread use internationally, there is no convincing evidence that community treatment orders (CTO) (legal regimes making out‐patient…”
Get full text
Journal Article -
17
Implementation of the 15 key elements of effective adolescent literacy programs in Iowa middle schools
Published 01-01-2006“…An adolescent literacy crisis exists in the nation, including Iowa. Scores on measures such as the Iowa Tests of Basic Skills reveal that student achievement…”
Get full text
Dissertation -
18
Tensions and omissions in maintenance management advice for historic buildings
Published in Structural survey (01-07-2004)“…This paper presents a review of the literature pertinent to the management of the maintenance of historic buildings. First, literature on the philosophy and…”
Get full text
Journal Article -
19
Legal jeopardy
Published in Times (London, England : 1788) (27-12-2013)Get full text
Newspaper Article -
20
Hards Times still
Published in Times (London, England : 1788) (25-01-2006)Get full text
Newspaper Article